here I go again and it never ceases to amaze me. My seizures will go months not have any than all of a sudden 2 in a month.So it seems my meds aren't doing there job all of a sudden. My pacemaker isn't either it doesn't want to catch them either. I guess it has to much to do.
the phenobarb isn't working like it was suppose to either. I give up.
I take 4 drugs Tegretol,Topamax,Clonazepam and Phenobarbitol.
The seizures I have are complex partial,absence,generlized ,atonic
I was in the E/R for a seizure when someone noticed that I had an irregular heartbeat and I was told if I didn't get a pacemaker I could have a stroke. My pacemaker catches a lot of my seizures not all of them. Having seizures with a heart problem is common.View Thread
It's hard to avoid what triggers my seizures heat&humidity I live in Georgia. Crowds there are places I wont go. stress if I could manage my stress it'd help.my seizures cause stress. I can handle side effects of meds. My seizures are good at coming on for no reason.
I got rid of stress in my life I didn't need my mother.View Thread
petitmal (absence) epilepsy your lucky that's all you have.I'm sorry you have seizures. I was diagnosed with seizures at 2. It can only take over if you allow it to. meds have a lot to do with the way react to things because of there side effects.
dancer, there are a few things that trigger my seizures,crowds,stress ,heat&humidity.Mono therapy would never work with me. I have to many different types of seizures I'm refractory I don't just have one type of seizure either. I wouldn't believe in a million yrs that a watch could alert me to a seizure I'd have to have proof. Not everyone is controllable I'm allergic to some meds and med resistant to others.View Thread
I've had three VNS surgeries and I've been in 21-22 different meds.I also had a RTL, and I sure feel alone when I have gone so long than all of a sudden they start back up.
I took valium in High school in the 70's.About 50% are controlled by meds.I'm allergic to six meds and med resistant to everything in the Tegretol family except the original Tegretol.
The nearest Epilepsy foundation is quite bit from me.I'm not sure if there is a support group though it disbanded years ago.
There's no pattern for my seizures and I don't remember mine, unless someone has told me about it or I bit my tongue or lost control of my bladder.
I'm on 4 meds now Tegretol,Topamax,Clonazepam and phenobarb. I've had 4 seizures this month and three were this week. I've had epilepsy 49 years and one thing might help with my seizures is my heart pacemaker.View Thread
Im glad your doing good off Topamax, my seizures would go through the roof if I went off it most likely. There aren't any drugs that control me altogether my pacemaker does it better any drug.View Thread