Hi, My name is anna and i'm 25 years old. I haven't been diagnosed with epilepsy or anything for that matter yet. I have never had any major medical problems until February of 2011 when out of the blue I had two seizures back to back. I woke up and paramedics were in my face asking me questions I couldn't really answer. I lost a good portion of my long term memory for a month after that. all the tests came back normal so nothing was done then. Since then I have had over 30 seizures my perphial vision is no gone and I lost all color vision( I only see black and white), I have major migranes all the time, and get nauseated a lot. I have seen doctors etc but no one can figure out what is causing this. I was told that I was having grand mal seizures by the way they were described etc. I have no auroa's or even memory of any of my seizures. I lost two jobs due to having this medical problem and I recently walked out of my last attempt to work after having a manager and several employee's standing around me laughing and saying I was faking it when I woke up from a seizure at work. I'm scared that this wont go away I have tried seizure medicines and nothing is working so far. my vision is getting worse all the time and i'm probably going to go blind soon if I don't get some help. its making me depressed because I can't do a lot of the things I used to or want to like driving etc. I lost my health insurance and its hard to find doctors to really listen and help you with no insurance much less afford to pay for it. I'm really at my breaking point now i'm scared to death and I know something is really wrong with me..i just want answers. is anyone else having this? is it normal to loss your vision etc? is it normal for seizures to just happen out of the blue and continue to get worse? I don't understand it.View Thread
Ithank y'all very much, it's hard to not get my hopes up and to stay off Pinterest lol!!! I have been reading all the info I can on the epilepsy foundation and mayo clinic's websites!!! So far I've found info for having either or and being pregnant so I figured it would be even higher of a risk to have both!! Yes, I did read that you had to take folic acid and prenatal vitamins, as well as discuss with drs about changes to medicines that will be safe during pregnancy!! I haven't done a home test yet... I thought I would wait to see if I missed my period this month ...but last month mine was extremely extremely short and light which is way not normal for me and now my boobs are a little sore not bad enough to really bother me though, I'm going to the bathroom a lot, and for some reason if my sweet little dog comes near me I get nauseous! So I think that's justice enough to go ahead and take one lolView Thread
Thank y'all so much for all the wonderful compliments on my amazing husband!!! I do consider myself lucky to have him!! I think my mom knew what she was doing when she started embarrassing me in front of him by saying my daughter is single are you? Lol!!!
Your right I'm trying to focus on the good and not the bad after all I can't change it now!!! I'm very happy this site exist!!!! I look forward to receiving an email that I have a reply on it!
I have a question and hopefully y'all can help. While my husband and I want nothing more than to be parents one day we weren't trying to get pregnant...but I may be pregnant now!!!! Exciting I know it will be our first!!! We are worried because of the seizures and high blood pressure though. Is it possible to have a healthy pregnancy with both of those things going on? I know timing isn't to good but in a way it is for me because if I am it's exactly 1 year to the day since my mom passed away and that's a miracle to me!!!View Thread
I'm really glad I found this group!!! I've only been given one EEG and that was with my first seizures but it came back normal like yours. I'm told now I need one and a MRI....my husband is getting a better job with excellent benefits so soon all of that won't be a problem!! If it wasn't for him idk what I would do because he has wrote on the tags of all my clothes what color they are so I can dress myself without fear of mismatching lol, he listens to the doctors advice as well as asks questions to be able to help me better!!! I'm getting away from all the negative because I really don't need that, I need to keep calm and positive especially with high blood pressure but sometimes it's hard because I get so frustrated/sad that I can't do a lot of things I used too like drive, go shopping, or really enjoy going to the movies! I hate to hear that you have headaches too, it's miserable I know. Thank you for letting me know that about the medical alert bracelets because I was looking at one at the pharmacy!!! Trust me I know, I couldn't believe she said that to me either! My husband was furious.View Thread
Your very welcome! I agree there is a lot to learn about it and yes while everyone's experience is unique it is still similar to others. I've read that topamax could help with weight loss which Iis fine by me...I'm also on plexus slim and have been doing good in that department but I still have a lot left to loose!!! I read the side effects and what others have said on an Rx app I have and saw that it makes you dopey feeling. I'm going to look into all of that seizure tech stuff. Yes I'm used to all of that when trying new medicines.View Thread
Yes she is, I had already started my journal for my seizures and my husband and I are talking about getting me a medical bracelet. I have walked into plenty of doors etc with my vision loss and like you I can't tell when I'm getting a seizure either. I had 7 seizures on Friday and was taken to the er. They switched my seizure medicines again to topamax. I have to start out at a low dose and work my way up. So hopefully that works out.View Thread
My name is Anna and I am new to this community. I started having seizures in February of 2011 out of the blue and since then I have had over 30 of them, I have lost my per phial vision, and color vision among several other things. I haven't been formaly diagonesed with anything yet but ive been on 3 different medicines so far and none of them has worked yet. Candi had reached out to me on one of the post I made and told me about you Jason. I was wondering if either of you are having vision problems because of the seizures? My vision was ok until I started having seizures and its slowly getting worse. Its like living in an old jerry lee lewis movie 24/7 but only being able to see whats right in front of you. Ive noticed my tunnel of vision is getting smaller as the months go by as well. I thought I was alone in this because most of the doctors I have talked too are just amazed at this. Also do either of you have service dogs weather they be seizure or seeing eye dogs? my husband and I are curious to know if they are good to have since I am home alone a lot. I'm really sorry you are both going through this too because I wouldn't wish this on anyone. cathi I understand the run around when it comes to doctors that's all I have been getting too.View Thread
Thank you for all the info you have given me! I knew seizures could come out of the blue but I had no idea that they could be this bad....I'm having several a week now! I also haven't heard of anyone else losing there per phial vision and going completely color blind! It's like my line of vision is slowly shrinking away! I run into things sometimes especially if it's an unfamiliar place etc. I was told seizures could cause headaches but they told me that it wouldn't cause them 24/7. My doctor back home in Louisiana started having concerns that I have a tumor in my brain but I lost my insurance and never could afford to pay the $300 upfront for the neurosurgeon and the 20% down for the MRI! I tried applying for Medicaid but that was a joke.... Here is what my Representive told me " you didn't qualify even though you obviously need it, I can get you qualified if you either get a divorce, get pregnant, see if your brother will let you claim his baby as yours" I was shocked and very upset that for one I was denied when I need the help and for two she had the nerve to say that to me! I can't file for disability yet even though I meet there requirements because I haven't been diagnosed yet! I hope my doctor back home isn't right that it's not a tumor but honestly I would just be relieved to know! Yes there are a lot of seizure medicines I've tried three so far with no luck but hopefully one will work soon. As far as the people I used to work with that had the nerve to laugh at me and not help me they weren't uneducated in fact 2 of them one being my manager had family members that had seizures! The other one just never liked me..not sure why but I don't care! I will definately be looking for Jason's stuff on here! Thank you again!View Thread
I have never heard of those shots before? do they work well? have you noticed any side effects? I hate pain medicine and try to go as much as I can without it but when my migranes get so bad nothing seems to work good enough.View Thread