I have had the VNS for bout 6.5 years now. It has been replaced once in August of of 10.
IT works great for me. I can shoot auras an szs with one or a few swipes of my magnet.
I wear the wrist magnet a lot easier than triying to fiddle around trying to find the other one.
any way I was originally set at 5 minutes OFF and 20 seconds ON, and just about about 3.5 months ago it was all reset. I am now at 1.8 minutes OFF and 21 seconds ON.
everything has been chabged for better therapy.
The sugerywas done under general and it took just over one hr for the actual impantation. when it was replace about 20 minutes.
IT hurt like double hockey sticks, andI was bawling in the recovery room when I first got it. so much I sis not even feel the insiosn in my chest.
They cut a insion along a crease in your neck that will not show and that gains them access to the Vagus Nerve. Then the wind 2 eletrodes and an anchor around the nerve. Then they tunnel the lead up right next to the skin of your neck after they implant the stimulator in your left chest. IT is sometimes called the pace maker for the brain.
IT sends out electrical signals in even inervals of electricity to tey and keep the neurons form firing wrong and out of order thus keep in them in order.
The 3 most common s/e are haaoseness, couging, and trouble swouble swallowing when the stimulator is ons while eating. so I just stop and wait to; it tirns off then start eating again.
I started responiiiiing to it at 2-3 months and have had nothing but good lich with it,
ITs efficacy is really not shown to about a year after implantation.
however I got lucky. I resoind to electricy I had a TENS unit for my headchesand andTMJ pan and it took all that away with the eletricirty so we knew I would respond to it, it was not if it was when,
I also take 800 mgs of Lamictal 200 mgs of Topamax and 3 mgs of klonopin.
b4 the VNSwas done I wa s slipping awaaay slowly and was having 8-10 szs a day every day and something had to be done, so when I changed neuros almost 7 years ago I had no choice in the matter he MADE me get one. my quality of life stunk and I can not work or drive nad never wil be able to.
I lost a 13 yr old daughter almost 4 years ago and have a 17 yr old still at home in school and is junior. She is doing well she has GMs and also has a VNS. It gives her some relief.
we live on O'ahu in W. Honolulu and try to awoid the Waikiki area which to me is a real pain with all the ourist.
the last sz I ahd was almost 3 weks ago. so tjatwas good.
I have a 1.5 yr old fmILy dog who hs picked up on the sz actoivity and a 3 yr old sz response dog who is a boder collie named Fly.
I am 40 yrs old and have a 45 yr old husband named Jaysn.
married for 18 years.
any more questions about the VNS I wouldGLADLY answer them.
I am also an ambassador for the VNS and volunteer under the rep that works for the Honolulu area.