Hey Nancy, I recently had my VNS put in September 6. 2 days before my 24th bday.
I also experienced that same pain you described. I was put under g/a as well and when I woke up the pain was excruciating! when i woke up i didn't really notice the pain at first but when i started vomiting it made it worse.
I also wear the wrist magnet and agree it is much easier to use. My husband when home, uses the clip magnet.
Mine is currently set to 5 m off 30 s on and i am currently at 0.75 and waiting to get to 3.0 then determine what works best for me. It has been a change for the better. The only s/e that bothers me is the hoarseness, as I love to sing. I also have times where i find it hard to breathe. Did you ever experience that?
I take 500 mg of valproic acid, 800mg of banzel, and 300mg of dilantin. I get a lot of bad side effects from meds. I got the weight gain with the valproic and the swelling of gums with the dilantin. I also took lamictal when i was about 15 and in high school. I experience the rash and was rushed to the hospital due to my skin peeling off my face. I also took topimax and with that i could not eat and was living on boost shakes. I also became toxic on topimax and needed to be taken off due to the fact that i could not hold a conversation let alone count to 10. do you experience any of these w your meds?
I am glad to see you are doing better! and truly sorry about the loss of your daughter.
I also have a dog of my own but he has not know knowledge of whether or not a seizure is coming on or not.
I am 24 years old and my husband is 27 years old and his name is Jeff. We are newlyweds, married in august
I live close to the Toronto area in Ontario Canada in a small town called Cambridge.
Thank you so much for all the information it has helped a lot!
Thanks Candi, I remember noticing I had smaller seizures from the time I was about 10. I didn't notice at the time, but now that I know they were absent seizures it all goes back a few years before. I had my first grand mal when I was 12. Through the years I went through about 7 different meds. I had been on them all and was starting to loose hope, when I started on dilantin in april of this year. There was an amazing result to taking that with valproic acid and banzel, but honestly I think it was mainly just that drug that does it for me. I used to have grand mals every month around that special time. Then they got worse and I was having them almost every week. My absent seizures did stop for a while and they came back even worse. I was getting married in august and all the months prior to april were very terrible. As I know that stress is a big part of seizures, I thought that could be it...and it was that with a combination of the wrong meds. So changing to dilantin decreased my grand mals bigtime. I went months without having one and was happy with only having them every 2-3 months. I don't have an aura for my grand mals and do know when an absent seizure is happening, although there is not much i can do. I was admitted in august prior to my wedding to a epilepsy clinical study. I was there for a week and they discovered and looked into helping my absent seizures. Every time i had an absent seizure i pushed a button which recorded the brain activity. I was thinking they were looking to induce a grand mal, which in the end I was told that I was there to take a look at my absent seizures and how often I had them. I thanked God that i had never had any serious injuries, and this year looking back on it I had my head glued shut, a staple put in my head, and a broken jaw without knowing it. Then I got the VNS and at first it made me really sick when increasing it. But i have found my body has gotten used to it. I go every 2 weeks to increase it. I keep a journal of everything and to remind myself of what I did previous days as my short term memory was affected over the years. I have to increase the stimulations to approx. 3.0 milliamperes. Currently I am at .75, still a long way to go. I have experienced the hoarseness in my voice, but is only really bad at the beginning when they increase it. No i haven't heard about this new RNS procedure. Thanks though for mentioning it, I have something i can read up on now Hope your day is wonderful as well! KylieView Thread