My duaghter was diagnosed with Benign Rolandic Epilepsy about 5-6 years ago. We were always told "She'll grow out of it". As seizures persisted (about 1-2 per year) her neurologist order MRIs, EEGs, etc. Even a 4-day inpatient study to try and trigger a seizure while being monitored. Of course nothing has ever been found. Abou t6 month sago the decision was made to move her medication from Keppra to Oxcarbazepine. We started weening her off the Keppra about 90 days ago. Then yesterday at school she had probably the largest seizure she's ever had. In the ER, she was completely unresponsive for about 2 hours ... then started look around and "wake up" if you will. We are beside ourselves because we aren't sure if there is anything else we could be doing oe should be asking. Her neurology team is at Primary Children's Hospital in SLC, so it's not like she's not receiving fantastic care. Does anyone have any insight as to things we should be doing that we may not have thought about?View Thread
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