I was diagnosed with Epilepsy as an adult 25 years ago. The cause was a head injury that occurred when I was 4 years old. Throughout the years I've been taking meds for temporal lobe simple partial seizures but none seem to be effective and are causing other problems to develop. Before making medicine change two weeks ago, I've taken Tegretol, Neurontin, Depakote, Topamax, Lamictal. Migraines have always been a terrible sidaffect and in the last couple years I've noticed my eyesight is much worse. 3 eyesight prescriptions in the last 2 years. After moving to Montana 9 years ago, I discovered that there are no neurologists in my area. My family doctor does his best to take care of me but I realize he isn't trained well enough for me.
We decided to make a medicine change two weeks ago in an effort to prevent migraines and possibly help eyesight issue. I am currently taking Keppra 500mg 2x daily and Oxcarbzepine 150mg 2x daily. The new meds are not working and I'm having at least 4 or 5 simple partial seizures every day. Who knows how many when I sleep. My memory is being affected and I'm in a constant state of confusion plus the meds make me extremely weak and sleepy.
10 years ago, my Neuro doc suggested that an implant may help but I thought it was too invasive at the time. Since my seizures have never been 100% under control and I have such bad side affects, should I reconsider the implant?
I would like some sort of advice because I cannot live like this. As it is right now, driving is not wise and holding any kind of employment is impossible. My family is going to be living in a cardboard box if this continues. Thank you for ANY help.View Thread
Candi, thanks for the information/suggestions. Over the years I've researched a lot of new and older meds and I came to the conclusion many years ago that ALL have negative side affects. Doctors sometimes are on a "fishing expedition" to find the right meds. I'm not sure how Keppra ever got approval by the FDA. My doctor doubled Oxcarbazepine and stopped Keppra. The mood swings that Keppra brought were horrible and I think the stress that Keppra brought was actually causing seizures. Since changing meds Saturday (3 days ago) no seizures and mood is getting back to normal. I just have to watch my sodium.
I'm also aware that extensive migraines have an affect on eyesight too.
The closest Neuro/epilepsy specialist is in Idaho Falls which is 3 hours drive. Then the next closest is Salt Lake City 6 hr drive. I used to live in Salt Lake City so it looks like I might be visiting a little more often.
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