I am a happy father of 2 boys. My older son (now 8.5 yrs) had his first seizure 18 month ago and a second one 1 month ago. Despite the low frequency, due to long duration (~1hr! in both cases) the doctor suggested to start medication and suggested depakine (valproid acid) mentioning it could potentially help with the attention deficit problem (ADD / ADHD). To be sure, I checked with another doctor and to my surprise she said that depakine could deteriorate the attention deficit issue, based on recent research and publications, therefore she suggested keppra (levetiracetam). Can anyone help so as to take a decision on the medication? Thanks a lot in advance!View Thread
We finally decided to follow the Depakine solution, following the first doctor's advice mainly because we want to avoid our son to get to a 3rd status. We consider Depakine as one of the most effective drug for BRE and therefore prioritizing our objectives we decided to start. The daily amount prescribed is relatively small (1 sachet of 250mg per day). Of course we will keep close track of his progress at school and in case we see attention deficit deteriorating we will discuss with the doctor to maybe change the medication. I will keep you informed of the progress. Needless to say, I much appreciate your support thus far, and I would like to kindly ask you to drop me a message (firstname.lastname@example.org ) in case something comes to your attention.
Thanks a lot!
PS: Melinda did not reply to my message (I guess she was pretty busy) but even having decided to start with Depakine I would love to exchange some info and ideas with her, since she is dealing with a similar case. Pls ask her to reply to me whenever she finds some time.View Thread
Thanks Candi, I have already emailed Melinda and I am expecting news and advice from her.
If you could bare with me I have 2 more questions: 1. My wife is a nurse and works really close and trusts more the 1st doctor who prescribed Depakine. He talked to him about potential impact to attention deficit. He insisted to start with depakine, since it has proved to be more effective with Roland epilepsy over the years while Keppra not, mentioning that the side effects of depakine to attention deficit are not that important nor are they proven yet. I am really confused now!!!
2. We took diazepam with us during vacation period, where it was exposed to temperatures much higher than 25o C (even up to 35 in some cases). It is stated in the pack that it needs to be stored in places with no more than 25o C, so I was wondering if now it is useless and I have to replace it.
Thanks and please excuse me for taking so much of your time.View Thread
In the meantime, I kept on searching and found 2 sources mentioning that valproic acid may be connected with attention impairment. The second one also mentions that keppra (Levetiracetam) may impact positively cognitive development. I will share with you the links below, so as to use them also in the future with other members.
Thanks Candi, I really appreciate your help and support.
Indeed, the Dr prescribed diazepam. Unfortunately, we did not have it with us when the 2nd seizure occured. The Dr said that if we had it with us used it and seen it was working he may not have suggested to start with daily meds. Tough...
I tried to find something on the internet regarding not using valproid acid for kids with add/adhd, but couldn't. I would like to share it with my Dr and ask him to start with Keppra and not with Depakine. If you have or find something please share with me.
Thanks Candi, i really appreciate your advice. Fyi, both of the seizures were just 1 on-going situation with complete loss of consiousness, head turned to the right side, eyes wide open and pupils dillated. Especially the second time he did could not recover by himself so they gave him in the hospital after 1 hour stendon intravenously and he immediately fell asleep. He woke up after 3 hours with terrible headache coming from the back of his head and extremely exhausted. After less than half an hour he fell asleep again and slept for10-11 hours. He then was back to normal like nothing had hapenned.
As for the medication, I guess you have not heard of some connection of valproid acid with attention deficit disorder. If somebody knows something pls share with me so as to immediately start the treatment.