I spoke again with my neuro's office. I found out I have RTLE & LPLE.
Since the med change to Aptiom and beginning to take a really strong antibiotic I've had one aura and a few seizures after another. Feeling terrible....so what I want to say is GRRRRRRRR!!!!!!!
Whew hopefully no more seizures today.View Thread
Thank y'all for all the advice!
I re-read all of this thread and don't remember typing/responding any of this. It was like reading someone else typing about me. Seizures are a funny creature.
I'm on my 3rd day of an ambulatory EEG. Get to take it off in an hour or so. Yea!
Turns out the probiotic was causing more seizure activity as well. Stopped it and the seizures have largely subsided but do still have frequent headaches and dizziness. I'm thinking this is probably migraines. Idk.
Thankful to be at the end of this EEG. Lol
Do y'all have a problem with vitamins and antibiotics too? I can't take anything vitamin or herbal either or I'll have seizure activity. Learning more each day I guess. :0)
God bless y'all! ChaddyView Thread
I stopped the antibiotic and am taking probiotics. I bit my tongue during a seizure I believe and had so many auras and seizures this weekend was a nightmare.
But, God is good and it's calming down now. 3 different kinds of seizures going on. Trying not to be in the ICU again. Believing God and thank y'all for your prayers! God bless! ChaddyView Thread
Thank you Nancy & Candi for responding!
I'm taking a strong antibiotic called Xifaxan. It's for intestines trying to get them back to working right because of IBS and Gastroparesis and diverticulitis. But I've had one seizure and aura after another since I started taking it.
I'm kind of stuck right now. If I don't get cleared up with the gut stuff it can result in a colostomy sometime. If I keep taking antibiotics I have seizures. The seizures have me in a fog right now, but The Lord will provide and protect.
Any input y'all have please let me know.
I slept almost all yesterday due to seizures.
Need a break here. Lol
Thank yallView Thread
I need to keep a journal. Had auras this morning but I'm afraid sometimes auras and seizures have become so common to me that I don't think much about them. VNS is looking more tempting all the time. Hmmm...
Thank you for prayers, I really do appreciate it View Thread
Mine are parietal lobe. Also sometimes in other areas and will generalize.
Very hard to control, but The Lord is good to me and I know at some
Point they will be totally controlled :0) GOD bless!
I'm having seizure activity today. My Aptiom isn't working so good right now. This is my 10 med I've tried. Feel terrible. Tired of these. Remember me in prayer please
Thank you God bless ChaddyView Thread
You might be able to get your PCP to request a copy of med records from your Neuro and they might be able to explain the results? Mine does that for me from others docs I've been to. I'm blessed that my neuro is 30 minutes away and communicates readily via phone and email. She is the best neuro!
Will write more later View Thread