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Here's a list of Adult Epilepsy Support Groups across the country that I've compiled. Hopefully it will be of help.
If you have any additions or suggestions, please, sing out!!!
Phylis Feiner Johnson
www.epilepsytalk.comView Thread
Here's a list of Adult Epilepsy Support Groups across the country that I've compiled. Hopefully it will be of help.
If you have any additions or suggestions, please, sing out!!!
Phylis Feiner Johnson
www.epilepsytalk.comView Thread
Many people with epilepsy have seizures that are not controlled using current treatments. If you are over 12 years of age and have trouble controlling your seizures, you may be interested in the EXPLORE 332 Epilepsy study.
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Fycompa (perampanel) has received FDA approval for the treatment of partial onset seizures among epilepsy patients aged 12 and older.
Click the link above for the full article!
HaylenView Thread
HaylenView Thread
What Causes Seizures in People With Photosensitive Epilepsy?
Have you been affected by any of the triggers mentioned in the article? There was a discussion here recently about Facebook Timeline triggering some . How do you avoid certain triggers? Share your story here!
HaylenView Thread
The United States is a little behind in the research on this topic.. As big industry blocks this information.View Thread
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Thyroid dysfunction and seizures - Epilepsy Forum
Opinions/advice of those who have been there done that.
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If you have a trigger that is listed & would like to post your Input/experience, Please Do. HUGS!Love Candi & Kudos to Phylis, Once Again.
Thank You PhylisView Thread
This is a place where patients, their advocacy organizations, and various experts can share thoughts and advice about living with chronic diseases and disabilities.
Let me know what you think - are there topics you'd like to see covered that could benefit members of this community?
HaylenView Thread
Have a great day - and thank you for being here and being such a great support to "regulars" and "newbies"
HaylenView Thread
I was informed on another site that these are perfectly Legal for Us to operate. Just be sure to wear a Helmet & Maybe other Protective Gear. ie: Knee/elbow protection. I wouldn't suggest riding one, if you have Absence seizures. Unless controlled.
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Anyone have anything to add? Do you have "tips or tricks" to make taking medication easier?
HaylenView Thread
Very well written & Informative!View Thread
Thanks Everybody, quite a comfort to know great folks are out there with this.View Thread

http://www.n-styleid.com/
http://www.oneida-medical-jewelry.com/
http://www.911life.com/
I believe 'Weblinks for Epilepsy' in Popular Discussions on the Rite, has these & other sites posted, too.
Love Phylis & CandiView Thread
The Epilepsy Foundation has learned that Pfizer is contacting health care professionals, including pharmacists, about a shortage of DILANTIN 30 mg. According to Pfizer, this product shortage is due to a manufacturing issue and not the result of any performance or safety concerns. The company expects DILANTIN 30 mg to be available to patients by June 30, 2011.
The DILANTIN 30 mg product is used by a limited number of people, so check your prescription bottle to see if you might be affected by this shortage. The Epilepsy Foundation's medical experts recommend that you contact your physician immediately if you use this product. Please keep in mind that any change to your therapy should be done only at the direction of your physician.
DILANTIN 30 mg is a prescription medicine used to treat tonic-clonic (grand mal) seizures, complex partial (psychomotor or temporal lobe) seizures, and to prevent and treat seizures that happen during or after brain surgery. The following DILANTIN formulations are still available through normal channels:
- DILANTIN INFATABS® (Phenytoin Tablets, USP) 50 mg
- DILANTIN-125® (Phenytoin Oral Suspension, USP) 125 mg
- DILANTIN® (Extended Phenytoin Sodium Capsules, USP) 100 mg
If you have any questions, please contact Pfizer Medical Information at 1-800-438-1985. The Epilepsy Foundation will maintain close communication with Pfizer in order to keep you informed and obtain the most accurate timeline on when this shortage will be resolved.View Thread
HaylenView Thread
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