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American Bar Association (ABA) — Although the ABA cannot help you directly, there are many people out there who can. This site will guide you to a list of resources in your state. Most legal issues are regulated by the law in the state where you live, or where the problem occurred. Simply click on a state (or Canada) to find free legal help in that state. http://www.abanet.org/legalservices/findlegalhelp/home.cfm?gnav=global_publicresources_findlegalhelp And for an explanation of how finding free services works, go to: http://www.abanet.org/legalservices/findlegalhelp/faq_freehelp.cfm#probono
LawHelp — "is your gateway to America's nonprofit legal aid providers." They help low and moderate income people find free legal aid programs in their communities, and answers to questions about their legal rights. For free legal aid referrals and information, choose your state and click on it. http://www.lawhelp.org/
Legal Services Corporation (LSC) — is the single largest provider of civil legal aid for the poor in the nation. LSC distributes more than 95 percent of its total funding to 136 independent nonprofit legal aid programs with more than 900 offices that provide legal assistance to low-income individuals and families throughout the nation. http://www.lsc.gov/about/factsheet_whatislsc.php#backtotop For a map of where LSC services are available, click on http://www.lsc.gov/map/index.php
The National Center for Law and Economic Justice — recruits major law firms to act as pro bono co-counsel. They ask civil rights, civil liberties, women's rights, disability rights, and immigrants' rights organizations and other legal advocacy organizations, to co-counsel with them. http://www.nclej.org/about.php
Lawyers.com — provides inexpensive pro bono legal help with programs manned by local attorneys who've agreed to provide free legal representation to those who qualify, either because of income or circumstances. Programs are also available for people who earn too much to qualify for legal services or pro bono programs, but don't make enough to hire an attorney at traditional rates. http://research.lawyers.com/When-You-Cant-Afford-a-Lawyer.html
Phylis Feiner Johnson
www.epilepsytalk.comView Thread
My neurologist prescribed Vimpat to me about six months ago. I have had great success with it. Since the drug just came on the market in (December'09?) it remains very expensive. My insurance covers some of it, but I am still paying about $175/month for the prescription. However, I find it to be well worth the money. I look at it like an investment for getting and keeping a job. The seizures have reduced about 75% and the symptoms of the seizures I continue to have are not nearly as extreme. I used to be exhausted after a seizure for about an hour and my mood would change for the remainder of the day. This does not happen any more.
I see that several people are quite far away from a neurologist in a metro area. I know this can be tough since I used to live about 60 miles from a large metro area that had a decent neurologist. My wife would have to take the day off and drive me back and forth, but we still found it to be well worth the trip.
Check Vimpat out - I have had no side effects to date.View Thread
Written by investigative health reporter William Heisel, this blog is devoted to: "New Ways to Investigate Untold Health Stories."
In "Doctors Behaving Badly," Heisel tells of his year-long odyssey, investigating medical boards — state by state — across the country.
His research is ongoing, tracking his discoveries on a Google map which shows where he's been, along with the stories of each doctor's malpractice.
The map and the research will be updated weekly…
For anyone who is moving or looking for docs of any kind, this is an invaluable resource for checking a doctor's credentials and claims.
We should all be thankful for William Heisel's diligence.
Phylis Feiner Johnson
www.epilepsytalk.comView Thread
Phylis Feiner Johnson
www.epilepsytalk.comView Thread
This Tip applies to Everyonehttp://health.msn.com/health-topics/adhd/slideshow.aspx?cp-documentid=100253640View Thread
Believe it or not, you can save BIG bucks at the drugstore around the corner (some prescription, some generic and some of both, depending upon the pharmacy) if you just do a little homework…
Costco Member Prescription Program — offers a discount on all branded and generic prescription medications. Members (and their dependents) who have no prescription drug coverage available are eligible to join. http://www.envisionrx.com/costco/cmpp.aspx
The CVS/Pharmacy Health Savings Pass allows you to pay only $9.99 for a 90 day supply of your generic prescription. http://www.cvs.com/CVSApp/promoConte...LandingId=1046
Target’s FREE Prescription Discount Card saves you up to 80% on Target’s generic medications and up to 15% on Target’s name brand prescriptions. http://www.rxfreecard.com/target-pre...n-savings.html
Walgreens Prescription Savings Club has over 400 generics priced at $12 for a 90-day supply. https://webapp.walgreens.com/MYWCARD...xy/RxSavingsRH
Walmart and Sam’s Club offer you ”special negotiated pricing on prescription drugs” with their PatientAssistance.com Prescription Drug Program. (Sounds kind of fishy to me.) http://www.patientassistance.com/wmt.html
And the RxSavingsPlus is a free drug/prescription discount card, to help lower the price for medication. It can be used at CVS Pharmacy, Target, Rite Aid and 60,000 participating pharmacies nationwide. And offers an average of 20% off the retail price of drugs. (Kind of skimpy, but one-stop shopping.) http://www.rxsavingsplus.com/
phylisfeinerjohnson
www.epilepsytalk.comView Thread
Hi there.
I don't want to sound bossy or presumptuous, but after 44 years of practice with E, I have a bit of experience.
I post on a couple of other forums, and Candi knows that I am a moderator on one of them in particular.
E Journals is a topic that a lot new E patients truly don't understand the importance of, and I just can't stress them enough. I'm going to post below what I tend to tell the newbies on the other forum that I moderate on to put in their E journals. You can adapt it as needed, and I know some of the others here, such as Tammy, have brought them up before. But, having one has certainly helped MY neuro. It can certainly help YOURS.
1. Sleep. List how much & when.
2. Eating. List how much, when & what. It's possible to have seizures caused by allergies to food.
3. TV/computer/video games. Yup, they can affect you if you're photosensitive, so list when, what, and HOW LONG.
4. Menses (for women). Start tracking your cycles. CATAMENIAL epilepsy does exist, sometimes it's tied to ovulation, sometimes its right at the TOM.
5. Stress List when it occurred, and what happened.
6. Exercise List what you did, when, and any reactions.
7. Seizures/auras. If you have either, DOCUMENT THEM. Auras--note what they're like--do you smell or taste something that others don't? Hear something? Seizures--how long, when, where, what happened. If you don't KNOW what happened, get eyewitness accounts when possible and DOCUMENT THEM.
8. Smoking and alcohol. Ditch them--both are neurotoxins for our brains.
9. Meds (of ANY kind). List the dosages, and when taken.
******
1. You MUST get 7 to 7.5 hours of sleep as a MINIMUM, no ifs, ands or buts about it.
2. Eating--one of the other mods at one of the other forums promotes eating 6 small meals a day, using a dessert plate, filling it with a carb and a protein. Good idea, I think. However, some people, like me are allergic to certain foods. You might want to look into various diets. Ketogenic, Modified Atkins, Low Glycemix Index, Gluten Free Casein Free (see www.dogtorj.com).
3. Look into a glare screen or blue tinted polarized GLASSES (available by prescription from eye doctor). These can help cut down on seizures that are caused by photosensitive epilepsy.
4. GUYS--you may not have a cycle, but you DO have hormones. DO get your doc to do a full hormone screen, check thyroid, etc, just to make sure.
5. Use things like yoga, music, walking, whatever it is that you do to bust out your stress. Keep a separate journal to write in so that you can write out your feelings in--and keep it for your eyes only. Write it out by hand, two or three pages at a time. It helps A LOT. DO IT EVERY DAY.
6. REFLEX E can be caused by exercise, so DO track what you do. Keep in mind that you SHOULD NOT swim, bike, hike or bungee jump by yourself. Same goes for mountain climbing.
7, 8 & 9. 'Nuff said.
OK, the journal IS a pain in the arse. No doubt about that one. BUT it DOES help the doctors track things down. Especially in patients like me, who have multiple diagnoses going on (Candi can vouch for this).
I've got to get going--I'm hooked up to a portable EEG as we speak, and I've got meds to take. If you have any questions, please feel free to let me know. Candi knows how to find me, as I really don't know if I can find my way back in here again.
Good luck, and take care everyone. Hopefully, I can find my way back here again.........*eyeroll* Don't count on it though..... *chuckling*
Meetz
(From the Epilepsy: Support Group)
View Thread
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