At about six years old, it was determined that I had been born blind in one eye. They said that this was due to wet macular degeneration in utero. At the time, I had just begun to perceive light in that eye... before that time I did not realize I was blind in that eye. It was discovered as I was being tested for a cause for my frequent migraines. The doctors at the time told me that my sight in that eye would never improve. The vision in my sighted eye grew worse as I aged from severe myopia. I know that at age 16 I tested at 20/400 in my sighted eye and I am now 35 years old. It is correctable by glasses but lately that has been complicated by worsening astigmatism.
But oddly, despite doctors saying that it is impossible, I have been slowly yet steadily gaining sight in my "bad" eye. I went from complete blackness from birth to age 6, to noticing light and then seeing contrasting colors by age 12 or so, to seeing non-contrasting color differences in my teens and young twenties. Now, I can perceive very gradual changes in color and can also see high contrast images with some degree of actual clarity if they are within an inch of my eye, even reading letters if they are at this range and are very large print (such as 36 point type or more). When doing this, I must move my head as there are hazy dark areas. While it is not very useful vision and would still be considered blindness because it is not correctable, it still goes against everything that doctors have said could happen. It has given me hope that if I were to lose vision in my "good" eye for some reason, I could still function in many ways with the use of visual aids. It is also useful when driving, as I can perceive some motion if I am paying attention to the input from that eye. (I seem to be able to ignore or pay attention to what I perceive from that eye at will.) Could this continue to improve? How and why could vision improve in that eye if it was caused by wet macular degeneration in utero?
Also, I have noticed as I have aged that I am losing muscle tone around my "bad" eye. The lid droops when I am fatigued or have a migraine. I am now finding that it tends to droop even under normal circumstances. I would like to begin to correct this. How can I go about doing this? Could wearing a patch over my "good" eye when at home help in improving muscle tone as it will force me to use my "bad" eye more? Is there any way that doing so could improve my visual acuity in my "bad" eye?
I have found it difficult to discuss any of this with optometrists.... they seem mostly interested in correcting the vision in my sighted eye and dismiss questions about my blind eye, sometimes saying that with the amount of scarring they see when they look inside that eye, the amount of vision I claim is "impossible." I have been told it is "impossible" by at least three eye doctors, including one during childhood who indicated to my parents that I was lying about what I could perceive in that eye and that such a sight defect could NEVER improve. We did not return to that doctor.
Please help me understand what my blind eye may have the ability to do and how to improve the muscle tone around it.