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I hope when you do get to retire you will notice a change for the better in your stress/pain level. Will be think about you and glad to hear from you.View Thread
Yesterday, after a particularly long and busy week, I all of a sudden started to shake all over and then started to cry and cry for no reason at all. It didn't stop for 3 hours and a friend of mine called my husband to pick me up at work. I could not drive my own car and it feels as if my brain does'nt function well. Went to the doctor and he prescribed pills to make me sleepy and relax my muscles. I have to go back to work on Monday, but am so scared I will not be able to do my job (I am a teacher). What had happened to me yesterday? What do I do now?View Thread
Yesterday, after a particularly long and busy week, I all of a sudden started to shake all over and then started to cry and cry for no reason at all. It didn't stop for 3 hours and a friend of mine called my husband to pick me up at work. I could not drive my own car and it feels as if my brain does'nt function well. Went to the doctor and he prescribed pills to make me sleepy and relax my muscles. I have to go back to work on Monday, but am so scared I will not be able to do my job (I am a teacher). What had happened to me yesterday? What do I do now?View Thread
anyone else tried it?View Thread
I have found that the best treatment for fibro is:
no caffeine
no chocolate- I know, but these are two of the greatest culprits to cause of fibro pain!
regular sleep pattern
Gabapentin, not Cymbalta 3 times per day, the Dr. will up the dosage gradually.
You HAVE to de-stress your life AGRESSIVELY. Change your job, change your hubby, whatever it takes to give you peace in your daily living.
Stay away from processed foods-eat healthly and your body will pay you back with feeling goodView Thread
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looking for some anwsers0% (0)
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possible doctor change100% (1)
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anyone who can help0% (0)
never give up believing that we will find a cure. I know when the pain and exhaustion hit its easy to forget that others have walked in your shoes so to speak. First off get a real good book or online info source for yourself.
I am thankful for the countless words of encouragement over the last 20 years from friends online and out in the real world. Tears have been shed , hair pulled mentally but without them I wouldhave lost my waay many times over.
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I am knew here & had a quick question or two. I have NOT been dx'd w/ Fibro yet, but I have had a lot of the same symptoms as fibro for several years, with no real reason as to where each of them are coming from (fatigue, shortness of breath, digestive issues/IBS, chest pain/acid reflux, headache, muscle weakness after short amount of time in using muscles, generalized skin pain for no reason (allodynia...to pressure & light brushing). The main thing I DON'T have are any of the 18 trigger points that are required for an official diagnosis of Fibro.
My question is, therefore, can you HAVE fibro with NONE of the trigger/tender points at all??? And if not, does that only leave Lupus & RSD? My hair is also thinning for a few years now (I'm 0nly 36yf female). The allodynia comes & goes, and when it's at its worst, it's only a few days...not very disruptive. But my concern is how bad some say this symptom can get, & I just wanted to deal with it with an official diagnosis from my doc, if I can. but I thought I could rule out Fibro from the lack of trigger points. Any ideas on Fibro w/o trigger points? Is it possible, or IMpossible?
Thanks fo your help!~K.S.View Thread
I did it by making myself and my health a priority above everything else. Some of these things will seem so simple or impossible but just entertain the idea and try it for a few months.
1) GET ENOUGH SLEEP. It doesnt matter how - always always always get enough sleep. Do not compromise that.
2) Go to a chiropractor - I see a upper cervical chiropractor and highly recommend that type of chiropractor
3) Adjust your diet and eat frequently -- one of my symptoms is hypoglycemia so I must manage my blood sugar very well in order to have any amount of energy (if you struggle with this I can give you more pointers) -- eat HIGH quality food (do not eat processed food -- that includes breads, frozen, most dairy - and eat every 3-4 hours without fail)
4) Exercise -- I fell in love with zumba, yoga, and pilates (I know this may seem impossible, but take baby steps... you can get there) -- they help to loosen up your tight muscles, relieve stress, help you sleep, and releases your body's natural pain killers. (Remember, for us this is about mind over matter... your body CAN still exercise, but your brain isnt going to want you to at first thanks to the pain and fatigue... dont let it stop you from getting better - you CAN push through it and the benefits of doing so are worth it)
5) Take supplements - I take magnesium, vitamin B, and vitamin D
6) Find a hobby or something that makes you happy and make time for it -- if you let yourself become depressed over the condition your health is in, this only makes the pain worse because you are constantly concentrating on it. MAKE YOURSELF do it, even when you are hurting or are too tired. You CAN do it.
7) Find someone to confide in -- teach them to understand what it feels like so you can talk to them about it. It helps to not have to hide your symptoms.
Now, I just see FMS as my body being high maintenance to feel good... You CAN feel better again -- it will take some time (it took me around 6-8 months) but you CAN get there, and it IS worth it. You will appreciate those days you feel great so much more once you get there.View Thread
The highest pain I can handle and still function is a 5 or 6, and most days I live in that range. There are those days when I can barely can keep from screaming—when the pain gets to an 8. I have noticed that sounds seem louder, I become irritable, and I grimace with movement. Moving even though it hurts terribly, distracting myself, etc. work sometimes when the pain is bad, but other times all I can do go back to bed and curl up in a fetal position with a cuddly blanket and hope the pain goes back down soon. I am still trying to follow such days to see what the triggers are. I do know that stress, anxiety, over-exertion, and the cold all make my pain worse. Also, I have found that if there is a different reason for pain (ie. sore tooth, when I had a cyst removed on my back, etc.) my pain gets amplified everywhere.
I had 3 doctors tell me that I it would be better if I quit nursing school, so that I could rest and so that then my symptoms would get better. I told them I had worked too hard to quit, and my current doctor worked with me through school. Once I finished school, the pain got really bad. My doctor then determined that she had been wrong, that school and work are good for me, because I can focus on something other than my pain. I have found this to be true, that if I am home and there is nothing really to do, often the pain will get out of control and I can't do anything anyway. If however, if I invite friends over, go to work, volunteer, etc. the pain comes down to a manageable level. Something to distract the mind has been very helpful for me.
I hope this is a little helpful. This is just what I have found.View Thread
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Thank you for the encouragement. I look forward to talking with others. I hope you have a great Thanksgiving.View Thread
Diane
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Poll Results
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Lyme disease0% (0)
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lack of rem sleep43% (3)
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other57% (4)
Acceptance is wrong and seems - I can't even find the words for it right now. It's the hand I've been dealt and I have no option but to "accept" it.... It's pretty much the only option I have at this point.View Thread
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