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Reply: fibro-melt-down... possible?

You are definately not alone, altho I know how that feeling goes, I am glad to hear you are going to stop...

Limpylizard

Posted by limpylizard

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Reply: looking for feedback

Hello, There are many reasons for chest pain, but with FM it seems to be a broader pain than just pain over...

Posted by limpylizard

Hello, There are many reasons for chest pain, but with FM it seems to be a broader pain than just pain over or around the heart, and muka57 is absolutely right about the trigger points, check it out and have someone help you test the different trigger points, be sure to mark them down, 11 of the 18 different spots is a very good indicator of FB, it seems like people with FM almost have to diagnose them selfs. It was helpful for me to keep a pain diary, and to list what you were doing, what brought on the pain ie: working resting and such, decribe the pain with words such as dull, sharp, burning, stabbing and so on. include what made it worse and what gave you relief. Do this for about a month so your Dr can see exactly what is going on. I have had Fibro for 20 years and have found that most GP's don't seem to be all that versed on FM. If you can, finding a good pain managment Dr is to me the most important thing. You need one who is willing to LISTEN and not rattle of the standard mumbo-jumbo, You are the expert in this situation because it is your body. And most definately it is cyclitic, in my own case I refer to my days as good days and bad days. I have constant pain all over, but it also can be in one quadrant of the body and not another, but generaly I have more pain in my upper back across my sholders, it is a burning pain and at times it is almost impossible for me to do the simplest of things. What I have found that helps me is a hot shower, and some days I will sit in the shower 3 or 4 times. At the present time I am on 3 medications for the FM, a pain pill, Neurontin and Cymbalta, this has helped a lot, but am now at the point I feel I need a muscle relaxor too, I have gone through 3 pain managment Dr's and the last one and I clicked, he took a lot of time listening to me and giving me options, so I didn't start out on all 3 meds at once. He also told me I needed to be kinder to myself, I always tried to push through the pain and felt guilty and embarrased if I didn't, but you know since I have started being my own best friend lol, I feel better, if I am having one of my bad days I just sit and do something relaxing, looking in the garden books and planning my flowerbeds and garden is one of my favorite things, and if I don't feel like getting out of my PJ's I don't.... You did not say if you worked or not so staying in your PJ's may not be an option dress code and all lol. I also use a lot of humor to help. It is very infuriating to be in pain and not be able to get relief, I read anything and everything about Fibro so as to try to be as knowledable as possible,and I can be very pushy when I think something will work for me, but my Dr is willing to give it a try, So I can relate to what you are saying being a kindred soul and all lol, I don't intend to sound like an expert on anyones pain/illness [because I am not> but knowledge is power. I am always sorry to hear of someone suffering through any chronic illness and I wish you the best in finding relief, hope this has helped in some small way. Good Luck and please let us know how it is going for you.View Thread

Posted by limpylizard

3 Replies | Reply | Watch This Discussion Report This | Share this:looking for feedback Hello, There are many reasons for chest pain, but with FM it seems to be a broader pain than just pain over...

Fibro and Hypoglycemai

Anyone have fibromyalgia that is also have problems with hypoglycemia?

Posted by harrisranch2

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Reply: New here

Hi Jennifer, I am also new to this site, and a little nervous about complaining to much also. I am way past...

Posted by limpylizard

Hi Jennifer, I am also new to this site, and a little nervous about complaining to much also. I am way past 28 but was there once, I am always sorry to hear of someone else with fibro, I have dealt with this issue for over 20 years now and I to get angry about the many limitations FM has had on my life style. I finaly, about 3 years ago, was hooked up with a pain managment Dr, well actualy I changed Dr's in the same practice, my first Dr and I were not at all compatiable, but the second was a blessing. He has worked with me and as of now am on Cymbalta Nurotin and Hydrocodon 10/325, it has helped to the point that I am able to participate in my life again. I am an avid gardner and love nature. I think sadness is always there just under the surface for all who have to re-adjust their lives. As for guilt please just open your inner window and toss it out! I have come to the conclusion that if people can not accept who you ARE instead of making you feel guilty for who you are not they don't deserve a place in my life or yours!!!! It took me quite a while to come to that point, and I believe in the long run it caused me alot more pain. I have also been diagnosed with Polymyalgie? I have not done much research on that, but just figure FM is enough of a pain in the keester (pun intended) to deal with. I have found humor helps alot, especially when the Fibro is kicking my hinney, I have a good support system even though they don't entirely understand. I know it is hard especially with 3 children, but please don't think of FM as a life sentence, instead as a bump in the road, medical research has come a long way and made many strides since I had my inital diagnosis. For a long time Physicians would label you neurotic or a hypocondriach if you complained of something they couldn't put their finger on or didn't show up in a x-ray, but now if you have a good Dr they are more accepting of the fact that not everything can be seen through a microcope or on an x-ray. If you would like someone to complain to, a sholder to cry on or just to vent I would be honored to take on that job, I have big ears and can put them to good use. I sincerely wish you a wonderful day X365.View Thread

Posted by limpylizard

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NY Times

http://www.nytimes.com/interactive/2010/03/04/health/heal...

good voices..real people just like me.

Posted by D12345678

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Reply: At the end of my rope!!!!

It sounds to me you need some time to yourself. Do you have some place to go? You should not be responsible for...

Posted by namann

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fibro-melt-down... possible?

I've been living with the symptoms of Fibrmyalgia most of my adult life, but have only recently been diagnosed...

Posted by namann

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fibro-melt-down... possible?

I've been living with the symptoms of Fibrmyalgia most of my adult life, but have only recently been diagnosed...

Posted by namann

coconut oil?

bought some the other day and have been putting it in my smoothies. we'll see. anyone else tried it?

Posted by D12345678

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Reply: Fibro

Hi there- I have found that the best treatment for fibro is: no caffeine no chocolate- I know, but...

Posted by Cathyroberts

3 Replies | Reply | Watch This Discussion Report This | Share this:Fibro Hi there- I have found that the best treatment for fibro is: no caffeine no chocolate- I know, but...

Reply: fibromyalgia

Well sorry to here your trouble and the response from your DOC is typical of mnay well meaning docs but...

Posted by flyingfree2012

Take the Poll

help please i dont know what to do!

1 Reply | Reply | Watch This Discussion Report This | Share this:fibromyalgia Well sorry to here your trouble and the response from your DOC is typical of mnay well meaning docs but...

Reply: Newly Diagnosed

hello welcome to the FM world, just to let you know that never give up believing that we will find a...

Posted by flyingfree2012

1 Reply | Reply | Watch This Discussion Report This | Share this:Newly Diagnosed hello welcome to the FM world, just to let you know that never give up believing that we will find a...

Fibro without Tender Points/trigger points??? Impo...

Hi all! I am knew here & had a quick question or two. I have NOT been dx'd w/ Fibro yet, but I have had a...

Posted by An_243588

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Reply: Please Help

Thank you strengthening for replying back to me. I really do appreciate it very much. Your response made me...

Posted by justluv

2 Replies | Reply | Watch This Discussion Report This | Share this:Please Help Thank you strengthening for replying back to me. I really do appreciate it very much. Your response made me...

Reply: New to the Discussion. Looking to share

I read this and I had to respond -- I was recently diagnosed in October but had been struggling with symptoms...

Posted by irkedout

I read this and I had to respond -- I was recently diagnosed in October but had been struggling with symptoms for more than 4 years by that point. I want to give you hope that things CAN get better. I promise, I identify with where you are now so well. I have learned how to manage my symptoms without any drugs and live a mostly normal life (I went from being in complete agony for 4 years straight with NO RELIEF to maybe 1-2 "bad" days a week -- which aren't even close to what they used to be)

I did it by making myself and my health a priority above everything else. Some of these things will seem so simple or impossible but just entertain the idea and try it for a few months.

1) GET ENOUGH SLEEP. It doesnt matter how - always always always get enough sleep. Do not compromise that.
2) Go to a chiropractor - I see a upper cervical chiropractor and highly recommend that type of chiropractor
3) Adjust your diet and eat frequently -- one of my symptoms is hypoglycemia so I must manage my blood sugar very well in order to have any amount of energy (if you struggle with this I can give you more pointers) -- eat HIGH quality food (do not eat processed food -- that includes breads, frozen, most dairy - and eat every 3-4 hours without fail)
4) Exercise -- I fell in love with zumba, yoga, and pilates (I know this may seem impossible, but take baby steps... you can get there) -- they help to loosen up your tight muscles, relieve stress, help you sleep, and releases your body's natural pain killers. (Remember, for us this is about mind over matter... your body CAN still exercise, but your brain isnt going to want you to at first thanks to the pain and fatigue... dont let it stop you from getting better - you CAN push through it and the benefits of doing so are worth it)
5) Take supplements - I take magnesium, vitamin B, and vitamin D
6) Find a hobby or something that makes you happy and make time for it -- if you let yourself become depressed over the condition your health is in, this only makes the pain worse because you are constantly concentrating on it. MAKE YOURSELF do it, even when you are hurting or are too tired. You CAN do it.
7) Find someone to confide in -- teach them to understand what it feels like so you can talk to them about it. It helps to not have to hide your symptoms.

Now, I just see FMS as my body being high maintenance to feel good... You CAN feel better again -- it will take some time (it took me around 6-8 months) but you CAN get there, and it IS worth it. You will appreciate those days you feel great so much more once you get there.View Thread

Posted by irkedout

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Reply: Pain all the time and no help from doctor

I would suggest finding a doctor that will do their own assessment of you, listen to your concerns, and is very...

Posted by kariUT

I would suggest finding a doctor that will do their own assessment of you, listen to your concerns, and is very hesitant to "drug" you. My current doctor took a while to find, but her view is that the pain I have will never completely go away but that my medication levels, amount of exercise, and stress reduction techniques need to be such that I can be functional. I am on Lyrica, Tramadol, and 600mg Ibuprofen each twice a day—all monitored carefully by my doctor. We have found this mix to keep me pretty stable. If you are not able to function and do what you need to most days, it might be good to talk to your doctor about possibly adjusting your current dose or trying something different.

The highest pain I can handle and still function is a 5 or 6, and most days I live in that range. There are those days when I can barely can keep from screaming—when the pain gets to an 8. I have noticed that sounds seem louder, I become irritable, and I grimace with movement. Moving even though it hurts terribly, distracting myself, etc. work sometimes when the pain is bad, but other times all I can do go back to bed and curl up in a fetal position with a cuddly blanket and hope the pain goes back down soon. I am still trying to follow such days to see what the triggers are. I do know that stress, anxiety, over-exertion, and the cold all make my pain worse. Also, I have found that if there is a different reason for pain (ie. sore tooth, when I had a cyst removed on my back, etc.) my pain gets amplified everywhere.

I had 3 doctors tell me that I it would be better if I quit nursing school, so that I could rest and so that then my symptoms would get better. I told them I had worked too hard to quit, and my current doctor worked with me through school. Once I finished school, the pain got really bad. My doctor then determined that she had been wrong, that school and work are good for me, because I can focus on something other than my pain. I have found this to be true, that if I am home and there is nothing really to do, often the pain will get out of control and I can't do anything anyway. If however, if I invite friends over, go to work, volunteer, etc. the pain comes down to a manageable level. Something to distract the mind has been very helpful for me.

I hope this is a little helpful. This is just what I have found.View Thread

Posted by kariUT

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I know exercise is important...

Exercise (ie. walking around a track, warm water therapy, etc.) completely wears me out. I have to take a couple...

Posted by kariUT

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Reply: Do I have Fibro?

What med diid they put u on? I am staying away from meds for now, too many side effects. I have gone on a...

Posted by julietud

Take the Poll

Do i have fibro?

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Reply: Saw Rheumy again today

I was diagnosed over 2 years ago. I lost my job because of fibro. I am currently on Neurontin, zoloft,...

Posted by cherielee49

1 Reply | Reply | Watch This Discussion Report This | Share this:Saw Rheumy again today I was diagnosed over 2 years ago. I lost my job because of fibro. I am currently on Neurontin, zoloft,...

Fed up with Dr and Family!

Hi all~ new here. I need advice on how to get to a Dr. who will understand what Fibro is and how to treat it....

Posted by TealTulip

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The Colder Weather

The last few years,I seem to feel the cold much,much,more then ever befor.I mean,I use to go out an sit for...

Posted by suesrose

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Reply: Leaving group!!

I am sorry to see you go. I just joined and needed a buddy.

Posted by agingslowly

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Reply: Different Fibro Pain

You know, I have re-read your post several times. I think you need a new doctor. Its ok to ramble on, thats...

Posted by patsyann64

10 Replies | Reply | Watch This Discussion Report This | Share this:Different Fibro Pain You know, I have re-read your post several times. I think you need a new doctor. Its ok to ramble on, thats...

Reply: Hello-Intro

Dear Patsyanne, Thank you for the encouragement. I look forward to talking with others. I hope you have a...

Posted by agingslowly

3 Replies | Reply | Watch This Discussion Report This | Share this:Hello-Intro Dear Patsyanne, Thank you for the encouragement. I look forward to talking with others. I hope you have a...

Reply: Fibromyalgia Causes

http://fibromyalgiacauses.net

My mother had rheumatoid arthritis and fibro. My younger sister has rheumatoid arthritis and fibro and I...

Posted by agingslowly

1 Reply | Reply Report This | Share this:Fibromyalgia Causes My mother had rheumatoid arthritis and fibro. My younger sister has rheumatoid arthritis and fibro and I...

Reply: Does this disease last forever?

When you say therapy what exactly do you mean? Are you meaning PT or medication therapy? As for lasting...

Posted by kylersnanna7

1 Reply | Reply Report This | Share this:Does this disease last forever? When you say therapy what exactly do you mean? Are you meaning PT or medication therapy? As for lasting...

Reply: Sleep aids lyme disease and fibromyalgia

Hi new here & was dx with Fibro in 2000. I was just tested for Lyme 2 days ago but have not gotten the...

Posted by kylersnanna7

Take the Poll

Read my post and tell me what your cause was.

2 Replies | Reply | Watch This Discussion Report This | Share this:Sleep aids lyme disease and fibromyalgia Hi new here & was dx with Fibro in 2000. I was just tested for Lyme 2 days ago but have not gotten the...

Reply: No treatment

Find a doctor who believes in Fibromyalgia and will listen to you. It's not as easy as it sound, but don't...

Posted by hilyer1

3 Replies | Reply | Watch This Discussion Report This | Share this:No treatment Find a doctor who believes in Fibromyalgia and will listen to you. It's not as easy as it sound, but don't...

Reply: Cat

RacerLady--All I can say is hang in there. I've been in pain for so long that I just learned to live with it...

Posted by catpug

RacerLady--All I can say is hang in there. I've been in pain for so long that I just learned to live with it until 2009 when I was injured at my job by a psychotic 300 lb patient. He hit me hard and I injured my back and my neck again (had cervical fusion in 2001). Have been taking Narco since then, just a half because of my job. I switched jobs after coming back from my injury, working as a treatment team nurse (I'm an RN and have been since 1979). I sit at a computer and go to meetings. Use a heating pad all day on my back. The best thing that has happened to me is my neurologist putting me on Provigil. I'm awake in the mornings and don't nap but a couple of times a week compared to napping after work and until I went to bed. And staying on the couch in my pj's all weekend. I'm also on Flexeril at night along with Lyrica, which I just started last night. I take Cymbalta in the morning and Trazadone at night. My cardiac work up is over and I'm letting my primary care physician and his NP treat me. I see the Neurologist every 3 months. I'm on Synthroid and Boniva, along with Aspirin. Also take calcium and a multivitamin. Need to start exercising. I feel better thanI have felt in a long time. Don't get me wrong though. I still hurt especially in the mornings. I'm so stiff I can hardly get out of bed and start the morning off with a hot shower, extra hot on my neck and back. The best hours of my day are mornings. I'm just thankful that I am able to do more than I could a couple of months ago. Hope this helps to talk to someone. I'm 53 and have 3 grown daughters living with me that help and when my husband is home, he helps, too. I'm also 5'3" and have gained 10 pounds in the last month. Medicine? or getting my appetite back? Who knows. I look forward to your response. Sorry it took me so long to respond.View Thread

Posted by catpug

2 Replies | Reply | Watch This Discussion Report This | Share this:Cat RacerLady--All I can say is hang in there. I've been in pain for so long that I just learned to live with it...

Reply: when is enough , enough?

I feel your frustration. I've only been dealing with it for a couple years, but I completely understand....

It only gets the best of me if I let it

Posted by RacerLady503

9 Replies | Reply | Watch This Discussion Report This | Share this:when is enough , enough? I feel your frustration. I've only been dealing with it for a couple years, but I completely understand....

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