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Fibro Friends

A place for those newly diagnosed to exchange symptoms, feelings, things that ... more

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Mother-in-law from hell

I've had fibro for many years, but, I've been dealing with the worst flare uup that I've ever had. I'm so sick...

Posted by mayville

0 Replies | Reply | Watch This Discussion Report This | Share this:Mother-in-law from hell I've had fibro for many years, but, I've been dealing with the worst flare uup that I've ever had. I'm so sick...

Frustration with FMS

I am frustrated with FMS and the pain. I am trying to live with it day by day but I am now at the point...

Posted by sabelle19962002

0 Replies | Reply | Watch This Discussion Report This | Share this:Frustration with FMS I am frustrated with FMS and the pain. I am trying to live with it day by day but I am now at the point...

Fibro and Falling apart

My Fibro started bothering me early 2009 I was diagnosed in 2010. It seems like every since the...

Posted by Frustratedintennessee

2 Replies | Reply | Watch This Discussion Report This | Share this:Fibro and Falling apart My Fibro started bothering me early 2009 I was diagnosed in 2010. It seems like every since the...

fibro +

I had the flu the end of Feb as it went away here cam infection. I called my Dr and they put me...

Posted by Frustratedintennessee

0 Replies | Reply | Watch This Discussion Report This | Share this:fibro + I had the flu the end of Feb as it went away here cam infection. I called my Dr and they put me...

fibro +

I had the flu the end of Feb as it went away here cam infection. I called my Dr and they put me...

Posted by Frustratedintennessee

0 Replies | Reply | Watch This Discussion Report This | Share this:fibro + I had the flu the end of Feb as it went away here cam infection. I called my Dr and they put me...

Limu

I have fibromyalgia amand have lived with the pain for many years. I have taken so many different meds and...

Posted by becka2010

0 Replies | Reply | Watch This Discussion Report This | Share this:Limu I have fibromyalgia amand have lived with the pain for many years. I have taken so many different meds and...

got hypothyroid and think i have fibro

I have had hypothyriodism since 2010 and starting in May i started having all sorts of troubles including...

Posted by caleb28525

1 Reply | Reply | Watch This Discussion Report This | Share this:got hypothyroid and think i have fibro I have had hypothyriodism since 2010 and starting in May i started having all sorts of troubles including...

Diagnosed 15 years ago...

I am at a loss. I have been up and down the scale of painkillers and NOTHING has worked. I am not...

Posted by GeorgieGirl72

1 Reply | Reply | Watch This Discussion Report This | Share this:Diagnosed 15 years ago... I am at a loss. I have been up and down the scale of painkillers and NOTHING has worked. I am not...

Diagnosed with fibro but my symptoms don't seem to...

I was diagnosed with fibro several years ago. First the top of my head and roof of my mouth started...

Posted by goodfrybread

I was diagnosed with fibro several years ago. First the top of my head and roof of my mouth started tightening up, then my head was getting hard to turn from side to side. Then my upper back started to spasm up so tight it was choking the blood supply to my head and face and all I could do was flop on my stomach and try to relax so the spasm would stop. No amount of stretching would release my upper back. The toe nails on my big toes were turning bluish black. After 2 years of that I finally pulled my head forward and down as hard as I could to try to stretch the upper spine and I felt my upper spine finally pulling apart like it had been gummed up all around it. It came loose enough to stop the spasms and my toe nails cleared right up. My upper back spasms were cutting my blood supplies off. I'm still really tight in my upper spine and all around my wing bones. The connective tissue all over my back top and bottom, is so tight I can't tolerate laying on my back. Now my lower spine is all tightened up between L5 and sacrum. The left side right next to my spine is tight from top to bottom and into glutes. When I drove I had to hold myself up when I went around corners because it seemed there was no base to my butt to keep me from going sideways. Finally went to phys therapy and in trying to loosen the left side of sacrem the guy actually loosened something in my butt so when I turned a corner my butt was able to hold me up instead of using my hand. This is so bizarre! I'm going to a girl who does skin rolling so I can try to sleep on my back. She said I was tight and there were 4 layers of muscle to go thru. I'm exercising trying to strengthen my spine and stretching my shoulder blades. Making small headway. Can lay on my back on the floor now but not in a bed. Down to 3 1/2" of memory foam over a bedboard and is still hard to lay on my back. Was told by girl at massage that some of the muscles around my shoulder blades are contracted and don't release. She's trying to strech them. Is this fibromyalgia? I'm on meds for sleep and depression. Anyone ever heard of these symtoms?View Thread

Posted by goodfrybread

0 Replies | Reply | Watch This Discussion Report This | Share this:Diagnosed with fibro but my symptoms don't seem to fit with others with fibro I was diagnosed with fibro several years ago. First the top of my head and roof of my mouth started...

Diagnosed with fibro but my symptoms don't seem to...

I was diagnosed with fibro several years ago. First the top of my head and roof of my mouth started...

Posted by goodfrybread

Fibro Flare Ups

Hi, I have been diagnosed with fibromyalgia for two years. I have recently moved back to Baton Rouge, LA and...

Posted by samcajun

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibro Flare Ups Hi, I have been diagnosed with fibromyalgia for two years. I have recently moved back to Baton Rouge, LA and...

mild

can you have a mild case of fibromyalgia .

Posted by fliplid

2 Replies | Reply | Watch This Discussion Report This | Share this:mild can you have a mild case of fibromyalgia .

Fibromyalgia

Hi, my name is Leanne. I was diagnosed with Fibromyalgia twenty years ago. I am really interested to know if...

Posted by Leelee51

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibromyalgia Hi, my name is Leanne. I was diagnosed with Fibromyalgia twenty years ago. I am really interested to know if...

Fibromyalgia finding a dr

I live in Marinette WI and have Fibromyalgia. My problem right now is that I can not find a doctor that will...

Posted by Lucielu

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibromyalgia finding a dr I live in Marinette WI and have Fibromyalgia. My problem right now is that I can not find a doctor that will...

Learning how to live/deal w/ fibro.

Hello. I have a new diagnosis of fibromyalgia. When I was first diagnosed, it threw me into a depression. Before...

Posted by KDlite

1 Reply | Reply | Watch This Discussion Report This | Share this:Learning how to live/deal w/ fibro. Hello. I have a new diagnosis of fibromyalgia. When I was first diagnosed, it threw me into a depression. Before...

Help...Please Idon't want to be crazy

I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Posted by debbieann57

1 Reply | Reply | Watch This Discussion Report This | Share this:Help...Please Idon't want to be crazy I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Help...Please Idon't want to be crazy

I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Posted by debbieann57

0 Replies | Reply | Watch This Discussion Report This | Share this:Help...Please Idon't want to be crazy I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Help...Please Idon't want to be crazy

I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Posted by debbieann57

Help...Please Idon't want to be crazy

I have had Fibromyalgia for 31 years, now all of a sudden everything is falling apart, 3 months ago I was...

Posted by debbieann57

Question on Fibro

I do not have fibro, but very severe atherosclerosis. Reading the description of Fibromyalgia, it...

Posted by DeadManWalking57

I do not have fibro, but very severe atherosclerosis.

Reading the description of Fibromyalgia, it sounds somewhat like a vascular condition in which the capillaries of the muscles can not get enough oxygen, on an ongoing basis, so they hurt.

I must eat a very low fat diet, or it will bring on strong chest pain in 4 to 24 hours. So of course, I don't do that to myself. I found out the hard way in having something I thought would be ok, once a year for four years. Four for four tells me it will happen again, so I don't do that.

I had bypass surgery, but was left with another dozen inoperable blockages.

My question is as to whether any people with fibro have tried an extremely low fat diet such as I do, plus it is very high in anti-oxidants, green tea and pistachios, and pomegranate juice.

Blockages worsen when LDL cholesterol is oxidized, and taken up in immune cells that have tried to fix artery damage. In the case of fibro, this could be in muscle capillaries. High and frequent anti-oxidants in the diet would reduce this, or possibly eliminate it if LDL is low.

Green tea and pistachios, and exercise, help stimulate EPCs, stem cells for artery repair. This prevents new blockages.

Pomegranate is 1) a strong anti-oxidant; 2) an enhancer of function of good cholesterol to remove excess LDL, as does exercise; and 3) it causes blockages to slowly release oxidized LDL, shrinking them and improving blood flow and delivery of oxygen to downstream tissue.

The first year after bypass surgery, I had sharp point like pains in my heart 8 to 10 times a day or so, as if spasms in capillaries caused bits of muscle to be short of oxygen for 2-10 seconds or so. But with time, and my diet and exercise habits, these became fewer and fewer. Now they are rare.

I wonder if anyone has tried such a diet for some months to see if they find improvement, or if any might be willing to stick this out for a year or more. I have been eating this way for 6 and 1/2 years, and I am mostly pain and angina free.

Low stress is also important, since that causes increases in blood pressure that can damage circulation, which sets up new blockage sites.

I do forget lots of stuff, so that might be where I have my new mini-blockages. Bu my heart is doing ok, and no fibro.View Thread

Posted by DeadManWalking57

0 Replies | Reply | Watch This Discussion Report This | Share this:Question on Fibro I do not have fibro, but very severe atherosclerosis. Reading the description of Fibromyalgia, it...

IC and, Fibro

Is anyone else having bladder issues with their Fibro? Its the worst part of this condition.

Posted by marysxx

2 Replies | Reply | Watch This Discussion Report This | Share this:IC and, Fibro Is anyone else having bladder issues with their Fibro? Its the worst part of this condition.

Driving and fibro pain

I was diagnosed w/fibro about 6 months ago and could use some advice. I tried Cymbalta, but had too many side...

Posted by Labbimom

3 Replies | Reply | Watch This Discussion Report This | Share this:Driving and fibro pain I was diagnosed w/fibro about 6 months ago and could use some advice. I tried Cymbalta, but had too many side...

CAN YOU SAY FLARE???

hello friends, just wondering if anyone else is at the "about to scream" stage? The past 2 weeks have been...

Posted by sugardoddle

0 Replies | Reply | Watch This Discussion Report This | Share this:CAN YOU SAY FLARE??? hello friends, just wondering if anyone else is at the "about to scream" stage? The past 2 weeks have been...

Fibro

Yes Fibro is no fun to have.. I have had it for 4 years and I think it gets worse everyday.. I work at the...

Posted by IsabelsNonni

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibro Yes Fibro is no fun to have.. I have had it for 4 years and I think it gets worse everyday.. I work at the...

Fibro

Yes Fibro is no fun to have.. I have had it for 4 years and I think it gets worse everyday.. I work at the...

Posted by IsabelsNonni

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibro Yes Fibro is no fun to have.. I have had it for 4 years and I think it gets worse everyday.. I work at the...

fibro flare up is taking its toll on me...

going crazy...just not sure how to handle all this pain..i feel that my life will never be the same...i...

Posted by whisper101

1 Reply | Reply | Watch This Discussion Report This | Share this:fibro flare up is taking its toll on me... going crazy...just not sure how to handle all this pain..i feel that my life will never be the same...i...

A morning filled w| tears;

& Feeling sorry for myself. This is starting to become the norm for me, unfortunately. I'm a caregiver...

Posted by PainMemoirs

& Feeling sorry for myself. This is starting to become the norm for me, unfortunately. I'm a caregiver by nature, oldest sibling & always try to be a good friend &|or mate. Always wanna lend a helping ear or hand if I can but now in my 24th yr of life, I feel helpless. It started in my pre-teens when I was experiencing severe back pains that I was told was normal, A few yrs later in my early h.s years, I was diagnosed w| scoliosis & a herniated disc which was all accompanied by insomnia. As a h.s athlete & just becoming comfortable in owning who I am & coming out as a lesbian at a very young age it was difficult to accept. Furthermore, it made me wonder if I was being punished for the way I was born. After a rough patch & rebelling I was kicked off my step-dads health insurance once I turned 18. I kinda went off on my own, trying to re-build my pieces to life but soon after started really getting randomly ill.Severely ill & no DR's seemed to have a clue what was wrong. Fast forward a few yrs later. I'd been doing overnight stocking to make ends meat for over half a yr before my injuries started to worsen. By the beginning of this yr getting up out of my bed every night was becoming a challenge, I was noticing how much my body hurt, how my moods were so off, not to mention I've lost about 60 lbs in the past 2 yrs or so. Finally, my neurosurgeon suggested I see a rheumatologist because he felt my back wasnt the only issue & the action of surgery should only be taken once I figure out what else is wrong w| me. He was the first DR. I've ever trusted at that moment. I had already done much research so after being confirmed w| fibromyalgia, I am now at home for about the third month w| absolutely no income, very little support or what even seems to be understanding from family & friends. I hate to feel like I'm complaining so when asked how I feel I usually say okay but only because when I say otherwise I always get told "you look great" or "its all in your head, do this, etc.." Today, I woke up feeling every symptom you can imagine & as I read these boards w| support, I didnt feel so alone. I have so many years ahead of me, I just want to be somewhat comfortable & happy. This cant be life.View Thread

Posted by PainMemoirs

0 Replies | Reply | Watch This Discussion Report This | Share this:A morning filled w| tears; & Feeling sorry for myself. This is starting to become the norm for me, unfortunately. I'm a caregiver...

Diagnosed in March 2012...and I feel like I'm goin...

Hi there, I was recently diagnosed and have been having some issues coping with my symptoms as well as...

Posted by misstmreese

Hi there, I was recently diagnosed and have been having some issues coping with my symptoms as well as wrapping my mind around the fact that I am going to have to deal with these issues for the rest of my life. I have dealt with the majority of these symptoms for most of my life as I have had chronic pain and fatigue issues since a teen (I am only 32) and in the beginning thought that it wouldn't been an issue, in fact I felt such relief at having a diagnosis because I then knew that it wasn't all in my head and I wasn't imagining the pain or just lazy like a lot of people in my life said or assumed...over the past few weeks I have had an onset of severe pain like I have not experienced before that lasted longer than before and it wiped me out both physically and emotionally. I am a single mom living an hour and a half away from my family and friends and any support and it is making me see that I need to make some serious changes and get myself closer to some support. Not a lot of people in my life know that I was diagnosed with fibromyalgia because I did not want them to view me differently and I am now questioning whether or not I should start being more open with people about it. My boss knows that I have it as well as my staff as it does effect my ability to function at work, fibro-fog and I go way back not to mention the numerous trips to see my rhuemotologist. While most days have been good, lately it seems the bad ones have been coming more and more often and though I pride myself in working I am starting to question whether or not I can continue doing so. I am very frustrated which is making me very emotional haha.
Now that I have gotten my negatives out of my head, for the positives. My daughter, who is only 6 years old, is absolutely amazing, she doesn't understand what I am going through but she knows that when I am having a bad dayI need quiet and rest and she lets me do so. My boyfriend is very accomodating and understanding and patient, he has been researching what we, not just me but we, can do to help my situation and is even willing to do yoga with me and modify his diet. I currently live 2 hours away from him and we are discussing me moving closer so he can help me more, he wants to turn our room into a sanctuary for me, my sister in-law will take my daughter any time I need her to and is willing to help in anyway she can including driving all the way down here to clean and do our laundry. My boss is a saint, she has let me miss so much work for the numerous tests and appointments and has not docked my pay or made me use vacation time and I had only had this job for 2 months when I was diagnosed.

If anyone has any suggestions for me, they are greatly appreciated. I don't want to sound like a whiner but I am at a loss. I know that this will take time manage and patience has never been a strong point for me!

Thank you for letting me get that all off my chest!View Thread

Posted by misstmreese

2 Replies | Reply | Watch This Discussion Report This | Share this:Diagnosed in March 2012...and I feel like I'm goin crazy :0) Hi there, I was recently diagnosed and have been having some issues coping with my symptoms as well as...

Fibro and Hypoglycemai

Anyone have fibromyalgia that is also have problems with hypoglycemia?

Posted by harrisranch2

0 Replies | Reply | Watch This Discussion Report This | Share this:Fibro and Hypoglycemai Anyone have fibromyalgia that is also have problems with hypoglycemia?

looking for feedback

I am a first time entry, please read. I've become convinced I have fibro. I wouldn't know why I am hurting if it...

Posted by maf63

3 Replies | Reply | Watch This Discussion Report This | Share this:looking for feedback I am a first time entry, please read. I've become convinced I have fibro. I wouldn't know why I am hurting if it...

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