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limpylizard

Joined: 04/11/2012
My Story:
I have had Fibro for over 20 years along with several other chronic pain conditions, Back when I first started having symptoms it seemed no one knew anything about FM, so like so many other FM sufferers I just accepted the pain as normal. About 15 years ago I read an article about chronic pain and it was if someone was wrighting about me. I started reading and researching everything I could get my hands on. I became an advocate of one. I talked to Dr's, Nurses and really anyone who would listen! Eventually [not that I made any impact] I noticed more and more people in the medical field were starting to recognize that Fibromyalgia might just might be real, because most Dr's were reluctant to treat something they couldn't see under a microcope or on an x-ray. And more often than not would label you as Neurotic or a Hypochondriac. Over the years I have tried almost anything and everything to help me live a more normal life, Normal? What is normal anyway? Those of us who have FM may not fit the cookie cutter mold of the general populus but we are all a Different Normal. OOPS! there you see I have boarded my soap box lol. Back to the point, I struggled through every day, I worked 40 sometimes more hours a week, I raised a family, and had my up's and downs like everyone else. I never considered myself different. As the years wore on and my family grew up, so did the limitations of living with FM, and finaly just surviving with FM. Embarrasment, guilt, and sadness were my closest friends, the more I hurt the harder I pushed as if somehow I had a character flaw instead of a chronic illness. Over the last few years I have come to realize that there is nothing to be embarrased or guilty about, I am no different than someone with anyother life altering illness..... the one thing I think FM has taught me is Patience. Patience with myself! I am a much kinder person to me, I do not let guilt rule my life, I have reinvented my life to where I can accept the things I can not change and change the things I can not accept. If I am having a bad day, which is how I decribe my life good days-bad days lol. I give myself permission to enjoy what I can, whether it is sitting at my dining room table with a cup of coffee watching the birds at my feeders or reading a good book or simply making a list of good day things I would like to do, and to the mortification of many a visitor or delivery person, I can stay in my PJ's all day. I try to stay up beat but some days it seems impossible, so I take a nap, I try to keep my sence of humor intact but some days it becomes a bit frayed. Sometimes I allow my self to wish, and one I find myself wishing for is just one day without pain, but most of all if I were granted just one wish, I would wish to hug all the kindred spirits out there who are struggling right along with me. So till there is some great new treatment or cure we will just keep on keeping on supporting one another.

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Reply: fibro-melt-down... possible?
You are definately not alone, altho I know how that feeling goes, I am glad to hear you...More
Limpylizard
Posted by limpylizard
Reply: looking for feedback
Hello, There are many reasons for chest pain, but with FM it seems to be a broader pain...More
Posted by limpylizard
Reply: fibro-melt-down... possible?
Hi! I am new to this site also, but have done that and been there too, I think your...More
Posted by limpylizard
Reply: New here
Hi Jennifer, I am also new to this site, and a little nervous about complaining to much...More
Posted by limpylizard