You are definately not alone, altho I know how that feeling goes, I am glad to hear you are going to stop working, I know the stress is not good, and glad the hot showers and baths helped, I find on those long nights getting in my recliner, which may I add has heat and a vibrator (aaahhhh), with my latest magazine or book to read, a glass of tea and to the utter dismay of my wasteline a peanut-butter sandwitch in one hand and the remote in the other sure makes the night seem less endless lol ! I am also getting ready to start on Two Baby afgans which should use up some night time, If I may brag a bit I just became the Great Gramma to a set of beautiful twin girls. I hope when you do get to retire you will notice a change for the better in your stress/pain level. Will be think about you and glad to hear from you.View Thread
Hello, There are many reasons for chest pain, but with FM it seems to be a broader pain than just pain over or around the heart, and muka57 is absolutely right about the trigger points, check it out and have someone help you test the different trigger points, be sure to mark them down, 11 of the 18 different spots is a very good indicator of FB, it seems like people with FM almost have to diagnose them selfs. It was helpful for me to keep a pain diary, and to list what you were doing, what brought on the pain ie: working resting and such, decribe the pain with words such as dull, sharp, burning, stabbing and so on. include what made it worse and what gave you relief. Do this for about a month so your Dr can see exactly what is going on. I have had Fibro for 20 years and have found that most GP's don't seem to be all that versed on FM. If you can, finding a good pain managment Dr is to me the most important thing. You need one who is willing to LISTEN and not rattle of the standard mumbo-jumbo, You are the expert in this situation because it is your body. And most definately it is cyclitic, in my own case I refer to my days as good days and bad days. I have constant pain all over, but it also can be in one quadrant of the body and not another, but generaly I have more pain in my upper back across my sholders, it is a burning pain and at times it is almost impossible for me to do the simplest of things. What I have found that helps me is a hot shower, and some days I will sit in the shower 3 or 4 times. At the present time I am on 3 medications for the FM, a pain pill, Neurontin and Cymbalta, this has helped a lot, but am now at the point I feel I need a muscle relaxor too, I have gone through 3 pain managment Dr's and the last one and I clicked, he took a lot of time listening to me and giving me options, so I didn't start out on all 3 meds at once. He also told me I needed to be kinder to myself, I always tried to push through the pain and felt guilty and embarrased if I didn't, but you know since I have started being my own best friend lol, I feel better, if I am having one of my bad days I just sit and do something relaxing, looking in the garden books and planning my flowerbeds and garden is one of my favorite things, and if I don't feel like getting out of my PJ's I don't.... You did not say if you worked or not so staying in your PJ's may not be an option dress code and all lol. I also use a lot of humor to help. It is very infuriating to be in pain and not be able to get relief, I read anything and everything about Fibro so as to try to be as knowledable as possible,and I can be very pushy when I think something will work for me, but my Dr is willing to give it a try, So I can relate to what you are saying being a kindred soul and all lol, I don't intend to sound like an expert on anyones pain/illness [because I am not> but knowledge is power. I am always sorry to hear of someone suffering through any chronic illness and I wish you the best in finding relief, hope this has helped in some small way. Good Luck and please let us know how it is going for you.View Thread
Hi! I am new to this site also, but have done that and been there too, I think your crying jag (as I call them) is a combination of the stress and the overwhelming diagnosis of FM! There is a relief felt at just the knowing something is not all in your head but also a fear of what do I do now. I have had FM for over 20 years now and I still jag out everyonce in a while, but a good cry is healthy. and the 'your brain not working' is fibro fog" I also get that, I can't remember words I want to use? I am at an age, 62, that I just blame it on senior moments. It took me a long time but I decided to chuck the 9-5 and take early retirement, on my good days I love to get out in the garden, weather permiting, and on my bad days I sit and watch my feathered friends outside, I am also an avid birder. I also do not sleep? it is after midnight and still no sign of the sandman on the horizon? but since I am retired it does not make much difference, I usualy get 5-6 hr's sleep a night. Keeping AS active as possible helps. I hate that advice, my Dr's favorite lecture LOL, especially on one of my bad days when all I want to do is find a comfy spot and sit! Some of the things I find helpfull are Hot Showers, catching up on all the reading I didn't find the time for, and as I mentioned birding and snapping pictures of them. I do hope you find time for yourself to relax and enjoy life. Best of luckView Thread
Hi Jennifer, I am also new to this site, and a little nervous about complaining to much also. I am way past 28 but was there once, I am always sorry to hear of someone else with fibro, I have dealt with this issue for over 20 years now and I to get angry about the many limitations FM has had on my life style. I finaly, about 3 years ago, was hooked up with a pain managment Dr, well actualy I changed Dr's in the same practice, my first Dr and I were not at all compatiable, but the second was a blessing. He has worked with me and as of now am on Cymbalta Nurotin and Hydrocodon 10/325, it has helped to the point that I am able to participate in my life again. I am an avid gardner and love nature. I think sadness is always there just under the surface for all who have to re-adjust their lives. As for guilt please just open your inner window and toss it out! I have come to the conclusion that if people can not accept who you ARE instead of making you feel guilty for who you are not they don't deserve a place in my life or yours!!!! It took me quite a while to come to that point, and I believe in the long run it caused me alot more pain. I have also been diagnosed with Polymyalgie? I have not done much research on that, but just figure FM is enough of a pain in the keester (pun intended) to deal with. I have found humor helps alot, especially when the Fibro is kicking my hinney, I have a good support system even though they don't entirely understand. I know it is hard especially with 3 children, but please don't think of FM as a life sentence, instead as a bump in the road, medical research has come a long way and made many strides since I had my inital diagnosis. For a long time Physicians would label you neurotic or a hypocondriach if you complained of something they couldn't put their finger on or didn't show up in a x-ray, but now if you have a good Dr they are more accepting of the fact that not everything can be seen through a microcope or on an x-ray. If you would like someone to complain to, a sholder to cry on or just to vent I would be honored to take on that job, I have big ears and can put them to good use. I sincerely wish you a wonderful day X365.View Thread
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