I agree with you, Laura, one of my greatest fears was having to deal with more pain....but, I'm coping...not very well, mind you, but I'm coping...having these headaches, muscle aches, being exhausted all the time, depressed all the time....it is awful and a hard thing to deal with, too...I want to celebrate Christmas like I used to do, but right now, it is beyond me to do that kind of thing...I didn't decorate or anything...takes too much energy...I did my Christmas shopping online and had things shipped to me...sure saves me a lot of wear and tear going to the stores and fighting the crowds... I'm doing good to just get out of my chair and move around the house.....what hurts the most is I feel that folks don't understand and think I'm just "putting on" as the old saying goes....but, I can honestly say that these pains, etc are about to get me down...no matter what anybody else things...good night and gentle hugs to everyone....
Thanks, you will probably hear more from me....I have loads of stuff to get off my chest...hahaha...being stressed and upset like I am today is certainly not helping at all...when I do get upset, stressed, angry, etc., it takes me a few days to recover....I'm usually wiped out till then...View Thread
Man, have I ever realized that once an FMer, always a FMer....I realize more and more about the pain and have been terrified of falling and breaking something or else just injuring myself...I felt like that it would hurt as much or more than the pain I have now...now, I know....I caught my toe in an extension cord earlier this week and fell, hitting on both knees and hands...bruises everywhere, skinned knee, but the one I'm concerned about is the knee replacement knee...guess I'm afraid something will mess up with that....and the old adage, it will hurt worse on the 3rd day...that's absolutely the truth.....I'm doing better, thank God, but still cripping around trying to not hit my knees on anything...of course, depression is a constant companion...because of the ear problem, roaring and buzzing in head, I've sort of withdrawn...why go out anywhere when I can't hear and am so dizzy...this does not make for a very happy person, right??? I've never been a happy go-lucky person...all my feelings show on my face and I just can't fake it...but I sure would love to have a little joy now and then...anyway, thanks for the kind words....View Thread
It has been a while since I posted to this community...in answer to lots of questions, my son and daughter are doing better...my daughter had kind of a scare here while back, because during a checkup, the doc found "abnormal cells"...further testing ruled out any cancer, thank God !!! My son still has his skin cancer as the doctor told us it couldn't be cured, just controlled...so, he has been doing the light treatments...He and I have moved from south Arkansas to North Arkansas to be near my youngest daughter....since my last posting, my oldest daughter has been diagnosed with several things, including cardiomyopathy...things that affect the heart...she is now taking about 13 kinds of medication a day...she has applied for SS disability, has been denied a few times, but is still trying....say a prayer for her so she can get her disability..once she does, she and her husband will move closer to the rest of us... My problems are still with me, including another problem that started a couple of months ago...my head began roaring and buzzing terribly and my balance is really messed up....doc ordered a CT Scan...found some problems that that need to be addressed, so I'm seeing a surgeon in January 2013 to have that seen to...of course, I still have all my assorted aches and pains, fatigue, depression, etc...I'm still taking the Juice Plus+...as I said before in a previous post, that helps me a lot...still taking Wellbutrin for depression, Xanax for anxiety attacks, plus all the others...now, I am going to therapy to see if talking to someone will help me be less stressed...will let you know how that goes...View Thread
Hi, everyone, I know I'm not alone, but this stuff sure hurts and it is nice to be able to tell somebody how I feel without them thinking that it is all in my head....Lord knows I'd never wish this on anybody, even someone I dislike..
Today was particularly stressful for me and needless to say, I have had lots of pain and fatigue...some days I am so tired that I can hardly function..
Anyway, it is certainly nice to hear from you all and it would be great to keep in touch..
Thanks for the welcome...I haven't heard about Savella...just what is that supposed to do for me??? If it treats me like Cymbalta did, I want no part of it ! ! !
You are so right about the people who don't have it who don't understand...I myself was one of them...my older sister was diagnosed with it more than 30 years ago when it was called something else...at that time, I sort of felt she might be "putting on" a little bit...around here, that means she acted like she was hurting, etc, but really wasn't to get attention...since I was diagnosed, I went to her and apologized for even THINKING! she might be acting that way to get attention, much less saying it out loud...poor girl has suffered so much with this stuff for so long...I understand now why when she retired, she just withdrew from the world...but of course, that was the wrong thing for her to do...now she has early onset Alzheimer's, so I suppose deep down, I worry about that happening to me, too....
I know that it helps to discuss this with folks who know and understand, but I sure hate that anybody else is going through what I am....I'm thankful that I have raised my kids and don't have to deal with small ones on a daily basis...my grandchildren are adults now, but I have 3 small great grandchildren, the oldest almost 8 years old, and he lives up the road from me.....so, we have done a lot of baby sitting and I know that wears and tears on a person with FM...View Thread
Thanks so much for the warm welcome and the notes on how to help myself.
My children are doing better, but my son has ongoing therapy until further notice...my daughter has recovered from the chemo and radiation, but both of them left other problems in her body, so she is dealing the best way she knows how...she lives approximately 4 hours from me, so it is a hard driving trip when we go to see her and her family...
As for helping myself, I get a massage when I can afford it...living on a fixed income doesn't give too much leeway when it comes to finances...I try pain pills but they only make me drowsy or dizzy and don't kill all the pain...at this point, I worry about getting addicted...
It has been so hot here the last few months to walk outside, but now that it is cooling down some, I plan to get out and walk...slowly, at first, though..lol
I do stretches especially for my neck and shoulders that help some and my legs and feet feel better after some stretching..
I take Juice Plus to help me...the fruits and veggies both...they help in ways that I can't explain...but I know when I get without for about a week, it begins to get where I can't walk without a cane, get up out of chairs or up and down stairs without help..
As for the questions about whether I am in Alabama, no, I'm not...I live in South Arkansas not far from the Louisiana border...born and raised here, so I can claim to be a "dixiegal", too....hahaha
I suppose one of the things that bothers me the most is that I can no longer play the piano without lots of pain...I was church pianist for many years and still feel that is a ministry for me, so it really hurts when I can't do that any more...sad to say, I haven't even tried to play here at home any since the last big flareup where I had immense pain...that time, I had physical therapy, but that gets so expensive...Medicare paid their part, but I was still left owing approximately $600.00...now that really hurts ! ! ! ! ! !
Again,thanks for the warm welcome and hope to get to know you all better and better ! ! ! ! !View Thread