Hi Donna, You are not alone. I too, dread when it's time to wash my hair. My scalp is sensitive too & it hurts the arms & shoulders so much that I have to just take my time with it & keep resting my arms. I can no longer wash it at night because I am just to tired & just want to relax after Ive showered, not put in another hour & a half of work drying my hair. My hair is very long & just a pain in the butt but really not much easier when kept shorter anyway. Ive even stopped using hairspray & styling products so I can get away with not washing it for 5 days. I keep threatening to shave it all off one of these days! Take Care, DeniseView Thread
I am totally in in the same place as you, Chrichie. I currently see a neurologist who says he can no longer help-mind you, he refuses to put me on any pain medication, but have tried all the different meds for fibro and all they do is make me a zombie. I know tramadol helps me because i have used it before. I have become so used to the pain that only take it when my pain is at a 10 & I have somewhere to be & have to actually function. It helps relieve the pain so I can get through the day. Most days I do not function at all. Looking for a new doc is such a daunting task-I live in a big city with excellent hospitals but they too refuse to treat fibro in the long term-even those who say they are fibro" specialist". As soon as meds no longer help you they give up on you. That has been my experience so now that I need to find a doc, I am discouraged to even start looking. Everyday I spend about an hour going through provider searches on my insurance site and I just become upset & stressed out & give up hope. After dealing with this monster of an illness for 10 years, I know what I need at this point. I am no longer working & am fighting for disability-I rarely partake in family life-and there are weeks that I do not even leave the house once due to the pain & fatigue. My quality of life is a zero-I live with my boyfriend & dont know how much more he can take. I believe that if a doc would just put me on a pain med I would be able to work again & actually be a part of the human race. After looking for months, I have finally picked a psychologist to talk to about everything & I will call them tomorrow-maybe that is a start. Im sorry this is so long- I will shut up & hope you post back! I am so relieved to hear that someome else is going through the same thing & I am not alone here. I do hope you find someone to help you too. DeniseView Thread
Hi Resttheweary.........Please hang in there & call your doctor right away. A change in meds can give you your hope back. If you are not talking to someone about your feelings, please make an appointment to do so-Im glad you are coming here for support, but you need more. I understand what you are going through-Im in a terrible place myself, but I know I have to keep-keepin' on! Please realize that you have a purpose-your children need you-your husband needs you & God does have a plan for your life!
I pray that you will be well.............DeniseView Thread
Hi Nancy......Thanks for noticing that I have not been around much. I feel pretty rotten both physically & mentally. I feel like the fibro has won over m life & the exhaustion is just too great for me to fight. I dont want to be a negative poster & bring others down, so Ive been staying away. Plus, both of my parents are ill so Ive been helping out where that is concerned. This is my 1st 4th, in 15 years, without my dogfriend....she HATED the fireworks too! They completely agitated her so her & I would "bunker" down in the closet with my pillow & her favorite blanket & toy squirrel!!! I miss her. Hugs, DeniseView Thread
I hope everyone here had a wonderful 4th of July spent with family & friends. I enjoyed the day, but as it always is anytime I go anywhere, I am completely pooped out by the time I get home! I know you all can relate.
God Bles America and God Bless each & everyone of you.........