Thank you all for the warm welcome back! I'm adding individual replies here and I'll check in on today's post
Linda R. - Thanks and I'm trying to remember to pace! I'm to the point where it's difficult to find the courses I need. The diploma program I'm in only offers some courses online once every two or three years. This semester, there was only one library course offered online that I hadn't already taken. Talk about frustrating! I am running into problems getting my non-library courses from other departments for the same reason.
Bette - No, we can't install a shower seat. Ours is way too small. DH bought me a new shower head with a hose a few weeks ago. When I take a shower, I have to use shampoo bottles and the shelves to hold it in the right position for me (if it's up where it's supposed to be, the water hits the top of the back of my head). It makes rinsing off much easier and I can adjust the settings so the spray doesn't hurt my skin much. I've zeroed in on what part of taking a shower hurts the most - it's drying off afterwards. I'm learning to dry off differently to lessen the pain, but it still hurts quite a bit and leaves my skin extremely sensitive.
Cory - My disability coordinator helped me write a letter to the department head. We are asking for other options for the work site visits and to do my practicum in the summer. The letter should arrive by this afternoon, but it could go to a panel or as high as the dean. We'll see. I explained to my coordinator all the things I've done to keep myself functioning, so they'll know I really am doing the best I can to continue.
I haven't been on in way too long. I get wrapped up in whatever's going on and lose track of pretty much anything not directly related to whatever I'm doing. Most of the time it's school or family issues...which are both hard to manage some months.
My two boys are now 13 and 16, and DS13 is almost as tall as I am (DS16 was my height at about 11). We are well into the defiant teenage years, but the good moments are worth the frustration. Both of them have a lot in common with me. Unfortunately, these are usually the things that end up starting the most arguments or miscommunications. DS13 and I both love to cook (and hate the cleanup afterwards lol) and DS16 and I cause ourselves a lot of heartache by taking on what other people are feeling and trying to solve all their problems. It took until I was in therapy a few years ago before I recognized how destructive this can be for me. Recognizing that someone is in pain and letting them know I am there for whatever help they may want are good things - but I have to stop myself before I really feel their pain. (Incidentally, this is why I chose to not pursue a social work degree after my first semester - I would not be able to leave my 'work' at 'work.')
I am nearly done with my actual (non-specialized) library program courses. The only problem is two of the most important classes are ones that I cannot take as they are designed. One is a work site visit course that requires out of town driving each week (new site each week) and one overnight trip, and the other is a 70 hour practicum. I stopped driving out of town last summer and DH drives me to work almost every day. The practicum is set up to be done in less than a month. Both courses are only offered in the winter, and a few days a week I can barely manage my 1 hour a day job. I have an appointment with my disability coordinator in two hours to write a letter to the department head asking if there are any accommodations that can be made. If they can't accommodate me, I really don't know what I'll do. As it is, I am down to sponge baths 3 or 4 days a week because of the amount of time it takes to recover from showering, and I have to be home by 4 everyday because my pain levels are so high by the afternoon. I'm feeling more than a little lost and wondering if I should be looking for a job I can do from home.
Now that I'm done venting, I've got to run. I made myself a schedule for today so I could fit in everything I have to do before I leave and I'm already running late lol I've glanced through a few days' worth of posts and I'm happy to see some familiar faces I'll try to catch up again soon.
I hope those of you who haven't voted yet are able to do so today! I voted a week or two ago
I had a fairly aggravating start to my morning today. DH came to bed (he works nights) and said it wasn't quite 5:30, so I had lots of time to sleep before I had to get up...and then proceeded to talk to me for the next five minutes lol Needless to say, I didn't get back to sleep
The kids (who were supposed to be getting ready for school) started arguing in the kitchen about which one got which days off of school, so I went online to find their school calendars to end their argument. That's when I found out that DS12 had parent-teacher conferences this afternoon...and he has a 5 1/2 day weekend due to getting out at noon tomorrow. I knew school was out Friday and Monday, but this was the first I had heard about the conferences. I am so glad he has such good secretaries at his school. I called to ask about the conferences and the secretary sent a message out to all of his teachers asking for a phone conference. One of his teachers has already called
MiMi - I hope your body (and furbabies) adjust to the time change soon. Mine seemed to have adjusted just fine until I woke up at around 5 this morning
Sharon - I hope being in the cold doesn't set your health back and that you will be able to keep warm Do you have blankets or hot water bottles you can take?
Jan - I can definitely empathize on it sometimes being a blessing when you can't remember things *hugs* I hope you'll be able to get some rest today.
Nancy B. - *hugs* It is absolutely ridiculous how some things are managed. I hope things were straightened out and those who were supposed to go to your building for care have been able to get treatment. Slow down and remind yourself that you have done what you can for those in need.
Teelady - I know of several people who voted early this year, which will undoubtedly help with the crowding (and people who leave because they don't want to wait in line). I think you're right about it being much busier tonight.
I need to get showered, switch laundry out and attempt to get some homework done. I have a feeling it'll be hard to get much done over the next week since I'll have at least one kid home the whole time
I've been very busy with school (and life in general), but I'm trying to stop by to catch up on reading what everyone is doing. School is going ok, but not as well as I would like it to be. My FM symptoms have been acting up and I've had to complete assignments when I haven't been able to think clearly. I put the wrong files into an assignment folder and ended up with 63%. The instructor has let me submit a corrected file, but I won't get full marks for what I've turned in. Oh well...at least it'll be better than 63%!
I've been having weird flares for the past month or so. I'm either in a lot of pain or my brain decides to check out. Not being able to think clearly, speak, or understand what people say scares me. It used to only happen every once in a great while and only in the late evening. It is starting earlier and happening more frequently. It happened for about a week straight and was starting in the early afternoon. It was to the point where I refused to drive, so my husband had to get up and take me.
I'm on a waiting list to get in with a doctor who has at least some patients who have FM. I was told it would probably be a month or two before I hear anything.
My DH & I got new phones a couple of weeks ago, so I've been experimenting with apps. (I went from a *very* basic text/cell phone to an iphone, so it's all new for me). One of the first ones I tried is WebMD's Pain Coach. I can track just about all of my FM symptoms, medications, and triggers, plus write notes on how I'm feeling. If any of you have smartphones, I definitely recommend trying this out. http://www.webmd.com/mobile You can also find it (and the other WebMD apps) by clicking on "WebMD Mobile" at the *very* bottom of each WebMD page.
Oops...I meant to be in bed half an hour ago! I hope you all get plenty of rest tonight so you'll have a better day tomorrow
hugs* I hope you can get some answers soon. This doesn't sound like something your doctors should brush off
I haven't woken up screaming, but I do wake up not being able to breathe because of the pain. I have to make myself take a breath, move a little bit, and then breathe again. It takes several minutes to get to the point where I don't have to make myself breathe. Once I reach that point, I'm usually able to move enough to take pain meds. I've started keeping pain meds and a water bottle on my nightstand so I don't have to get out of bed. It doesn't happen often, thank goodness.
It's been quite a while since I checked in. Busy with school and family. I am looking for a new doctor. Hoping to find one soon because my FM symptoms are getting worse. It's gotten to the point where I am not sure I will be able to work once I finish my program. Last night I had to close my eyes and concentrate hard to speak simple sentences.
Hope you are all doing well I will try to read what you've all been up to after work.
I'm running behind again - too much to do and too few hours to do them in! I've got laundry to switch out and then I have to get ready and get out of here so I can run errands before work.
Short update - We traded in our old car for a new one (only because we got a really good deal on it and our car payment only went up a little). Within the first week, a dog jumped on the door and left scratches from the molding to the handle DH knew who the owner was, so the owner is going to cover the bill. Other than that, I'm buried in school work and DH & I were sick all last week. I don't recommend attempting to get the attention of a class full of noisy second graders when you can't talk - doesn't work all that well The latest expansion for my video game came out last Tuesday, so that's what I've been doing when I haven't been doing homework.
~air hugs~ Hope you're all doing well and you have a fantastic first day of October
I play a video game (World of Warcraft) when I have to be off my feet and I bake when I can't sit down. Calling someone and pacing through the house sometimes helps when I can't sit or stand in one place. I also do a lot of reading. Unfortunately, most of my school books (the only ones I let myself read during school) aren't quite as good for distraction.
*hugs* It's good to see you here again I haven't been on much, either...too much school work, I've been sick, and we've had to deal with the usual start of the school year issues. I wish you were feeling better.
Gotta run - need to get out of here early so I can run a couple of errands before work.
~air hugs~ I hope you'll be able to be on here more often. Having someone to 'talk' to helps me on my bad days.