It reads as follows........ A new study has suggested that an infection may play a role in conditions like CFS and Fibromyalgia. Reasearchers studied blood sapmles from 101 patients diagnosed with CFS and compared them with 218 people without CFS. A majority of CFS patients, 67 percent, tested positive for the XENOTROPIC MURINE LEUKEMIA VIRUS- RELATED VIRUS or XMRV, compared with just 4 percent of healthy test subjects. What's more, subsequent testing found 95 percent of CFS patients harbored XMRV. The reseaerchers, from the Whittemore Peterson Institute in Reno, NV., the National Cancer Institute in Bethesda, MD., and Cleveland Clinic, say they have also found the virus in people with Fibromyagia and myalgic encephalitis and Gulf War Syndrome. If research is confirmed by other scientists, it may open the door for new drug treatments. SOURCE: The Oct 23, 2009 issue of "the Journal of Science" as printed in "Your Health Magazine.''View Thread
I am so happy to find you all. All of the forums I had found previously were so out of date! No one had posted in 6 months or so, I see a lot of people here daily, it's so wonderful. My name is Meg and I live in Michigan. I have been researching this disease since I was diagnosed (about 4 years ago) just to prove to my Dr's that I did NOT have it. Obviously, I have accepted it but I am still searching for any and all Information. One Doctor I would like to recommend that you all take a look into is Dr Clauw at University of Michigan. This is not a shill because he does not accept patients!! He puts all of his efforts into research and does a free monthly report to anyone who wants to go listen. I went to hear him and he said things I had NEVER heard before, such as....
Fibromyalgia is heredity. They have found a common gene but are not sure why some get it and others don't.. Most FM sufferers begin symptoms after a trauma. Be it emotional, physical or mental.
Couch Potatoes don't get FM. For some reason us with the gene know that we feel better when we are active so we used to be very active, busy people.
FM IS in your head!! But not the way you think...The brain processes pain many times greater than a normal person.
There are many more things that I cant remember right now but you can check out his name on a web search. He has had the most helpful information that I can find and is the top researcher in the field. Coming from me.... this is the best I can do for you. I have been to so many Dr's it's disgusting. None of them listen to me, all of them want my money, when I was out of insurance temporarily--They all dropped me like a hot potato! Would not even speak to me, so much for that silly oath that they took. I could go on for pages about what I think of Dr's, but I wont because it's all negative and I try not to go there. ( I said "Try.") My FM, fatigue symptoms began after 9 months of an undiagnosed gall bladder infection. The last 2 months of that I was in the Hospital every week just to get fluids because I couldn't keep anything down. Finally, they quit giving me pain meds and sending me home after I refused to leave and insisted that they admit me!! I was rushed to surgery 4 hours later and never really recovered. To all that have just been diagnosed--Don't listen to those that say it's just going to get worse. I am so much better that I was. I take pain meds and have a pain patch. I also take thyroid med and take Omega 3 supplements, Probiotics, Xanex, Vit. B-multi, and just started Welbutrin. I don't eat much meat, dairy, sugar, bread or processed food which seems to help me...these things increase my fatigue so I try to avoid altogether, but I need chocolate sometimes. If I could give one piece of advise it would be...DO NOT LET THEM START YOU ON PREDNISONE or other steroid. I was on it for 2 years and then they said O.K., get off it. Sounds simple right?? It took me one full year to get off it, the pain was excruciating. I went from 40 mgs to 0 at .25 mgs at a time. Terrible times. I hope I havent' run on too much and that you all aren't snoring now, for someone with chronic fatigue...this may have been to much, Sorry!
I really just want to say thank you to all of you for just being out there. I'm thrilled to have found you and I hope that I might be able to help one of you along the way. I have already been helped by some of the things I've read in the short time since finding this site. I'm so Grateful. Thank you. Love, Love, Love. Meg.View Thread