Sorry you have fibro too. Fibro at a younger age is often related to hereditary factors.
I am unable to offer medical opinions here. You should work with your doctors for specific advice regarding your specific situation. Here are some general thoughts:
Lead poisoning is a specific condition completely unrelated to fibro. Lead toxicity in children can result from exposure to old paint or contaminated toys. In adults, chronic occupational exposure is the usual culprit. There is no relationship, to my knowledge, with having fibro and getting lead toxicity, or vice versa.
There are typical clinical findings in lead poisoning. Measuring blood levels for high lead content is the standard diagnostic test. If one of my patients had a negative blood lead test, I would not consider a diagnosis of lead poisoning, nor would I discuss chelation therapy or other treatments for lead toxicity.
I know the author of that book very well. I hear he's very funny and extremely intelligent
I hope your meds are helping, along with your quest to educate yourself about fibro...good job!
I think magnesium supplements can be very helpful in many with fibro and I still recommend this supplement often to my patients. I encourage those who are not my patients to research the possible benefits of Mg in fibro and discuss with their doctor.
Many products are available for natural sleep, and many companies are out there. As you've read from my writings outside of this forum, I have found certain products and a certain company that I am comfortable recommending to my patients. I'm sure your research will help you as your continue to learn about anything that might help you better manage your fibro!
Sorry you have this disease. You've gotten some great responses. I use my "1/3 rule" as a rule of thumb when talking about fibro and prognosis. This means over time, 1/3 of the people with a diagnosis of fibro will stay the same, 1/3 will report feeling better, and 1/3 will feel they get worse.
Thank you for your nice comments! You're right, that was my latest book. I have written numerous other books over the years; my "Up Close and Personal" was an update from my previous book "Inside Fibromyalgia," so you would be current once you finish the "Up Close and Personal."
I've planned to update/write a latest book and include a Kindle version..I think I've been "planning" this for several years now. Perhaps I can blame my fibro for blocking the path from planning it to actually doing it!
I'll let you know if I get my next project completed sometime this decade!! In the meantime, I hope you enjoy and learn from the present book. When you're done, I hear the big heavy book makes a nice door stop
Good to hear from you! I hope you don't have GBS. No relationship exists between having fibro and getting GBS, and vice versa, to my knowledge. GBS is when the body attacks the nerves and causes weakness, among other symptoms. This autoimmune disease is often triggered by an infection. Fibro is completely different.
It's possible for someone to have both, coincidentally. Your doctor could determine if you have something else going on.
It used to be thought that fibro was caused by inflamed fascia. Over 100 years ago, physican Sir William Gower observed under a microscope a biopsy of back muscle from a man with chronic back pain. He described imflamed fascia which he coined "fibrositis." That name eventually became synonymous with our condition until "fibromyalgia" replaced it in the late 1980's.
However, subsequent research failed to confirm Dr. Gower's "inflamed fascia" finding; no inflamed fascia was found by others. This controversial "inflamed fascia" description led, in part, to the confusion and question whether fibromyalgia even existed.
We know now that fibro is certainly real, and that it is not associated with inflamed fascia, or other inflammation. Our stiffness is mostly from our tight muscles lacking energy molecules.
I just responded a few minutes ago to your initial post!
You've gotten superb responses to your question; see what I mean about having great fibro friends here?!
As Super-Nurse Nancy B mentioned, I'll discuss the role of the autonomic nerves in heart palpitations.
Fibro causes a dysfunctional autonomic nervous system, esp the part known as the sympathethic nerves. The sympathetic nerves are responsible for our "fight or flight" response. In fibro, the sympathetic nerves have become automatically overactive and hypersensitive due to the way fibro changes our pain responses. Even though the room is actually empty, our fibro autonomic nervous system acts like there's a lion in the room staring us down, blocking the door, licking his chops....
Our response to chronic stress, real or perceived, is driven by the sympathic nerves. Part of their function is to rev up the body, which can include speeding up and "palpitating" the heart. Of course, our bodies try to counteract the sympathetic nerves (via the parasympathetic nerves) and the result is a big autonomic dysfunctional mess, with the sympathetics prevailing.
So many of us with fibro get palpitations as a reminder of our dysfunctional autonomics. When our fibro flares, our sympathetics flare as well. When our fibro is more calm, our sympathetics can still bother us. Certain meds like beta blockers can often help with certain sympathetic-mediated heart rhythm disorders. Your doctor could determine if you are a candidate for any specific treatment for your specific situation.
Once a Buckeye, now a Wolverine?! I bet you will always be a Buckeye!
I see people from all over and have managed not to find a cure for fibro regardless of what state someone hails from!
Realistically, a person who sees me from outside of my "treatment territory" can expect a one time approx 45 min evaluation and review of my findings, and discussion of treatment options and goals, and a hopeful plan to follow through with your local doctor. It's not practical for me to be able to treat/manage fibro in someone who lives out of state.
Visiting family can be theraputic for fibro, I bet! Let me know if you want to work out something. Don't forget to bring your fibro with you if you decide to travel back to Ohio!
Welcome from another male fibro owner! We men represent 15% of the fibro population; common enough for men, but we are still badly outnumbered, esp in this community! You, MNJeepguy, FL_Jay and I will have to watch each other's backs here, LOL!
Actually, Scott, the ladies are wonderful and helpful here and can become your best friends. Enjoy your conversations with all your new fibro friends. Let me know if you have any questions I can help out with.