"maybe I am not sick, maybe I am just lazy.....I should be picking myself up and getting busy....I should be getting focused and getting out and getting back to work."
I have had Fibromyalgia/Chronic Fatigue for about 12 years. My life has changed soooooooo much. I cannot do the things I once loved plus putting up with the side affects of meds. You hit me in the heart when you said, "maybe I am just lazy" that has gone through my mind time after time. As I sure you really know, you are not lazy nor am I! I think when we cannot get up and do the normal things we use to do, our mind starts looking for reasons because we get depressed. My heart goes out to you. I take Cymbalta and Lyrica and I know they help but are the side affects worth it? I don't know! As you said both are so expensive that I feel bad for even taking them. Even with my insurance I am paying up to $400 per ninety days and about $300 for the other. What do you mean by the manufactor's discount? To be straight forward and not to depress you.......massage is the only thing that has worked for me. The problem....$$$$$ and the results only last a short time. Getting out and going somewhere helps me mentally but getting that "push" to even go out is very hard. I am not trying to discourage you, as I am 64 yrs old and I am sure my age doesn't help. Never had any "ear problems" before this past summer. I began having pain, drainage and went to our Urgent Care about three times. At first they treated it as a sinus infection and ear infection. The last time I went the doc. said my ear drum had burst. A lot of useless meds and $$$$$$$ for those meds. When my ENT doctor got back in town I went to him. Before he had examined me he said it is probably a fungus. It was! He had to vacumn out my ear (no pain) and blow in a powdered medicine. After about two more visits it did clear up. I hope this doesn't have anything to do with Fibro but I had not been in the pool nor outside in the humidity that much. I have no idea where it came from. I feel bad writing you with the all this negative stuff! Please email me if you would like. email@example.comView Thread
When my doc. started me on Lyrica she also started me on Cymbalta. It is for depression and pain. You might ask about taking it with Lyrica. I was taking 150 mgs of Lyrica 3 times a day. I would shake and my legs and arms would jerk. The doc spread out the Lyrica, giving me more time in betweeen doses. That helped a lot, however, my arms will jerk once in a while but I can deal with that. It seems that all drugs have side effects! As for Lyrica, I think it has saved my life. I would probably be in bed had it not been prescribed to me. Depression is a serious problem and you need medical help to get it under control. I hate being depressed, it seems like I am in a deep black hole and cannot get out. I hope you get feel better.View Thread
I have a problem somewhat like yours. I began to feel so bad and so tired that I have to go to bed. I will sleep all day and all night and sometimes the next day. I think that I may have tried to accomplish too much and FM/Chronic Fatigue just causes my body too be so over tired that I must sleep. I don't know that for sure of course, but I never had any problem until I was diagnosed with the above. I hope you can find out what is causing the problem. Maybe Chronic Fatigue????? A lot of people that have FM also have Chronic Fatigue.View Thread
I also take Lyrica. It seems to bother my eyes. If I am on the computer or watching TV, my eyes get "blurry," sore and burn like fire. I know if I stop taking the Lyrica I will not be able to function at all. However, I certainly don't want to damage my eyes. Please let me know your experince with this drug. Thank You!View Thread
Has or does anyone of you take Tramadol for pain? It just makes me feel worse. I have no choice but to take it as my pain never goes away. I take Lyrica and Cymbalta and have problems with my eyes. They get blury and feel really dry. Please answer my discussion. Thank you!View Thread
Hi Linda, You just have to keep on going, one second, one step at a time. I have had FM/Chronic Fat. for 10 years. I had to stop doing the things I loved. Singing and playing piano in Church. My fingers would hit the wrong keys (feel like they are swollen) and my voice sounds bad now. I had to stop working. I seldom go anywhere because the fatigue is as bad as the pain. Some people seem to be able to go into "remission" but I have never. I am a christian and I know God is there and He cares! I don't think that He caused you to get sick to punish you. I think we go through a lot of low moments and we think that. I have been there and still get those days but I stand on this.........John 3:16 IView Thread
I am sorry, but somehow I hit the "submit" button before I had finished replying to you. Is it possible that you can get some help with your medical. Here in VA we have Medicade and SSI. I think I am correct in telling you this. Some doctors do not accept Medicade but many do. If you could get some help such as that, you could get back to a doctor and not pay much either. Check in and see what your state offers. It may be a long shot but it can't hurt. You have to see a doctor, not only for SSD but for your own well being.
I read another thread and she suggested your write your senator or congress person if you refile. Please don't give up! All we can do is take "one day at a time!"
My whole life has changed!! I use to sing and play the piano for my church, however, I had to give it up after 20 plus years of doing so. My fingers would no longer hit all the right keys and I got to the point that I did not feel like getting dressed and going to church or I did not want to see or talk to anyone! We go through so many feelings. I wish the doctors who say "it is all in our mind" could walk in our shoes for at least one day.
I am getting out more now than I did before. Summer is a much better time for me. I still have pain and all the other "baggage" but try hard to get out more as it does help us not to be so depressed.
My heart goes out to you!! Fibromyalgia/Chronic Fatigue is a horrible Syndrone. I think that is what it is called now. No one seems to be able to understand the pain, stress, fibro fog and the other "luggage" that we carry along with Fibro. Sometimes I wonder if I am loosing my mind. I can't remember from moment to the next. Can't do but one thing. Multi-tasking is a joke now, I can't even finish one task without forgetting what I am doing.
Several years ago I applied for Disability with Social Security. (I am assuming that is what you mean.) They turned me down the first time! I don't remember the reason they gave. I refiled again and I was approved. It was two years of torture! I kept and still have a copy of everything that was submitted to Social Security. It is very important that everything is submitted on time. Since you had a lawyer, I am surprised that you were turned down. What state do you live in? Here in VA, Fibromyalgia seems to be everywhere. Even in our church there are four people besides myself that have Fibro.View Thread