I have to agree with you about staying in bed too long. My body literally forces me out of bed when the stiffness and pain gets too bad. It seems like staying in one position too long makes it worse. The same thing happens if I am on the computer a lot. I fidgit a lot too and I know that is not quite socially acceptable but I cannot sit still without getting stiff.
There are some free exercise classes in the city where I live for seniors and I am not quite old enough for that but because I have fibro then they will let me in. I just keep getting stiffer and weaker all the time. I can't go for a walk without worrying that I will fall down. I broke my knee before and I don't know if it was muscle weakness or fatigue. It seems like I am so fuzzy-minded that I don't notice what is in front of me. I just stepped off of a curb that I didn't see and down I went!
I wonder if any of you have problems with shopping and doing errands. I don't have anyone to help me at all so I am actually ordering food from Nutrisystem so I have food around. I am not losing weight on it though. I wish there were some kind of grocery delivery service out here but there isn't.
I have two cats and I can't even always take care of their litter box and I have trouble keeping my place clean. I have trouble taking my trash out to the dumpster so I guess I need to start taking small trips and only putting a little in a trashbag at a time. But I am also afraid of falling down and hurting myself going to the dumpster! I think I need to strengthen my legs using my exercise bike.
I am afraid of hurting myself again because if I do there will be no one to help me because I do not have a roommate right now.
I am very discouraged but I also realize that I need to get out some of the time for my mental well-being. I also have bipolar disorder and there is a mental health social center nearby that I need to force myself to go because other-wise I will just get more depressed and lonely.View Thread
Actually I have gotten some good advice from someone who suggested that I might have sleep apnea. And it wasn't from a doctor!
I do get impatient with some people though because I feel like they are belittling my experience with fibro. The most common "suggestion" I get is to exercise. These people think that they know what fatigue is and swear by it. Or I get from people that I sleep too much and I would feel better if I didn't. I want to tell people that it isn't that simple! I wish it was! Anyway I just grin and bear it because I know that they are only trying to be helpful.
I think some people don't realize that this illness is simply out of their frame of reference. If they have never had it then they shouldn't treat me like an idiot by comparing their minor problems with mine. When I say that I am tired I don't mean a little tired. I mean flat out exhausted to the point that I can barely do anything! If I say that I hurt they should not compare it to their strained back!
So all I can say is that while I don't necessarily mind suggestions they could at least realize that simplistic solutions won't work. There is an implication from the suggestions of exercise and sleeping less that somehow I am lazy.
FYI there is a rumor going around that Nuvigil (and possibly Provigil) has been discontinued by the manufacturer. The truth is that they are still available. The manufacterer has changed. I don't know how this affects supplies but my pharmacy has to re-order it from the new manufacterer.
Just to let you know that some chiropracters have massage therapists in their offices. It might be covered under insurance. If the adjustments are too painful you might be able to talk your doctor into letting you just have the massage therapy.
I haven't been here much recently because my back hurts from being on my computer so much. I am seeing my chiro this afternoon. I am really upset because my insurance has turned me down twice about getting provigil for my chronic fatigue. I had gone through a lot of turmoil trying to decide whether to take a possibly addictive drug. Now that I have decided to give it a try I can't get it!!!
First I made the mistake of trying to get it from my psych doc. The insurance co said that it would only cover it if I had sleep apnea or narcolepsy. I have sleep apnea so I went to the doc who diagnosed me. After waiting 8 days for approval they denied me again because they had denied me before so the only way I might be able to get it is through an appeal to Medicare!!!
I've had it. I hate my life and I hate this disease! What is the point of trying anymore???
Yesterday I found out that I have anemia and the doc said to take an iron supplement. Maybe this is the source of my fatigue. I hope so because it may be easy to fix.
I was turned down by my insurance for provigil, but my psych doc gave me a script for nuvigil which is a newer version. I may be able to swing paying for it out of pocket until I can (hopefully) get insurance to cover it.
The only problem is that it would take 2 weeks for Walmart to get it in! I am not kidding! Between waiting 3 hours for prescriptions and now this I am looking for another pharmacy. I may go back to Costco even though it is farther away from where I live.
I am also getting a sleep study done tonight so I will see whether there is something wrong there.
Anyway I am not as discourged as I was and thank you guys for your support!