Good middle of the week everybody. I hope that your today is going well and that you are fibro issue and pain free today.
It's overcast here right now but will clear up and be near 90 by this afternoon. I enjoy the warm days and will be very sad to see them go. The Polar Vortex that is bringing cool downs to the states west and north of me isn't effecting middle TN much. A good thing.
But warm days here or not Fall is on the way. It will be officially here on the 22nd. Gosh the warm months flew by. Well to be honest we really didn't have a lot of warm days here. This spring and summer has been a weather bust really. We had more cool and rainy days than we did hot and muggy ones. But the colors of these months have been wonderful. I love the colors of Fall and look forward to bright orange and yellows over the next few months. I will be sorry to see the bright leaves and flower season end.
Knowing how much I will miss the colors of spring, summer and Fall DH brought home winter plants that have flowers. Very thoughtful. He brought home pansies, mums, winter lavenders and this one winter plant that has beautiful blue flowers. I am putting them in the screened in back porch so I can see them from the kitchen window. I also have plants that have done well indoors this summer so they'll be where I can see their colors as well.
I'm still dealing with the allergy issues. My eyes and sinuses are giving me fits. Neither are as they should be. I am doing just what the doctor's are telling me to do. I'm taking the meds and yet not a single thing has changed. I talked to my PCP's nurse yesterday and told her I just don't think they have it right. I'm no better. My balance is way off, my eyes water up and my vision is blurred at some points during the day and OMG my sinuses hurt on the right side of my face. This is NOT normal and so far nothing they've thrown at it has made a bit of difference. UGH.
I go in tomorrow and restart my PT neck adjustments. I hope that it's of some help. I see my Neurologist on Friday and will ask for a couple of things I had put off getting last winter. For one I want some type of antidepressant for the winter months. Last winter was really hard on me and I'm not going there again this winter. A little help, nothing really strong, to help make the cold, dreary months better for me is I want. I am also going to ask him about pressure point shots. I have never tried them and maybe they will help me as well. And of course I'm getting the shot that helps keep migraines away. I told my BIL last night " I'm trying to cover all my bases this winter and I also have the new sinus/ eye things to deal with. It's enough to make a grown girl cry."
Okay I've griped enough. Let me close this here with my best wishes to each of you for a wonderful day. Gentle hugs, Linda RView Thread
cece, back reading Roll Call posts. Am glad that your dad seems to be doing well at the care center. I hope that a assisted living center will be worked out for both him and your mother. Going it alone isn't doing you any good and I know that doing it alone is hard on you.
I'm sorry that your sisters are leaving it all to you to do. I wish they would realize that this is not a one person job.
I have you in my prayers and I hope that by week's end there will be a solid solution for the care of your father and mother.
Good Saturday one and all. I hope your today is going well and that you are enjoying the weekend free from fibro issues or pain.
It's bright and sunny here. Going up to 87 with thunderstorm chances throughout the day. But I'll take it. Better sunny and warm with rain chances than winter's overcast and gray anytime.
Did a few errands yesterday after picking up my car from the repair shop. The new, 300.00 dollar windshield looks good. I have such a large deductible that I paid 250 out of pocket. Afterwards I went to my 2:15 doctor appointment. The infections are cleared, yay that, but my PCP is concerned about the allergic reactions I have been having. He said I do have Oral-Allergy Syndrome, which I figured I had already, and he wants me to keep a diary of everything I come in contact with, eat and drink over the next two weeks and then by process of elimination we'll see what it is that is triggering the reactions.
The problem with me being sensitive to things and not out right allergic to it, is that I have these reactions hours later, so putting a finger on just one thing I came in contact with seems impossible. Example if I go to Sheporia's for some make up. I touch brushes, bottles, etc and 5 hours later I start to have a reaction. Okay which one of the things in the store got me?? Or was it in the store, maybe it was in the Mall itself. I'm thinking this is going to be hard.
So far I haven't needed the EpiPen but a couple of times I felt I should have used it and gone to the ER. Anyway, he did blood work and really gave my sinuses and ears the once over. He made sure I had the EpiPen with me. He has me back on Flonase which I don't like and he wants me to take Montelukast Sodium tablets. I checked the side effects of the pills and I'm not liking them much. Will talk to the Pharmacist before I take them to make sure their side effects, which have IBS undertones, don't send me back into an IBS flare. Jeez I just got out of one and I would hate to go back and deal with IBS symptoms again.
Today is a going to be busy. It's the 1ST Saturday of the month so I usually check out Goodwill for bargains.Then I have lunch plans with my BFF. She is a university professor ( teaches 4TH year Business Administration classes ) and we have to squeeze in lunch dates on the weekends now that classes are in session. I want to ts stop at Hobby Lobby while out too, and pick up a few Fall things and then it's off to evening church service. Afterwards I pick up my middle GS who is spending the night with us. Tomorrow is also going to be nice as I get to see my 2 youngest GC. DH, GS, his mom and I are all meeting up in Old Town Franklin for lunch and some shopping. Then I take the little ones to Sweet CeCe's for yogurt and it's home before the rain hits. I love weekend's like this.
Not much to post about. I seem to be out of the fibro flare now and the IBS one as well. Life is good and right about now life slow in MIddle TN and that's just fine by me. I like the slower pace of September, Warm sunny days, some rain now and again and lazy days that don't rush you around.
Okay, will close this here..
cece, prayers going out for your dad. <<< HUGS>>> to you.
MiMi, I'm not sure I know what it is you mentioned. I can't get a mental picture of what it might be. I hope someone here knows and can give you some info on them.
Have a wonderful day... Gentle hugs, Linda RView Thread
@ Laura and Mary, I don't know if it's fibro or fibro related but I never used to be ' thin skinned ' where I'd let small things, actions or words get to me. I was so well known for my people skills and being able to work with people when I worked at my local community college. But years of dealing with flare after flare and new illnesses well guess I have built up anger and I just don't deal well with anyone anymore. Sad.
It's gotten so bad that over the past few years even the smallest perceived slight gets to me and send me in so many emotional directions.
I know I have these issues and try to work around any bad or sad feelings I might have if someone or something is done or said that I don't think should be. But it's hard to get back what I have lost. I think years of dealing with one fibro issue after another has taken a lot of good things from me that I used to take for granted.
Now I guess I expect someone I care about to think similarly to me, understand what I'm dealing with and when that isn't the case I do feel slighted and get either angry or sad. I know it will continue to take hard work on my part not to have these feelings. I know I am a much better person than I am now, so I hear what you're saying and do so agree. Gentle hugs, Linda RView Thread
Good TGIF to one and all. I do hope that this week has been a good one for each of you and today will be even better. I also hope, as I always do, that each of you has has little to no fibro issues or pain.
I've been offline this week. So have missed a lot I'm sure that has been posted. I will back read Roll Call to catch up. I realized that I miss coming here to visit with all of you. You are a wonderful group of people and even though you can't see how you help me, you all do. Thank you, each of you, for that.
It's going to be hot, 90, here in middle TN, again, and a bit muggy. We may get a shower or two here and there but overall a nice day that will be mostly sunny. To our chagrin DH and I will be installing two, 2 1/2 ton and 2 ton, heating and AC units at some point this month. Both starting acting up the day before we left for Florida and the Heating and AC repairman told us to toss 1000 dollars at these, 20 something, units would be unwise. So DH and I are going to have to dig deep to get these installed before the cooler temps of Fall arrive. And I hear that will be next week.
DH and I had a nice vacation at Disney World. Made the trip by car instead of flying down because of the water that is still in my middle ear. My new ENT doctor had said flying would be okay but since I still have ear issues going on he said " Go, but don't fly." So we drove the 700 miles down and back. Nice drive, not to over taxing on either of us.
Not many plans for today. I have to pick up my car from the repair shop mid day. I had to have new windshield put in. My old got hit by a rock while coming home. I thought the windshield had been hit but I could see the impact spot until I was coming out of Walmart yesterday and there the crack was. No chance of driving with it awhile, it was going to break and so I took it to be replaced.
At 2 I have an appointment with the doctor for a recheck on the cement dust infections. I'm pretty sure all the infections are cleared up now.
While there I will be asking him to refer me to a doctor, NP, someone, who can help me with my OAS ( oral - allergy syndrome ). I had 2 allergy reactions, mild, to food or something I ate, while down in Florida and I really need a bit more guidance than I am getting now with it. I wonder if OAS is a part of fibro? I may ask my Neuro next week when I go in to get my shots. I will also be asking about trigger point shots. If I get them I hope they are as helpful for me as they are for Nancy.
I guess that's about all I have to post about. Slow news day here.
cece, I hope by today your father is much improved and that his blood pressure is back in a normal range. <<HUGS >> and prayers going out to you.
Nancy, as always your party preparations get me winded. I don't know how you do it all.
MiMi, I do hope that your computer issues clear up. I know how frustrating it can be to have them. And your grandson sounds like a charmer. Thank you for sharing your day with him with us.
Cory, I do hope that this week has been okay for you. I read that you had a your hands full with a repair to one, very big, machine, I hope you have plans for this weekend that allows you to rest and recoup.
Lou, hope things are moving right along and that you are enjoying you work out of the house.
Mary, I hope you are feeling better today. <<< HUGS>>>
Hello and Welcome to grumpy goat, Laura and Jan.
Will close this here. Gentle hugs to one and all. Have a really good day. Linda RView Thread
Hello Grumpygoat and Welcome. Linda R here and I am so glad you found this site and the wonderful people that are here each day to help and support those of us with fibromyalgia.
I'm sorry you have been dealing with an on going fibro flare. I hope you have some kind of medication that has helped ease the symptoms. As MiMi mentioned having normal range levels of Vitamin D3 is so beneficial in keeping pain and symptoms low. Have you had you're's checked? If not it would be a good idea to ask you doctor to test your D level.
I hope you will settle in with us and get to know everyone. The people here are so nice. They care, their supportive. And they understand because we are dealing with fibro issues.
Theres also so much helpful information here in the Tool Box.
I understand all too well the ER vist(s) and the cost just walking in the door. I too have had one too many trips this year to the ER thanks to fibro's issues, IBS symptoms, and the first thing you see before the doctor comes in is the hospital business office staff worker coming to get payment and insurance information.
Hope your full work week is an easy one and that you begin to feel better quickly. Gentle hugs, Linda RView Thread
cece, I have hearing aides for both ears. Only use one tho. And yes ear wax, even tiny amounts, can clog up the hearing aide. I always change out the small filter and make sure the hearing aide is clean before using it. It's a pain to always have to do this but it works when it's clean.
Hope your're dad is much better by today. Sending Prayers and Hugs. Linda RView Thread
Good last Saturday, weekend of August, everybody. It's hard for me to say goodbye to anything that is summer. Esp the warmth and sun of their long days. So this last summer weekend will hard to let go of.
Hope my post finds each of you enjoying the long weekend and I hope you each have some incredible plans for today, Sunday and Monday. I hope that you are not dealing with fibro issues or pain.
It's overcast here today, but warm at 89. Will have 80% chance of thunderstorms throughout the day and down to 60% on Sunday. Monday however is looking good for a day on the lake, rivers or just in one's own backyard heating up the BBQ.
I have all the suitcases ready to close now. Am taking ' safe ' foods and drinks in one of them for the trip down. I already know safe places to eat inside the parks and looking forward to that. I love EPCOT and the Magic Kingdom(s) food places!
I wish however that my eyes and sinuses were ready to travel. Worries me that I'll get down there and they'll get worse. That would not be a good thing. And I have no clue if what's causing them to be so painful and water so. ( I made an appointment with the dentist for next Friday, to have the dentist exam my upper teeth and take X Rays to see if there's perhaps a cavity they missed at my last cleaning.) I just wish there was some improvement, it's 2 steps up and 1 back with this. I wish that whatever it is would just heal and give me some kind of pain and visio break. Jeez this is going on week 4 with no relief in sight. What gets me is just when I think I'm better after a long slow day with these symptoms, then get up in the a.m. feeling as though I haven't made a day's progress towards getting better. I used Nasacort yesterday and my eye watered badly throughout the day. I used Flonase the day before and ditto that for that day. I'm just frustrated as to what is going on with me so I could get something to help.
Since it's going to rain today I am guessing I will only make it out of the house for one or two errands that I should have done days ago.
Gentle hugs, everyone. Linda R
Cory, 57 and damp. Not my kinda of weather either. But like you said good, good weather for fish catching. I hope that you and your little one get out and get the big one that got away As for the snap, crackle and pop I understand completely. I do much the same thing these days. I mentioned in my post yesterday that I'm having a ' lubrication ' shot in my left knee every 6 months and wish I could get it for my back as well. Sometimes just to raise out of chair is painful and noisy. Theres a saying that is attributed to Betty Davis which goes " Gettin old ain't for sissies." Well getting old as an fmer is much harder.
Nothing much to post about today. So will close this here with my best to everyone. Have a nice, long, restful, weekend. Gentle hugs, Linda rView Thread
sumra7099. I completely understand, as everyone here does. Fibro is an illness that pretty much puts in a lonely place. Fibro is a collections of illnesses that can't be seen from the outside. Those around us, even those who love us, don't see the toll the fibro flares take on us. So it's okay for you to understand why your DH just doesn't ' get ' it.
I suggest to our newbie's that they take their DH's, children, parents to a doctors appointment so they hear it from the doctor what is it that you deal with each and every day. I took mine not only to my Rheumy appointment but to my Neurologist appointment. After seeing what I have to do to stay this well, he ' got ' it. He saw how I have shots to the back of my head to stop migraines. He said he just didn't understand. For most spouses seeing is believing. I will start trigger point shots next month but I'm not going to make him watch that. I hope these shots help cause I am always in a fibro flare. Wake up to one, go to be with one. Any help will be welcomed.
As for it being all in you head, theres a lot of truth to that as the medical community is finding out. It's nerve end damage and the singles from the brain to the nerve endings are disrupted so those of us with SFN Fibro and PN, well we get the wrong singles, unlike someone who doesn't have this issue, goes out to the nerves. We feel hot when it's cold, cold when it's hot. We feel pain when theres no reason for pain to be felt. So knowing this a lot of us here go to a Neurologist, they understand fibro and PN and treat with the latest things. Between the two I am feeling much better, not great, but lots better. Perhaps seeing a Rheumatologist would work for you.
And it's okay to feel down about what's going on. We all have bad days, some weeks, of feeling a bit low. But fibro feeds on our feeling self pity and ift wins if we give up and go back to bed. I always try to be up most of a bad day. I pace and pace some more as the day goes by. I can say when my head hits the pillow at day's end I feel good that I did the day my way and fibro lost out.
I hope that you will post here often. Gentle hugs, Linda RView Thread
Hello and Welcome susymac. Linda R here and it's good to have you with us.
This is a wonderful site. So many wonderful and supportive people here.So much information that is helpful and everyone is so caring and understanding. This is one site that you can come to and vent, ask questions and in general feel you are understood. I am sure you will feel right at home with us in no time.
Let us know a bit about you. I live in middle TN. I am a 22 year transplant from Los Angeles. Where you live. I have had the fibro DX for 3 decades. When did they DX you?
Have you had your doctor have your Vitamin D3 level checked? So many of us here have had severe Vitamin D3 levels. And when D is low the pain and flares seem to come one after another. When the D is in the normal range the flares and deep bone pain seen to happen less often. I learned about the importance of D from MiMi, from NC. She posts Roll Call everyday and we all turn to her for information that may help us.
Okay, let me close this here by saying again how nice it is to have you with us. Gentle hugs, Linda RView Thread