This is an update from a previous question a few days ago, so you can ignore the earlier post to you from me.
I had been taking two 50mgs 3 times a day of Tramadol, for 5 months. Because of some unpleasent side effects, one of them is anything else I've tried to take along with the Tramadol causes terrible nausea. And I have had Serotonin Syndrome also, talk about sick! So my pcp gave me Tylenol3/Codeine
My pcp told me to take the Tylenol3/Codeine when it was time for, and in place of my next Tramadol.
When I did this after about the 2nd or 3rd dose of codeine I began to go downhill like a speedracer! Instead of feeling better I began having cold chills, alternating with being really hot and sweaty, hurting all over, zero energy, I woke up feeling terribly depressed too, I felt worse than I did on any fibro flare!
The sudden physical and mental changes were overwelming!
I did not understand why the Codeine didn't seem to be helping at all. In fact I had hoped it may even prove to be better at managing my pain.
Now I had never taken anything stronger than Ibuprophen till the fibro, bad disks, and arthritis came along, and I'm 54 now.
Even so it doesn't take a genius to recognize I was in withdrawal! It seems my body is dependent on Tramadol.
I know Tramadol is not considered a narcotic, but after a little research I found many people that claim they went through terrible withdrawals from it just like me.
I could not stand how horrific I felt, and told my DH I thought the only thing that would help right now, is to take some Tramadol, he readily agreed as he could tell I was really suffering. After two seperate doses of tramadol throughout the day, the terrible symptoms gradually decreased.
Needless to say, I am sooo relieved I'm feeling back to normal.
Please tell me what you think. I'm wondering if my pcp should have had me titrate down from the Tramadol? The manufacturers do not say it can be habit forming, but I, and many others beg to differ.
Can you tell me what you think of going off of one pain med, in my case Tramadol, and going on another, Tylenol 3/ with codeine.
My question is do you know if I can still go through withdrawal symptoms from stopping the Tramadol cold turkey, and just replacing it with the codeine? I ask because I barley started this yesterday, and so far there's no energy, and an all over achyness, plus my back is hurting more than usual. This is what my doctoe advised.
Any advice and feedback from you would be greatly appreciated.
Armywife, Hi, Iknow how difficult this must be for you and your husband. I have just applied this past august, and am anticipating being turned down.
I want to tell you one thing which may help. Go to disabilitysecrets.com. The man who has this site use to work for the SS. He now tries to help people with getting approved for disability. When you go there, scroll down to the bottom of the first page, and there should be printable forms you can print and take it to his doctor, its about 7 or 8 pages, called a medical source statement. It allows the doctor to show in detail what all your husband can and cannot do.
I actually made 2 copies and filled one out as honestly as I could, and took them both to my doctor. He was glad I had filled one out as it helped him, since some of the questions would be a bit hard for the doctor to know the answer to and he filled the empty one out, then it can be sent to SS. I've been told this can really make a difference!
I hope this helps, and please let us know how things turn out.
We do care here, and I pray it goes well for you and your husband.
I can't offer much help, but I can see you are in a very hard situation. Have you thought of getting an Attorney? Or have you checked out the Allsup site? I think thats what it's called. Just goggle it. They help people with fibro file for disability, and they do not get paid unless you are approved, then they take it out of your back pay money when SS pays you.
It sounds like you need an experts help with the way you do not have a treatment history in only one or two places. I though i'd tell you this in case you didn't know.
You are so welcome. I'm glad to hear you are only having the twitches, and not any other symptoms. I'm also glad you brought this subject up. I really did not think this was a symptom of fibro. So I learned something new, thanks to you, and Dr. P.
I know how it feels to not want to take so many meds. There are just so many side effects with most of them. Then again, they can make such a huge difference in how we feel on a daily basis.
Oh well,I guess we have to keep our eyes on the good things in our lives, and be grateful for what we can still do.
Thanks to the good Lord; I know I have many, many blessings to thank Him for.
I pray you can find just the right combo of medications to help you Wendy!
Dr. P, I want to share with you a terrible experience I went through.
I went through an awful experience that involved some major Myoclonus going on all over my body.
I didn't know what was going on when I was trying out different antidepressants and the twitching, (actually mine were more like my muscles were flinching,) this was during the day, and worse, I mean really bad all through the night. It was even waking my D H up!
I believe it was Serotonin Syndrome, because I was nauseus,and alternated between cold chills and terrible sweating, and severe headaches, I felt so terrible I was in bed for 5 days.
I was first taking Tramadol and Flexeril with no problem, then my PCP tried several different antidepressants and each time, this would happen to me. I noticed the pattern, and would stop the new medication as soon as these symptoms would begin.
I can honestly say this was about the sickest I ever felt in my life. I still have the twitching, well, with me it feels more like a quick hard flexing, It happens alot less often now, so I'm thankful for that.
Although now I am truly afraid to try any more antidepressants!
Anyway, Thank you for sharing your expertise with us on this subject. I did learn something new, because I didn't know Myoclonus was also another symptom of dear ole fibro.
Thanks again Dr P, you are a real help to all of us here.
I have this too, and from doing some research, I am fairly sure that for me anyways it is caused from taking medicines which are in the SSRI family.
I take Tramadol for pain and Flexeril which is a muscle relaxer. I read that Tramadol just by itself has this side effect.
When I tried several antidepressants along with the above mentioned meds, which are also in the same "family" of drugs, ohh boy, the twitching and muscle jerking was really bad, plus some other awful symptoms. It can cause a condition called Serotonin Syndrome. You should google it and check it out. Many of the common meds for fibro can cause this. Please educate yourselves about this.
Now I've been sticking to these two meds only, and I still have the jerks, but not as bad. On my next Dr appt. I'm going to ask for a different pain reliever. I doubt this is really a sympton of fibro. Hey, this may be a good question for Dr. P.
Please everyone, make sure you find out the side effects, and interactions of every prescription you are given.
I don;t want you to find out the hard way like I did, and it was because the doctor wasn't checking to make sure these were all ok to take together.View Thread
I applied online and was asked for my bank info early in the online process. It is in case you are approved they will auto deposit your money.
Sorry, I know how you feel, I can no longer work either, and it is a very difficult process to go through. We know the odds are not too good for being approved first time around, it's probably about 30 to 40 % from what I've read.
I'm making myself expect a denial at first, but I know I will eventually get it. And so will you!View Thread
Hi Disneygranny, Maybe this can help you, or anybody else who is applying for disability.
I too have applied for ssdi, I applied in late August. You should go to disabilitysecrets.com, there are forms you can copy called Medical source statement, it is for your doctor to fill out, and its about 8 pages, its where he can write all the things you cannot do because of your disability. I was a little scared to ask my doctor to do this, but he did, no problem.
I made 2 copies, and filled one out myself, I knew my pcp couldn't know alot of the answere, like how long can I be up walking around before I have to rest, and similar questions. I took him the filled out one, and the empty one for him, and he was glad I did it that way, he even said thats what he would have told me to do. He didn't just copy my answers, he put what he felt I could, and could not do. Like the question about how much weight can I safely lift, I had put 25 lbs, but my pcp put no more than 10 lbs.
Did you apply online? I did, and then they sent me a stack of papers to fill out, so I have to do it all over again. My caseworker said it's because they want to know more of the specifics of my work history, they want to know exactly what I did every minute I was working. It's crazy, how am I supposed to know how long I spent each day bending over, crouching down, kneeling,walking, standing, sitting,climbing, handling, reaching.. well, you get the picture. Plus most of this is answered in the medical source statement from the doctor. Ohh well, we do what we have to.
I believe they try to set you up to make a mistake, or get tripped up. Example.. One ssdi worker told me on the phone I had 10 days to return it, but when I called with a few questions, I was referred to my caseworker. She told me to get the paperwork done asap, like today, try to mail it off today!? I said, I will do my best. then when I hung up I realized theres no way, I need at least a few days because I can only do some, then have to take a break, and so on. So I decided to put in a note and tell her I couldn't do it in a day, it was too much, and would cause more pain and fatigue as it is stressful. I know though that all I have to do is be honest. But the paperwork can be overwhelming!
Next week my caseworker will call me to go over everything. I suppose they do this with everyone.
I hope you and everyone else will keep us all posted here of how things are going, and I sure will too.
I want to Thank you Dr. P for being willing to share your insights and feelings about a subject which can be so difficult for anyone facing this dilemna.
I happen to be going through the disability process right now and can tell you it was an emotional rollercoaster for awhile just trying to decide if I was truly ill enough to take such a drastic life changing course. I felt guilty even though I knew going back to work was not an option. Not only because of the pain, and fatigue, but also the terrible memory and concentration problems that have moved into my brain, and made itself right at home by the way.
My DH is disabled too since about a year and a half ago. This made the decision even harder.
The good news is, I came to the conclusion, (with DHs full support, which helps more than words can say) I will except this new, and yes sometimes very challenging new chapter in my life. (well ok it's more like a new book lol ) I think it's so important for us fibromites to except the bad, though I know sometimes it is nearly impossible, we gotta try! Find ways of enjoying life, even the small things can be so special. I have found in this slower paced new chapter, how great it is to get outside, walk when I can, if i can't, then maybe sit outside with a glass of tea, watching the wonder of a beautiful sunset, or playing cards or scrabble with family.
My hope and prayer is anyone who has to stop working because of fibro will be able to come to terms with the decision, and not beat themselves up about it. I'm still struggling, but it is getting better. I was able to work for about 30 years, parttime when my kids were small.
I know everyones situation is different, and my heart gos out to all who are dealing with the prospect of disability, especially the younger ones, I'm 54, and fibro didn't hit me till probably about 2 years ago, maybe more. I feel fortunate for that.
Thanks Dr.P for all your help and guidance to all of us here. What we learn is so helpful, and knowledge can impower us to live our lives the best we can, even if we can't do some of the same things we use to.View Thread