I want to Thank you Dr. P for being willing to share your insights and feelings about a subject which can be so difficult for anyone facing this dilemna.
I happen to be going through the disability process right now and can tell you it was an emotional rollercoaster for awhile just trying to decide if I was truly ill enough to take such a drastic life changing course. I felt guilty even though I knew going back to work was not an option. Not only because of the pain, and fatigue, but also the terrible memory and concentration problems that have moved into my brain, and made itself right at home by the way.
My DH is disabled too since about a year and a half ago. This made the decision even harder.
The good news is, I came to the conclusion, (with DHs full support, which helps more than words can say) I will except this new, and yes sometimes very challenging new chapter in my life. (well ok it's more like a new book lol ) I think it's so important for us fibromites to except the bad, though I know sometimes it is nearly impossible, we gotta try! Find ways of enjoying life, even the small things can be so special. I have found in this slower paced new chapter, how great it is to get outside, walk when I can, if i can't, then maybe sit outside with a glass of tea, watching the wonder of a beautiful sunset, or playing cards or scrabble with family.
My hope and prayer is anyone who has to stop working because of fibro will be able to come to terms with the decision, and not beat themselves up about it. I'm still struggling, but it is getting better. I was able to work for about 30 years, parttime when my kids were small.
I know everyones situation is different, and my heart gos out to all who are dealing with the prospect of disability, especially the younger ones, I'm 54, and fibro didn't hit me till probably about 2 years ago, maybe more. I feel fortunate for that.
Thanks Dr.P for all your help and guidance to all of us here. What we learn is so helpful, and knowledge can impower us to live our lives the best we can, even if we can't do some of the same things we use to.View Thread
Certain medications can cause it. I take Tramadol and Flexeril, and I have to make sure I do not take them together, or I have bad muscle jerking. Even the Tramadol by itself causes me to have twitches. I am going to ask my doctor for a different pain medication because of this very thing. It's not painful, but it sure is irritating isn't it?
Please let us know if you find out what is causing this.View Thread
Hey Jim, If the tylenol 3s w/codiene helped me to that extent I would go ahead and take them. Just my opinion here of course, and I know were all different. Im just sorry to hear you are suffering so much. I have heard there is a difference between drug addiction, and drug dependence.
I'm 54 by the way, and was only diagnosed for fibro this past June after alot of tests. Had never needed pain meds before this. Now I'm so glad there is something that helps. My doctor gives me Tramadol, and I can take up to 300 mgs a day, but sometimes I only take 200.
Well, it's good the Gabapentin works for you. This can be such a difficult illness. I have begun to think my husband may have it cause he has so many of the symptoms.
I used to be an Oprah fan for many years. I stopped watching her show when she started preaching so much on all these new age ideas, and having the so called experts (gurus) on her show. I find it sad because she used to be a christian. Don't get me wrong, please, I still care about her, just do not agree with her new world view. I do pray for her too.
Sorry you had to hear something like that from your doctor! I would do everything possible to get another doctor, because he obviously will not take your concerns and health seriously.
My heart goes out to all of you here. Fibro is real, plain and simple. I was just diagnosed in June of this year. I thought my doctor was wrong for quite awhile, thinking it was CFS. I now firmly know I do have it. It has changed my life dramatically. I've always been an expert speller too, and love crossword puzzels. More and more I am having trouble spelling the most simplest of words! I am blessed with a husband who understands and knows I'ts not Alzheimers. lol
I would also like to get a copy of the Letter to Normals. Something not too long but gets the point through about the devastating effects of fibro could help many of us. Of course the fibro fog prevents me from remembering the ladies name who mentioned this, but can you please find and share the link for us?
I'm glad we have each other here, what a huge blessing you all are to me! We will hang in there, and support one another, and learn from one another.
The Lord is good, a refuge in times of trouble. He cares for those who trust in Him. Nahum 1:7
I dont know if it's just me or what, hopefully it is because I wouldn't wish a hard time on anybody. Right now I'm in MD, and I usually fly at least once a year to Cali, or Wyo. to see family. It affects me something terrible. I am severely fatigued, the whole visit, plus the brain fog kicks into high gear. I hate it so much. I'ts like way worse than jetlag, and I do not feel back to what is my new normal since the fibro diagnose, till about 4 or 5 days after I get home. Does anyone else have this kind of experience?
Grannyannienm I do agree with MiMi, flying would have to be better than a bus. And let us know how the trip worked out when you get back. Praying it's a good one for you.
Alisa, God is good, and will guide you as to the right time.
What a coincidence my youngest sons girlfriends name is Alisa. And it's a pretty name.
I am the same way, I take supplements, and Tramadol for the pain, and a half a flexreil at night before bed, it helps me sleep, a whole one is too strong. I do not want to become dependant on alot of pills. Almost all of them have so many side affects, and I am sensitive to pills as it is.
Keep us posted on how things are going with you. Hang in there, and with your faith, you know all things will work out for you,as God cares so very much for us.
I just applied in August, and you can do it online if you want. Or you can call the social security department and ask them to send you the application, or go in the your local office and they will give you one. The paper work was not as hard as I thought it would be.
I just wanted to tell you this FYI. You will know if and when you reach that point.
Some people get an attorney right away, some wait till their turned down the first time, and have to file an appeal. It can be a long process as I'm sure some from this site can attest to.
I understand exactly how you feel. I struggled with the idea of applying for quite awhile, but knew with all the many issues I'm dealing with it would be way too hard for me to go back to work. I'm 54, and it has more to do with your health than your age. Some are able to still work with fibro, and some of us just can't. Also, fibro is different with everybody. Some have it much worse than others. Alot of us deal with other conditions as well. So it is a very personal decision, just do not feel guilty if it gets to that point with you.
I will pray you will be able to decide whats best for you, it does sound like you are struggling, and i'm sorry it is so hard. Have you found any certain meds and supplements that help? Do you have something to take for the pain when a flair hits? I wish you the best in your treatment.
I am really frustrated because I answered back to this last post of yours, it was about as long as yours was, and I swear I thought I had checked to make sure it was posted, was sure it was. So either it was taken off for whatever reason I wouldn't know, or it just didn't go through. Oy vey! Probably just another attack of the good ole reliable fibro madness, er.. um.. I mean fog!
So now I come back, and it's not here! I'm sorry, and I am not feeling to great now either.
I had told you some of the other ways fibro fog hits me. Anyway it happens to me alot like it does you. Sometimes it can be embaressing, and sometimes I gotta laugh, like when I poured orange juice in my bowl of cherrios w/bananas!
Also had said I hope you can see your doctor soon so you can get better pain relief. tramadol does help me, and many others with this illness.
Feeling to lousy to write now, it does feel like a flare, extra fatigued, and hurting all over. Ugh.. and got to get up early so me and DH can drive to Martinsburg to the VA. DH has to have a test there. It will be a long day. Well, one part I lkie is going to the christian bookstore there, and we usually have a nice lunch at the Red Lobster too. It's a treat because we do not have either one of those here in the big town of Cumberland.
Hey John, Sorry to hear how much you suffer with this illness. I hope your able to take something that helps, and also something for the bad flares.
I know what you mean about the fog of fibro, it is bad with me as well. I just can't seem to retain certain things. Plus I call people I know by the wrong name sometimes. Or someone tells me something, and a minute later it's gone!
I do not think I could handle working any more, and have just applied for disability.
I pray they will soon find something that works better than whats available now.
Take care, and it was nice to hear from someone of the male gender who is going thru this too, but sorry for you also.