Hello Everyone, am not on the discussion boards much but wanted to share this with the community. After finishing the article concerning diet & Fibromyalgia, have a tip that was not covered. NIGHT SHADES, these are peppers, tomatoes, eggplant, potatoes. I discovered that these foods affected stiffness & pain levels associated with this condition. Just as is recommended on WebMD, I removed them from my diet, & after a period of consumption, I than re entered these foods to my diet after not eating them for a month. I experienced more intense pain effects after I began eating them again and when I would eat a variety of Night shades in a day by that night or by next morning I am in excruciating can not move pain. I also experience the sensitivity to Gluten & Dairy, Preservatives, MSG, and dyes like Blue,Yellow or Red with any number after them; because of that, it requires me to read everything I eat, including vitamins or dietary supplements that may contain dyes or preservatives. If you are able, plant and grow your own herbs for supplements and use them to spice your cooking. Such as cherry or rosemary, ginger, turmeric are anti inflammables as well as pain reducers. Some of them can be added in small amounts to hot tea. I am not a doctor, just someone who has had Fibromyalgia 31 years now. These are merely suggestions that may help you with symptom relief, there are no studies to my knowledge that support the validity that modifying diet can relieve symptoms. However, with diet modification & stretching & mild exercise am able to lead a fairly normal life, though there is still the fatigue & insomnia am able to work and care for my self still, God Bless everyone.View Thread
I have found using bee pollen or adding a teaspoon of honey to your diet a few times a week has helped me. I also use games that make me remember, or use strategy, or find things exercises my brain.View Thread
Please be aware that doctors do not always have time to keep up on everything, your pharmacists has a similar education. Though all this is true, your best bet is for you to be proactive & read as much as you can find about the drugs you are taking even over the counter & supplements. The FDA puts drugs on the market after saying they have tested them thoroughly, but we all know that in some cases they are wrong. The best detective for your own health & welfare is YOU.View Thread
Beside the fog and fatigue oh and the pain, my 2 biggest pet peeves is never feeling like I have gotten enough rest and most of all people who tell me it is all in my head.Also being so cold or hot and being so very sensitive to it. sometimes clothes hurt to wear. I just want to look at them and say " if someone had just been diagnosed with any other debilitating condition would you be this insensitive or spend a day in my footsteps. Get up after trying to sleep all night in pain, requiring time to get your mind focused through that pain that will be with you, forever. I wish I could exercise more so I am not so dam fat, not morbidly, but to not be morbidly fat there is many things off my menu that others take for granted. Sometimes I just want to punch them, it is not like I am going to be in anymore pain than I already am but they will be. Yes punch them very hard and say " welcome to my world, you jerk" I don't because I can not risk loosing my job. See my pain has not crippled me and I am not one to give up so I continue to work & support myself for as long as I can. Please don't think about how bad the symptoms are going to get as you age or you won't try to live life at all. Now I can not do many things but what I can do I will continue to God willing until this crap takes me down of which I am not going down with out a fight. Tougher than the disease you have to be if you want a quality of life. Which brings me to another major peeve, how this condition cuts into your ability to live a normal life.View Thread
Hello Everyone, I have not yet met anyone who has had Fibromyalgia as long as I have. I am sure there are others who do though. I was diagnosed at 19 with what my doctor thought was acute myo anxiety, problem was my symptoms are anything but acute. I am in my 27th year of having this condition or disease or disorder. I treat it with a variety of lifestyle techniques, I make sure my diet has mostly fresh food nothing processed, nothing with lots of dyes, preservatives, fatty foods or high amounts of sugar & fried foods. The salt also left my diet I use Salt Sense and swear by it because I developed HBP at 40. I also have a Hypothyroid, so I take 3 maintenance medications, 1 for each condition. Daily stretching followed by mild exercise like walking or swimming when I can helps a great deal but I am always looking at the new information available to see if there is more that I can do. Besides pain points sensitivity I also have deep pain in my back, abdomen, shoulders, neck, poor sleeping patterns, regular fatigue, sensitivity to hot & cold and most uncommon my muscles get spasms all over my body. As if this isn't the worst when my symptoms onset I also find I have periods were my muscles do not operate like they should as if they are over used and have no strength in them. Look for fun things to keep smiling like most of you I have bouts from time to time with depression. What do you do to live daily with fibromyalgia? Let's share so we can each benefit from what each other is doing to live with this condition, because over the years I have been an FDA Ginny Pig for medications. I want a good quality of life without having to be a test dummy for drugs. I taught myself how to deal with fibro fog so I can continue to work everyday since Social Security does not recognize Fibromyalgia as a debilitating condition. I refuse to be labeled depressed because I work and care for myself. Most of the time I am emotionally and physically spent & it seems as if I am the only one who cares however I am private about my condition because of the stigma society has put on Fibromyalgia. Some of my symptoms have worsened over the years and I am concerned that the day will come when I am no longer able to care for myself & that scares me to death for this is about the only thing I am afraid of in life. If the doctor on this page is reading please tell me what happens in the long term with Fibromyalgia do we know yet? Please I need to know.View Thread
Jodistarr, I wish I could tell you that it will be over with soon unfortunately it is not the case with this condition. All most of us do is keep trying things to manage our symptoms until we find a regiment that works. Take care of your self and we will see you soon.View Thread
Hi Crazydoxymama, I use some techniques I developed as years went on and you are correct fibro fog is a very difficult symptom to live with. Some of the techniques used to treat memory in Alzheimer patients is helpful. Memory games help the brain is much like the rest of our bodies use it or loose it. Also short naps can help, something I do regularly because my fatigue levels can be very high at times and I could either fall asleep off my feet or I get insomnia so badly that all the prescriptions in the cabinet are not going to knock me out. Sleep or just resting, clear your mind of all thoughts and meditate. During meditation focus on one thing, something you love or a place you enjoy. The more you train your mind the less fibro fog affects you. This is not something that is on overnight cure it takes time and patience to develop, but please be patient with yourself it will come in time. When you get very good at meditation you can go places in your mind that allows you to loose the sensation of your body. Staying organized with a system that works for you helps also. For instance I always read a book at least twice, that way I capture and retain more of the information. Anything that you know yourself that keeps your focus and concentration will help you if done on a regular basis. You can ask your health care provider if they recommend any exercises you can use for your brain. Like you my symptoms worsen each year. the fog gets thicker, the pain gets more intense especially at my pain points of which have 2 new ones acting up. To make matters even more complicated I have a rare symptom that only about %3 of fibo suffers get and that is muscle spasms. without medication I will begin to spasm so intensly that I have to lay down on the floor away from furniture just like A grand mal seizure only I am fully conscious when this happens. Hang in there because it is an uphill battle daily for all of us with this condition. When I am flipping around on the floor in pain avoiding the furniture people tend to believe finally that it is not in my head. Like you humor and prayer has gotten me through as well. I have asked God to please take this from me, now I think it is my cross to bear in life. If you try meditation and memory games and they begin to work please post. This way others will have this information and together we can all live with our fibro. Take careView Thread
I have had fibro since 19 I am 48 now & this is what has helped me. I am also one tough cookie just like you & a women. I just refuse to let it beat me. If you do truly have Fibromyalgia Alcohol causes flare ups not when you drink it is a residual effect within the next 24 to 48 hours. Energy drinks will make you ache also. Stretching works lots, in this case no pain no gain. Quit eating artificial ingredients, preservatives or dyes. No fatty foods this means you just took all the fast food restaurants off your plate. reduce or remove sugar. I have found allotting myself a small nap mid day helps the fog & fatigue. About 1 hour to 2 hours works. Remove the nightshade vegetables like tomatoes & peppers. go out of your way to find laughter & have fun. Upset causes flare ups just like stress. As for the pain, I take Tramadol, I found my best treatment has come out of a community clinic. Why? because like you & so many of us, no insurance, ER s are expensive & the doctor always starts from scratch. At a community Clinic you may be very surprised by the fact the doctor will actually have heard this from other patients. Most people see an arthritis specialist, I have & been to the ER & had an internalist, a pain specialist, an arthritis specialist, family doctor, & a neurologist as well as a gynecologist who thought it was hormones. Obviously he is wrong, you are suffering & do not have problems with female hormones. My current doctor is through the community clinic here we call Fetter.View Thread
DolorDolor to answer your question I have discovered over the years that those community clinics that everyone thinks only the down trodden use actually seem to know more about treatment for Fibromyalgia than any of the specialists or hospitals seem to. I can not say I am pain free, but I currently take Klonopin 3 times a day & Tramadol 4 times a day, these 2 control my spasms, pain to a tolerable level. Nothing helps the fatigue though, just watch what you eat keep everything fresh, no artificial dyes or coloring, loss the sugar out of your diet restrict the salt & control your gluten intake . Try not to consume stuff that the ingredients sound like a chemistry lab. The nightshade family of vegetables in my experience does flare it up as well as stress & cold. I have had less fibro fog from watching what I eat, I believe. Especially if I add honey or bee pollen to my diet.Stretching & walking are my 2 main exercise patterns. My best advice to anyone living with fibromyagia is that you are indeed living not dying, take everyday one day at a time, laugh as much as you possibly can, helps to keep you from getting so depressed. I go out of my way to find some way to make myself laugh. Learn to control your negative feelings like anger, it seems that when I get angry or upset about something it kicks the condition off. I wonder if there may be a correlation between the chemical emissions of the brain & hypo thalamus during periods of anger & upset that contribut to the severity of the flare up. For fibro fog it helps to train your brain, utilize memory games or play a game boy get some nice computer games,. I use games that make me find things or spell, remember were the matching item is or require strategy, similar to the ways they treat Alzheimer patients so they don't forget. After all, the brain needs exercise also. Web MD has had some wonderful articles about Fibromyalgia & the doctor on this page not only treats it he is also a fibromyalgia sufferer. Good Luck to you & keep your up the great work.View Thread
I am very happy to hear that you are inspired to live more & get out & try to do as much as you are able. It is very difficult for you, me & all of the wonderful people in this discussion to live a better quality life. Please remember the discussion community is here and we are a large group of people living with the same things you are, I always find it comforting to know I am not alone against the world.View Thread
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