I loved this book too when I read it... so worth buying. You might also consider signing up for an e-newsletter from Medscape.com. It is mainly for the medical community, but you may be able to access it as well. "Fibromyalgia" is on my topic alert list and I get an email whenever studies are presented in medical journals or at conferences. Very interesting and could give you some "ammo" for your MD's and specialists as well as friends and family. Hugs, LianaView Thread
I've never had a urinary tract or yeast infection, but my husband has had both (gastrointestinal yeast infection). What worked for him is going to a naturopathic doctor and changing his diet to drastically reduce sugars (natural & processed) and anything fermented or raised with yeast. He now only eats natural sourdough bread, no processed sweets, and only two fruits a day. It works. He also took a supplement to kill off the Candida Albicans overgrowth (available at any health food store.)
Not to be nosy, but if you have a male sexual partner(s) they need to wear a condom or you will get reinfected often. You don't need to comment on this of course. It's just something to consider - our own docs told us about this one. You can keep reinfecting each other especially if your internal flora are out of whack as they will be after serious antibiotics.View Thread
I found something very interesting today in an e-newsletter that I get from Medscape (I am signed up since I was a Rehabilitation Assistant before FM.)
At the 23rd Annual Meeting of the AAPM they discussed a study (presented on Sept 22) of an experimental non-invasive cortical electrostimulation to help the brain "deal" with pain messages. The study had a followup of two years and 76% of the subjects got off meds and had improved tenderpoints, general pain scores, and sleep. Here's more info in a link: http://www.medscape.com/viewarticle/772012?src=nl_topic
It might be worth printing out and taking to your physicians. I'm not sure what costs may be involved in the US as I am Canadian. Good luck, tell me what you think after you've read it.View Thread
Just a thought about Fibro headaches - Trapezius muscles in our necks reach up quite high with connective tissue over the top of the skull and around the eye sockets. We also have jaw muscles that can be affected - TMJ probs are rife in FM. So the head aches are likely related to the sore muscle issues as opposed to the blood vessel constriction/dilation issues of migraines. I seem to get them more on the left side of my head and face but that could be due to the damage to my neck from a car accident many years ago. Anything like that will come back to haunt you later in life lol.View Thread
I've had FM for 2 1/2 yrs and my primary care physician is an MD who is into natural health solutions and alternative care therapies too. (I also have a rheumatologist because I also have arthritis in my back, neck and ankle, but go there only if I need to) I find the base for how I feel on a given day is very much how my sleep was the night before. I take Sleep by Genuine Health - "a naturopathic formula inluding 5-HTP to promote and improve sleep." I also make sure I wear earplugs as soon as I get into bed because I seem to be quite sensitive to sounds (& light - not uncommon for FM'ers). In the morning I take Red Reishi mushroom extract by Purica for energy as well as Co Q10 to support the mitochondrial energy systems which do not work optimally in FM, and my usual multivitamin. I haven't had to take any traditional drugs and hope to continue that way. I also find that I have to eat gluten free, and avoid dairy to have a comfortable and calm digestive system.
On good days I go workout on a circuit weight system and on "bad" days I do a 20 minute stretching program plus a self massage with a roller ball massager. I try to move every day, and do something which I consider productive every day even if it's just getting up & dressed and making the bed (on a bad day). On work - is there a place you can go on your lunch hour to close your eyes and breathe or dream like a park or indoor lobby with fountain or fireplace to stare at? That will help calm you and rebalance your feelings so you don't get as stressed which also adds to the symptoms. Hope this helps View Thread
I also have been in a car accident myself (rear-ended too) with almost no damage to the car but a severe combination of lifting rotational whiplash that did not show up for a couple of days. Speaking as a physical rehabilitation assistant, it is true that the soft tissue injuries can take a couple of days to really affect you.
When the force applied to the vehicle does not dissipate by damage to the car, it affects the occupants instead. That is why almost all new cars these days are designed to be totalled while still protecting the passenger cabin.
Of course, the increase in your pain sensitivity due to FM would make things feel even worse. You should definitely check with your doctor for physio/rehab for your accident and get as much help including massage therapy and possibly chiropractic treatment to realign your poor spinal column. In the meantime use ice to relieve pain and any swelling, not heat.View Thread
Hi Courtney2618: I am 48 now and after a very busy life as a fitness instructor/outdoorsperson/physical rehabilitation assistant I was diagnosed two years ago with FM after a serious viral illness. I already have had family diagnosed years ago with FM (aunts and cousins) and also my brother has a rare disease that is similar to lupus. From what I have been reading in the research articles (you might try checking medscape.com) it definitely is tied to genetics - if you have family with it you are WAY more likely to have/get it yourself.
At first I could not walk a flat city block, but now I even go to my local Curves gym and hike a bit, canoe some, and cross country ski. I am not taking any medications (my choice supported by my MD who is also into natural and alternative therapies). I have tried magnesium malate and extra calcium but they have not worked for me. I do take a megamultivitamin, CoQ10 (for the problems with the energy system in the mitochondria - helps my fatigue) and Red Reishi (a fungus extract that helps for energy balance). They seem to be working for me. I only seem to wake up at night when I have to turn over/change positions and then I generally fall back asleep quickly. My main problem right now is staying on a gluten-free diet (my IBS symptoms are almost nil if I do this) as it also lessens my muscle pain and trigger points. I also am having issues with cognition and I've always been an A student, even in my physio classes. Aargh, makes getting and keeping a job an issue right now.
Sorry I've been so wordy...perhaps there are some ideas and info you can take from my post. Best wishes on your FM journey.View Thread
Hi: I'm thinkin' it's maybe more the humidity 'cause I do much better in our summer 34 C (95 F) weather w/o aircon than in our winter with snow and -10 C (10 F). Nothing better than to lay in the shade and soak up the warmth! BTW I live in South Central British Columbia, Canada (400 miles NW of Seattle for those of you who haven't the faintest clue what I'm talking about View Thread
Hi all: I know I am in a very different situation from almost all of you since I live in Western Canada and don't have to worry about doctor costs and most standard testing. I just want to remind you of a couple of things: 1 - You are hiring the doctor...he/she is your "employee". Take charge and find an "employee" who doesn't think they are the know-it-all boss. Don't be subservient...it doesn't work and you demean yourself and it's depressing. 2 - You must agree based on the "employee" principle that if he/she isn't able to do the job they are "hired" for, it is only fair of them to tell you this and suggest you find a different "employee." Docs are not Gods. They are only human and often don't have all the latest information for all the issues their patients have. BTW I do have a good MD who is also into Natural treatments and does know about FM. I don't get an appointment with my Rheumy til Nov. but I know that since FM is my only issue healthwise and it does not damage joints (although there is definitely muscle pain) I will keep moving so that I do not become weakened and unable to move in the meantime. Good luck to all.View Thread