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I really hope that you find some relief in all of this!View Thread


Have a great week!View Thread

I'm 38 years old. I'm tired. I want my life back. I want to feel like I have value and purpose. I want to wake up excited for each day. I want to go downhill skiing with my children rather than watching from the lodge. I want to be on the tube splashing through the water rather than watching from the back of the boat. I feel such guilt with accomplishing so little each day. It would be so much easier if this diagnosis required a cast or crutches.....almost as if it would be more accepted.View Thread

Along with terrible joint pain, I cannot tolerate the heat - my body swells (mainly from the thigh down) severely - to the point of not being able to wear shoes. I will literally have no ankles on a warm summer day. Exercise increases the swelling.
When this started three years ago I wasn't able to walk down the stairs from my bedroom - I would use heating pads for hours to allow me to slide slowly down the stairs on my butt. My ankles touching in bed would just about send me through the roof with pain. This intense pain lasted for about 4 months after which it calmed down and never got that severe again - but the joint pain affects me every single day - my head if turned in one direction for any period of time, will get literally stuck there.
I am constantly fighting hives and red warm itchy patches on my body - legs, hands, abdomen.
I get winded so easily - the smallest tasks put me out of breath
very painful to roll over in bed or to get up from a chair - always - it doesn't come and go - it is constant. Not only do my legs swell when I've been sitting too long but they forget how to do what they are supposed to. I was using my left arm to push my leg forward at a restaurant a couple of weeks ago - I couldn't make it go - it's so embarrassing.
My balance is off - I will fall over if I close my eyes in the shower. I cannot walk through a store without pushing a cart for fear that I will wobble into something.
I can't make my hands grip things - it's not really a matter of strength as much as they just don't seem to cooperate - my mind says to grip tightly and my hands don't do it.
Things like not knowing how to turn a water faucet on or spitting my mouthrinse on the floor because "time is up" are driving me crazy!!
When I look in the mirror parts of my face, through my vision, will be almost vibrating / wiggling....
I don't know .....I guess I don't even know what answers I'm looking for on here - I'm 38 years old - I feel like so much of the 'physical' part of my life has been taken from me - and yet my mind is out water skiing and hiking with my kids. I don't know who to ask for advice or where to turn with this. Is this FM? Do these symptoms fit into my diagnosis? Am I grasping for hope that it's something else that is fixable?View Thread

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Anyone else deal with this?View Thread
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