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Last night I was mad! Mad that I have this awful disease that limits me from participating in activities that I once SOOOO LOVED!
It's really hard to care for my 10 month old Especially where he's crawling and starting to walk!
I ask my eight year old for help. And that in itself is sad also cuz he should be concerned being an 8 yr old not having to help care for his lil brother....that's what get my goat!
I just want to be "normal" again! I want my old life back!! This is my life sentence.......yeah......
(View ThreadTake the Poll
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I have a sticker in my vehicle28% (18)
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I have a sticker BUT only use it when I NEED it.29% (19)
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Wish I had a STICKER but DON'T37% (24)
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Looking into obtaining a Handicap sticker6% (4)

I was wondering, how many of you out there have a "Handicap" sticker (the ones you hang from your mirror) in your vehicles?
There are days I wish I had one. I'm not sure how to go about getting one. Who do I ask or how "handicap" do you need to be to have one?
Let's do a Poll!View Thread
Take the Poll
Poll Results
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I have a sticker in my vehicle28% (18)
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I have a sticker BUT only use it when I NEED it.29% (19)
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Wish I had a STICKER but DON'T37% (24)
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Looking into obtaining a Handicap sticker6% (4)

So is my employer asking me,in a nice way, to bow out BEFORE I'm thrown out?
My supervisor says that I could still get unemployment for having to leave employment due to a medical condition. Unemployment doesn't quite cover all the bills.
I guess I hate to face the fact that I am no longer employable. Is that the correct word I am looking for?
How do I go about filing for disability? Will I be fighting that for years on end? I hate that word, "Denied"! I even looks bad typed out!
OUr rodeo is coming up next week and I am in charge of the Gates (where people pay to get in) and I don't know if my body can hang in there for the whole weekend.
Last year I was eight months pregnant and didn't have all the symptoms of Fibro. But Fibro is back and with a VENGEANCE! I hate to let our committee down BUT we will see when that time rolls around.
LIke you said, "Listen to your body".
I also (on top of everything else) have carpel tunnel syndrome in my left hand. I go in the 17th for that electric nerve test but more than likely I have to have surgery.
What I was wondering is IF this surgery will make my fibro worse than it already is? Can it get worse? Hope someone, ANYONE out there can help me with all my questions.
Thanks "Angelswife" for your response.
Mitz in IdahoView Thread

-Mitz in Idaho-View Thread

I am so sorry for what is going on with you...How old are you and what do you do for a living-other than live with Fibro?View Thread

Well, she explained to me that due to my excessive absences, due to my illness, maybe I should concentrate more on my health. I explained to her that I have good days but more bad days. She said she fully understands (due to the fact that her sister has Lupus) but at the end this is a "business" and they (the company) needs me here.
So, in other words, I need to hit the road!
I am a receptionist at a police dept. here on our reservation. It can get busy but the majority of the time it is slow. Yes, I am the first person that the community see's-cool, but it's not like I am the only person up front. I work with and in the records dept. and she can easily be at the window in like a few seconds. But I do see her point of view.
I did look into short-term disability, but she (my supervisor) asked if I would come back from that short-term leave at 100% effective and ready to work. Soory chica, Fibromyalgia is CHRONIC, I explained to her. I am no longer 100%. Don't get me wrong, I can get my butt to work on time but when I'm in pain, I'M IN PAIN!! It's hard to get people to understant our pain. So I guess I'm gonna stay here as long as I can. I have the time for the leave it's just that my supervisor needs me here. Understandable.
I've been putting in for different jobs, I'm just waiting to here back for an interview.
So I'm hoping I get this one job that's a Supervisor position. I know, I'm pressing my luck, but I have to try. I can't imagine NOT WORKING! This job does a lot of walking. Whew, that just sounds exhausting. LOL!
The supervisor's don't work the graveyard shift but they may have to work till one in the morning. Great cuz that's when I usually start winding down!
I just can't be let go from a job-AGAIN! My last job let me go due to my illness. BUT since I work on a reservation, we are considered a "sovereign nation" so the outside worlds' rules don't apply to us on the rez. We have our own rules. Sometimes I think the rules are made up as we go along. That's just me....
)What should I do? Stay till I have to be thrown out or bow out with what dignity I have left?
I told my supervisor I do plan on being here, but my body says something else.
Lemme know what you think.. -Mitz in Idaho-View Thread

Is it true that if you have FM now that you will likely be Dx or your body will develop Lupus later on in life??
Hi everyone! Happy Monday. It poured really hard this morning and left us this afternoon feeling muggy-Blah!
This past Friday I was not feeling well at all! I was achy all over-from head to toe!
I went home a half a day early and went to the clinic. Found out I had strep throat! Got a shot in my hip!
Then, later on that night, I couldn't move or walk without assitance from my walker. Finally around 10:30pm my hubby took me to the ER and the doctor there asks me where I hurt. I told him that the pain was from head to toe! That I have Fibromyalgia.
Then he did the most awfullest thing a doc can do-he grabbed my shoulders and squeezed! "Does it hurt when I do this?! I just held my breath! He caught me off guard! It was like he gave me a death grip, like the one that Cptn Kirk would give an alien! Yeah those ones!
I just buckled over and (still holding my breath) nodded my head "yes". After he noticed that his grip was painful, he let go and I finally caught my breath and just cried!! He apologized. Then he ordered me two shots: one for the pain (DILAUDID) and the other for nasea (Phengran).
I thought "Holy Hannah, didn't I just tell him I was in pain ALL OVER?!" I so wanted to die right there in that ER room that night.
Well, the pain wasn't over just yet. The two shots, I thought for sure, were gonna kill me! His death grip was nothing compared to the two shots I received!
After all was said and done, I was sent home....I left the hospital battered, bruised and poked. At last, I was gonna receive some relief!
I cried myself to sleep that night. Not only from pain of the "death grip" and the burning shots but the thought of MY Fibromyalgia being hereditary and that my two little boys MIGHT develop Fibro and them having to live in pain like mommy.....That, in itself, is heartbreaking.
They are the ONLY reason I keep on keeping on. If it weren't for my boys, I would have DONE myself in a long time ago-like when I first got diagnosed!
-Mitz in Idaho-View Thread

My neice keeps telling me to move to Arizona "the OLD people seems to like the weather!" was her exact words.
"OLD"? Who does she think I am, my mother?
I'm only 36-almost 37 next month!
But I must admit that some days when I try and get outta bed (on my bad days)I do feel like I'm 90! No offense to anyone in that age category.
The state I would like to live in is Washington! I fell in love with Marysville when I attended a Conference there! It was so lush and green! And the ocean isn't far from there! That's where I'd like to live. If I could....
MitzView Thread

(((Soft Hugs))) -Mitzi-View Thread

Mitz in IdahoView Thread
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