mymrt, i totally agree with everything you said about the process! i started going to a chiropractor when i was 14, was diagnosed with fm in my early 20s, and had a hysterectomy when i was 32. degenerative disc disease , i can't remember what all. i thought that the drs must be right....i was just a crybaby. my primary dr finally got tired of hearing the same old complaints from me and sent me to a shrink. i was 36 the first time i applied for ssi, of course, i was turned down. i reapplied and was turned down again. i got so disgusted that i gave up. three or four years later i had to try again so i'd have something to live on. this time, with a lawyer, and after a year or so, i finally got it! when i applied for food stamps i found out that i was elligible for a grand total of $15 mo! whoopee!! i told them they could just keep them. after a couple of years my shrink said there wasn't anything more he could do for me and to just have my primary dr write my meds. lo and behold, i got a letter from ssi that they had new info that i was all better now and didn't need them any more! i filed an appeal and one of their drs (at least 80yrs old...no kidding) had me strip down to my panties and a open-back gown and walk across the room and bend over in front of him....exam done! the other dr had me repeat 4 numbers for him. the only other thing i could remember him saying .....over and over..was that "this is just a random type thing, we just need to have a face to face meeting to make sure that you're who you say you are'. yep, i was all better!! i filed another appeal andit took me months to get straightened back out. it's bad enough to feel the way we do, let alone, get treated like a criminal when we try to get help. whoo! i went off didn't i ?? sorry. but i do feel some better. lol!View Thread
hi Jeff, i'm also new to this community and it's been a Godsend! i don't feel like the lone ranger anymore. fm has a fitting name here - the Dragon. i also have many other ailments, one of which is bipolar. i take lamictal and lexapro for it and i think maybe they have helped with the extreme sensitivity to touch.used to be, when i'd go to bed, i couldn't stand for the sheets to touch my skin and my legs would jerk like crazy. that has slowed way down. i don't know if those meds are what's making the difference or not, but i'll take anything i can get! i'm glad you found this place to come to. this is a real community where you'll always be heard and understood. best wishesView Thread
was just reading some of your funny "fibro moments". here's one of mine, i just recently remembered something i used to do when i was a young mother to help cope with stress and pain. 1) choose a word or phrase that you can associate with relaxing 2) picture yourself in a relaxing place ( i know this might require a big imagination lol ) 3) lie down, close your eyes, take a few slow, deep breaths and slowly repeat your word or phrase over and over while you push your pain and tension out of your body from the part in your hair down through your body and out the tips of your toes. kinda like pouring warm water over yourself from the inside out.
talk about a fibro moment - this one lasted for years!! but, this really does help me (when i can remember to do it!) good luck and GOD BLESS YOU ALLView Thread
hi everyone, i just joined your group today. i hate it that there are so many others that suffer with this, but, at the same time, i kinda feel justified that i'm not the only one that can't get things done the way i want to and can't remember much of anything. like so many of you have said, people who don't have FM really can't understand what we live with EVERY day. i have lots of other physical conditions plus depression and, even the people that know and love me the best can't understand why i'm the way i am. my husband and i have been together for 12 yrs. in that time, i've went downhill a pretty long ways. he thinks i've just lost interest in keeping our home as clean as he wants it, in making sure that i got the bills paid, in keeping the checkbook up-to-date and ballanced. you'd think i mess up all the time on purpose! i don't want anyone feeling sorry for me ( i do enough of that for myself, lol ) . but, since my mother had a stroke in July '08 i've been taking care of her. God Bless her, she's a wonderful woman! i wish i had 1/2 her strength! we live next door so i'm there from 7am til 4:30 or so and then i go back down 2 or 3 times of an evening. by the time i get home i just want to sit and relax and enjoy being in my own home. i wish i had a way of making him understand that i want to do better but i just can't make myself. i give reasons for why i'm like this but he just sees them as excuses.
well ! it does feel good to vent, doesn't it?? thanks for listening. God Bless and Keep YouView Thread
agree with you meme. you've given alot of good tips! i'm 52 and was diagnosed with fibromialgia in my 20s. i have a couple of things to recommend also - Emu Oil and "Blue Goo" (no kidding) which contains emu oil. walmart used to sell the blue goo @ $5 but ,since they've revamped their stores, they just sell "blue-emu" @ about $15. i bought some and tried it. i returned it and got my money back. i might as well have used hand lotion! emu oil is good for all kinds of things. lots of info on the internet. i've used it for everything from toothache to sunburn. it's a pain releiver and also helps carry pain releiving rubs deeper into muscles. i found the blue goo at Big Lots for $5 and bought all they had out! i hope this helps someone else. good luck!View Thread