mymrt, i totally agree with everything you said about the process! i started going to a chiropractor when i was 14, was diagnosed with fm in my early 20s, and had a hysterectomy when i was 32. degenerative disc disease , i can't remember what all. i thought that the drs must be right....i was just a crybaby. my primary dr finally got tired of hearing the same old complaints from me and sent me to a shrink. i was 36 the first time i applied for ssi, of course, i was turned down. i reapplied and was turned down again. i got so disgusted that i gave up. three or four years later i had to try again so i'd have something to live on. this time, with a lawyer, and after a year or so, i finally got it! when i applied for food stamps i found out that i was elligible for a grand total of $15 mo! whoopee!! i told them they could just keep them. after a couple of years my shrink said there wasn't anything more he could do for me and to just have my primary dr write my meds. lo and behold, i got a letter from ssi that they had new info that i was all better now and didn't need them any more! i filed an appeal and one of their drs (at least 80yrs old...no kidding) had me strip down to my panties and a open-back gown and walk across the room and bend over in front of him....exam done! the other dr had me repeat 4 numbers for him. the only other thing i could remember him saying .....over and over..was that "this is just a random type thing, we just need to have a face to face meeting to make sure that you're who you say you are'. yep, i was all better!! i filed another appeal andit took me months to get straightened back out. it's bad enough to feel the way we do, let alone, get treated like a criminal when we try to get help. whoo! i went off didn't i ?? sorry. but i do feel some better. lol!View Thread
hi Jeff, i'm also new to this community and it's been a Godsend! i don't feel like the lone ranger anymore. fm has a fitting name here - the Dragon. i also have many other ailments, one of which is bipolar. i take lamictal and lexapro for it and i think maybe they have helped with the extreme sensitivity to touch.used to be, when i'd go to bed, i couldn't stand for the sheets to touch my skin and my legs would jerk like crazy. that has slowed way down. i don't know if those meds are what's making the difference or not, but i'll take anything i can get! i'm glad you found this place to come to. this is a real community where you'll always be heard and understood. best wishesView Thread
hi everyone, i just joined your group today. i hate it that there are so many others that suffer with this, but, at the same time, i kinda feel justified that i'm not the only one that can't get things done the way i want to and can't remember much of anything. like so many of you have said, people who don't have FM really can't understand what we live with EVERY day. i have lots of other physical conditions plus depression and, even the people that know and love me the best can't understand why i'm the way i am. my husband and i have been together for 12 yrs. in that time, i've went downhill a pretty long ways. he thinks i've just lost interest in keeping our home as clean as he wants it, in making sure that i got the bills paid, in keeping the checkbook up-to-date and ballanced. you'd think i mess up all the time on purpose! i don't want anyone feeling sorry for me ( i do enough of that for myself, lol ) . but, since my mother had a stroke in July '08 i've been taking care of her. God Bless her, she's a wonderful woman! i wish i had 1/2 her strength! we live next door so i'm there from 7am til 4:30 or so and then i go back down 2 or 3 times of an evening. by the time i get home i just want to sit and relax and enjoy being in my own home. i wish i had a way of making him understand that i want to do better but i just can't make myself. i give reasons for why i'm like this but he just sees them as excuses.
well ! it does feel good to vent, doesn't it?? thanks for listening. God Bless and Keep YouView Thread