This is a poem that God gave me, I shared it with my friends at angelhugsministry.com and they've encouraged me to continue to allow God to work in my life, whether it be a poem or helping someone in need. I go through the same things as everyone else, just remembe prayer works and altho we see only part, in eternity we will see all. Here's my poem, hope you enjoy.
You Say Its Hard To See
You say its hard to see my hurts because there is nothing you can see. No cast, no bruise, no bandages on me. Let me share with you the secrets that are within me. I worry of the pain i'll have when i do awake, I wake up to the pain, my muscles or a headache. My fears are rooted deep down in my soul, Will I be able to get through all this as it takes its toll? Fibromyalgia, what a crazy name, rarely even heard of it, much less speak the name! Stay positive, eat the recommended foods, and take the right dose, Try to stay focused on the things that mean the most. What? I asked did i do to bring this on? They really cannot tell me, just my muscles are a time bomb. Wishing that I had done more, now that I have to be careful what I do, What will set it off? Cleaning, playing catch with the ball, or going to the zoo? I hurt in my shoulders, my back, my legs, my neck, I feel like a hypocondriac because I am just a wreck. My family can't understand, they can't see the pain, but they try. They know its gotten really bad when I go to my room and cry. I'm not looking for sympathy or someone to say 'poor you', Just trying to help others understand and trying to help get you through. Somedays arent so bad, you almost think that your okay, You'll probably over do it and take advantage of the day. And you will worry about tomorrow if you know you've over done, But the Word says not to worry about tomorrow as today has enough worries of its own. So enjoy the good days as if they'll never end, Toss the ball, give lots of hugs, love your family and friends. I'll end this poem now as my fingers are going numb, Not all of them, just the middle two and my thumb. Pain, sadness, hopelessness, anger, frustrations, confusion and fear are all a part of this. And yes, sometimes just feeling blue. This is not all of the the symptoms, only a part of what fibro sufferers go through. So love them with the love of God and do your best to do your part, Because every little bit of help and prayers will so touch our hearts. Trust in God and lay all your troubles at the alter, I promise as God promises, He will see you through. Life is short. Pray hard. Penny SimpsonView Thread
I want to cry reading the discussion tonight, fibromyalgia has such extremes, it seems. A lady at my church told me 'i have it and you can manage, just take tylenol'. When she first told me i had just been diagnosed and the pain i was in, tylenol was not gona help me, i knew. Since then i take lyrica and cymbalta and hydrocodone and all the research i've seen says pain meds don't help but i told my doctor i don't know where they get their info but pain meds DO help. When you are hurting, you get to the point to 'whatever works'. I dont care if i get addicted at this point, i'm just like millions of other women out there. I'm missing some of the most precious times of my life, my childrens lives, and my grandchildrens lives and i feel like people could care less some times, and some times i even think we would all be better off if i would die. Sure they would miss me but they would carry on, they would have too. I just hate that my children and grandchildren will remember me as a person in pain for the length of my 'golden years'. I'm going to the dr tomorrow because now i have a sciatic problem or i think so anyways so now its just another problem. I think the medical community has a long way to go but i hope they get there shortly. Don't think i'm depressed and want to die or kill myself. I'm not going to do that but if anyone with fibro has never thought it, they'd be lying. I would just prefer to be in that beautiful heaven i hear about as opposed to taking pain meds, muscle relaxers, lyrica, cymbalta, tried dlpa (good results by the way), up to 14 or 15 pills a day just to get by. And that isn't a drop in the bucket to what some friends of mine take, one takes 30, of course she has a lot of other problems to go along with her fibro. I guess I should thank the Lord I haven't got all that too... I have joined a support group and it is very helpful, and informative. We try different foods and encourage members who can't come. We DONT sit around and talk about what all is wrong with us. We are currently reading Coping with Chronic Illness, we have special speakers and everyone is free to share. It is biblically based as well and the love of God is always reigning. Besides, whats not to love about a bunch of woman getting together and having a good time?? Just wanta say i love WebMD for this site, I am constantly checking it for new info and my support group has a website is called angelhugsministry.com One thing i have learned beyond a doubt is that this illness is not textbook, for every person that has it, a different treatment works so lets all try to work toward a cure, I volunteer to be the first!!View Thread
Thanks for your response MiMi....and ditto to most of your comments.
My support group does actually use info from webmd....it is an awesome site. Angelhugsministry.com is our web and we have many women (and a couple men) from all over the world who are members.....even some that are well that just support us attend our meetings....I understand they are working on having live web meetings in the works. We just partnered with a church from Africa, so go check it out.
Unfortunately I was having a really bad day when i vented my post but the dr visit got me a shot (steroid), inhaler and he told me to lose some weight.
No blood work tho as it cost 350,00 that we don't have so we stay with treating the symptoms
I'll trust the Lord to get me through it whatever happens.
Pixe5, I havent been diagnosed but I do take meds for chronic pain and experience a lot of fibrofog as well as fatigue and support in this is very minimal. I have found a ministry that is supportive to everyone with (also supporters of) fibro, ra, or any chronic illnesses. This group is awsome and biblically based so check it out. And this goes for anyone that might be interested. I'm not involved in the founding of this ministry so dont think it is a plug for me, its just getting the word out for sufferers like you and me that have no one to talk to or anyone who understands. Believe me, I know. The ministry is angelhugsministry.com and Lynette is a God-loving woman who has a calling for women like us and truly believes in the power of prayer!View Thread