Hi Jan, and it's good to hear you sounding cheerful. Isn't it wonderful when the toxic people in our lives go away for a while? LOL.
Be careful out and about! It does sound like a cane is not enough to rely on. I know the wheelchair is cumbersome. How about using the walker instead of the cane for quick, short walks? No good falling down
Have a great visit with your daughter. You have such wonderful family members.View Thread
I have found each doctor to be unique in what they like from me. My pcp likes my hand written lists and asks to have them and go through each item! She recommends I keep a notebook with all labs and bring it each time so she can get copies of anything new that might be there from a specialist. She has other patients who do this for her. She has been my pcp for many years and she has helped me through some rough spots.
One of my specialists seemed put-off by my organized approach and said he just uses yellow-stickys. I got the message and now bring him a very brief list of my most important questions. I've noticed little yellow stickys all over his office and his nurse uses them too! Maybe I'll bring a bunch of yellow sticky notes in a row and see if he laughs...heehee. Maybe not
Anyway, I think we need to be organized before each appointment and take notes during. It's a challenge to communicate effectively with each personality we run into.View Thread
Debbie, I'll pray for your sister. That is rough, but it is good she caught it early, as we all know. It may be especially hard for her to recover her energy after surgery, having Lupus too! I hope she will be in a situation where she does not have to push herself too early and create a new Lupus flare. Also, she should call her Lupus doctor to make him aware of the upcoming surgery in order to adjust her medications.
My feet are like yours. They are my biggest problem lately. I imagine your AS plays a role. I have RA in the feet joints and tendons. Be careful to let them stretch when putting weight on them after sitting or sleeping. I tend to shuffle until they stretch. Lately, the only shoes I wear are running shoes. My feet used to be AAA width and now the Mediums feel tight!
One thing I've found extremely helpful is a bedding spacer plus hanging my feet off a pillow. Still, some nights the Lidoderm patches are the only way to sleep.
I hope you can start dmards for your AS and find some relief. Isn't it a relief to finally find out what's been going on?View Thread
Me either! Last time I wore makeup was for Christmas with the inlaws. I used to wear it daily and wouldn't go to the grocery store without. My complexion is better now too.
I do use Dove or Cetaphil cleanser twice a day, and exfoliate regularly. During the day and before bed I also like to put a steamy washcloth on my face to wipe away excess oils and freshen up, especially during the summer.
DH is taking me out for our anniversary this week. I'll wear some tinted powder and try to fix my hair nice. I haven't a clue what shoes I can wear any more as my feet can't stand anything but running shoes. This might take some thought!
Everybody, save your 'spoons' for what matters most to you!View Thread
You are right about checking our skin on a regular basis. Anything suspicious should be shown to your gp, even if you don't have a history of problems.
I'm glad your report was good this year, BetteK. As you already know, you need to keep ahead of things, as new things can arise.
I had a good report just last week. I have had melanoma removed in 2006, so a dermatologist checks all of me, twice a year. I had a couple suspicious moles removed from my butt and back thigh two weeks ago, and they were completely normal!
It's a pain, but everyone needs to protect their skin from too much sun exposure. Our VitD gets low, but we can supplement that.View Thread