Please read and hear what everyone has said. We have been there. I remember standing in the surgery room of my veterinary office, crying on the phone to the PA, telling him if this was as good as it would get, I was ready to leave this life for whatever might be next. That is when I was introduced to Botox, which paralyzes the muscles in my neck and upper back that would rather be in rigor. I no longer have those injections because I have found a combination of massage therapy, acupuncture, supplements, muscle relaxers and pain medication that keep me going without putting a poison in my system. It takes time and some foot work and trial and error and as much patience as an army but you can find some therapy that will work for you. My family does not understand, but I am blessed with a husband who would pamper me to no end if I would let him, but the more I do, the more I CAN do. Take time for yourself. Rest when you need to. This site is a wealth of information, and most folks have to wade through it on their own to find what they will try first. Don't ever give up. Ever. We are always here to listen and advise if you so desire. It is worth it, so hang in there. Pam in Savannah, GAView Thread
Thankfully I have never experienced a seizure, but I imagine I would be equally embarrassed if that happened in public. Why are we embarrassed? It isn't like we tried to have a seizure. Heavens knows that is NOT the kind of attention anyone wants! I hope you get some answers today. Hang in there! Pam in SavannahView Thread
This past week was hard for me, too. The RA in my hands makes it difficult to do my job. The pain comes and goes, but when I shake hands, yowsa! How do you NOT shake a hand offered to you? Today at church, the associate pastor shook my hand, and it was all I could do to keep the smile on my face. He is such a nice man. I certainly could have just said to him that my arthritis made handshaking uncomfortable. I am not sure how to handle this.
My botox is wearing off faster after each treatment. It has been 3 months since my last one. The pain has awakened me almost every night last week. I cannot get in a position that is comfortable. I have a tempurpedic regular pillow and a contoured pillow. Sometimes it is better to not use a pillow at all. I guess I need to look in the toolbox for pillow suggestions.
Halloween is coming up, and there is already Christmas decorations in the stores. Christmas is starting at Halloween now instead of the day after Thanksgiving. Why do they keep changing the rules? Perhaps it is just to keep us on our toes! Here's to having a better week! Pam in SavannahView Thread
I can't recommend the Stopain spray enough! I thought it was a bunch of malarkey (thanks, Mr. Biden, for reviving that one!), but it gets me through some of the worst neck pain I've ever experienced.
FYI on the gabapentin: great drug, helps lots of folks, but causes weight gain, so be prepared for that and don't freak out over it.
Lots of good info on this site. I still don't have a 'fibro doc', but my gp, pain management, and rheumatologist have it together. I must say, I am always negative on all my blood tests for RA but because I had redness and swelling in my hand I had an MRI, and my MRI showed erosions in my joints, so I was diagnosed with RA and take plaquenil. Perhaps you might request an MRI on the joint that was swollen? If RA is untreated, the joint damage can be debilitating. Early treatment is key. Just a thought.
Brief personal history: stepson with whom I am close just got back from Afghanistan (thank you, Lord); husband is currently serving in Afghanistan, civil engineer with the US Army Corps, so not directly in harm's way (thank you again, Lord); recently diagnosed with Rheumatoid Arthritis along with the FM, CFS, cervical dystonia.
I have always been an independent person but I've never worried about FM, etc. stopping me from doing things. I work full time, take care of my house and pets, etc, but this RA has me scared. The pain in my right hand is almost unbearable today, and I have to work. I spoke with my husband today and couldn't stop crying, I'm so afraid RA is going to stop life as I know it. I've had my hand on an ice pack as often as I could this morning, and it helps. The rheumatologist told me last time that if I had to take methotrexate with the plaquenil, he doesn't want me to work because I'll be so immune suppressed (I'm a veterinarian). My immune system status won't matter much if I can't use my right hand.
I am not normally a worrier or a cryer, so all these emotions pouring out of me has me confused. I am 48, and could be perimenopausal, which could explain the tears and worry to some degree, but I can't do this for the next 5 years.
A dear friend of mine who had been a hairdresser for many years developed allergies to some of the chemicals she used in hairstyling, and even to shampoos and other products. She was in her late 40s, and she reinvented herself, went back to school to learn medical coding, and now she has a fabulous career with her new skills. I look at her and say, wow, from a lifetime of hairstyling to medical and computer skills. What an inspiration! And yet, my troubled brain doesn't see me as being able to do the same thing if need be. Ugh.
I just needed to vent and knew I could here. Y'all been down my road, I know. I don't like to dump too much because I can count my blessings most days. Today just isn't one of 'em. Well, lunch hour is ending and I must get back to work. Say a little prayer that I might get through the afternoon without a red nose and eyes!
Got it. Hopefully I won't have to start that too soon, because the rheumy says he'll disable me, doesn't want me catching any nasty bugs from work. Ridiculous and will likely go for a second opinion if this happens.
Talked to my pain guy yesterday, and he said nothing else for the hands. I will ask him today for a splint for my pinkie and wrist. My carpal tunnel brace does help the wrist pain significantly. I am also going to find in my budget room to visit my acupuncturist.
My stepson has been home the past couple of days. It has been wonderful having him in the house again. He leaves today but will be back for Thanksgiving. Off to work for me, and THANK YOU all so much! Pam in SavannahView Thread
Thanks! What is MTX? I have tried Voltaren Gel (doesn't work) and a compounded topical with voltaren, another nsaid, xylocaine and flexeril, which works on my thumbs but not that damn pinkie. It is that nauseating deep pain. Ugh. I was trying to clean my dog's teeth with my left hand yesterday. Didn't work too well:) I will muddle through though. My stepson is visiting, and that is a wonderful diversion. I am sadly glad to see the funky pain thing is a more common issue than I thought:) Thanks y'all! PamView Thread
Thanks, Mimi. I cannot take NSAIDs like Advil, Alleve, etc. because I have a propensity for stomach ulcers. I take an opiate, Nucynta, and I take Tylenol. I do have wrist braces left over from the carpal tunnel days, so I'll have to try that. My main pain is where my pinkie joins my hand. It isn't so much a sharp pain as it is nauseating, really different from what I have dealt with in the past. I have been on antidepressants on and off through the years, and I have considered asking to go back on, but I would rather not. Like you, my emotions were very blunted on the meds. I didn't cry but I didn't get excited or happy about things, either. Right now I'm doing okay, just that pinkie pain, but if I have a string of really bad days, I will call the doc and get the antidepressants. Thanks for the support! PamView Thread
Oops I thought I had replied to this. Thank you!! I've been on this forum for some time and have visited the resource center a good deal, but I appreciate the reminder to check that area. I have a much better outlook the past couple of days because the pain in my hands has subsided somewhat. Deep breath in, let it go isn't always easy for me, but it is good advice that I will take. Thanks again, and I hope everyone has a good weekend! Pam in SavannahView Thread