I do not have facial twinges, but because of some neck issues, I will have sharp twinges from time to time in my neck with movement. If they don't find any reason for this, talk to your pain management doctor and consider acupuncture. I know, it is a bit out there, but it really helped the facial pain I was having. Take care! Pam in SavannahView Thread
I also had it done by an ophthalmologist who does all of our local military pilots, point being be sure to find a great doctor! Like Nancy I also need glasses for reading, and my right eye could stand a revision. I do need glasses for large distances. For about 4 hours after the surgery I was painful. My eyes watered so much I was worried about getting dehydrated! No pain after that,it heals very quickly.
I say go for it. I know many people who have had Lasik and would do it again without a second thought. Pam in SavannahView Thread
Guess I am late checking in, too:) I saw the rheumatologist and began plaquenil this week. Doc said it would make me nauseated. I've been on it for 3 days, and just had a little nausea tonight, so I am glad it has not bothered me too much. He also said that if I had a flare in another joint, he would add in methotrexate, and I would no longer be able to practice veterinary medicine due to my compromised immune system. This was not much of a surprise. I have been practicing for over 22 years, but it is the only job I've ever wanted to do. Hopefully it will be a few years before I have to start methotrexate.
Doc did recommend that I get the flu, pneumonia and shingles vaccines. Do you all do the flu and pneumonia together or separately? I am inclined to have them separately. I have never had these and hate the thought of having them, but I guess I will do it. I don't want to be stupid about this.
Thursday was not one of my better days either. I wonder what is going around? I slept poorly then was busy and physical at work, I could hardly move by the time I got home. Much better today, thankfully.
Glad we've had some good things happen this week, too. My DH spoke to 'our' son in Afghanistan yesterday. Patrick will be coming home September 5th. Bill the DH will be leaving for Afghanistan August 31st, so their visits will overlap, and I will be a basket case until Pat gets out of there! Both my boys in harm's way at the same time, yikes!! Of course, Bill will be as safe as one can be and will never be in the line of fire like Pat has been, but it is still Afghanistan.
Nancy, you will have a busy and wonderful weekend. Enjoy!! And always ask for help. Sounds like you should have plenty of volunteers.
I have to work in the morning, so early to bed for me. Pain had me awake at 4 am, and once the dogs and I are up, we are UP!
Roxanne, That is great! Ultram/tramadol does not do much for me, but we are all different, so I am thrilled it is working for you.
The rheumatologist I saw started me on Plaquenil, a drug to control the rheumatoid arthritis. Mine is pretty mild right now, so this is all we will do until my symptoms progress. I hope you keep feeling better! PamView Thread
Roxanne, I sure hope the new doctor can find something that gives you some relief! Even a little improvement can make a big change in outlook. I see a rheumatologist on Tuesday (I finally had an MRI of my right hand which had severe pain and joint swelling. MRI showed erosions in my joints consistent with RA even though ALL my blood tests are negative) and am hopeful he will find a solution for some of my hand pain. Keep us posted, and keep trying to find relief. Don't ever give up! There is something, somewhere, out there than can help:) Take care! Pam in SavannahView Thread
Taylor, hang in there, girl! I am much older than you, but I also come from a stoic southern family. I am saddened that your parents aren't able to emotionally support you right now. I agree that if even just one of them is willing to learn more about FM, get them whatever information you can find. Perhaps you can check out a book from the library on FM.
Definitely be as socially and physically active as you can be. It helps the mental attitude and the body. Finding the right doctor makes a world of difference! Maybe one of your folks would sit in on the visit and listen to what the doc has to say. Worth a try.
If you can get your symptoms under control, then you have a better chance of finding a job, even just part time, that you can manage. Not only will that make you feel better about yourself, but financially you can help yourself and your folks.
Try not to be too angry or depressed about your parents' reaction. I have had more than 1 doctor tell me it was all in my head, even though they could see abnormal nerve conduction tests, etc. If some doctors still don't believe in FM, it should not be surprising that laypeople don't either. Parents have hopes and dreams for their children, and when they see that slipping away, many of them don't know what to do. Frustration and lack of understanding can lead to some pretty nasty reactions. My stepson with whom I am very close actually 'ran away' after he tried to tell his mom and dad he didn't want to go to college. They wouldn't listen, so he sold his truck and left town, not telling any of us where he went. It took my husband and me 3 months to find him. He is now happily a Marine, has a great relationship with us, but his mom couldn't handle it. He does not talk to her because of all that, and it saddens me greatly.
My point to all this is please don't shut your parents out. Give them as many chances as they need, as much patience as you can muster. Do as much research as you can to help find what will give you some relief. The toolbox on this site is great. There are also posts from other young folks. Perhaps you could start a Youngsters with FM thread:) As hard as it is, keep trying, and know that this board will always understand. Pam in Savannah, GaView Thread
Hi, Sorry you are going through all of this, but unfortunately for most of us it is trial and error to find what meds work and what don't. I cannot tolerate any of the 'usual' meds: Lyrica, Cymbalta, gabapentin. I do see a pain management doctor and I take a LOT of supplements. My pain doc has been the best for me. I take an opiate 3-4 times daily and I also receive botox injections into trigger points. The last botox round didn't seem to do much, so I am going to try it one more time, and if that doesn't work, then no more. The doctor did tell me that botox might stop working at some point. Not sure where I'll go after that.
Supplements, well, you can find all you want to know on this board. Mine include a multivitamin, additional Vit C, D; B12; folate; manganese; magnesium; selenium; calcium; CoEnzyme Q10; Sam-e (careful with that one, ask your doc); iron.
I also have osteoporosis (I take Prolia injections for that) and was recently diagnosed with rheumatoid arthritis. I hope that getting the RA under control will improve my pain level even more.
Activity is good, but some of us overdo, and can make our pain worse. I swim, walk, but there are days when I push myself and sometimes I pay for it, sometimes not. I work nearly full time.
Perhaps a pain management doctor (a good one, not a prescription writer) could help. Some folks use neurologists and rheumatologists, too. Keep looking, keep trying, you never know what might help. Hang in there! Pam in SavannahView Thread
Jan, I do not have children of my own, but my husband's youngest son, Patrick, claims me as one of his moms:) Pat is in Afghanistan right now, a Marine, and we are so proud of him even though we miss him. He should be home in September. Making a short note longer, sorry, but in one of my letters to him I was musing about his future, marriage and children, when it occurred to me that I might get to be a grandma through him. I was surprised to find that I liked that idea, and I told him so, although I wasn't in any hurry to be one:) Family is wonderful most times, and I am very happy you can find joy in yours through all that pain. Take care! Pam in SavannahView Thread
I'm from Savannah, Georgia, lived here all my life except some college years. I was diagnosed 3 years ago but have had issues for much longer. The first neurologist I went to told me the pain and numbness were in my head even though I had abnormalities on my nerve conduction tests in my right leg. I stopped pursuing treatment for a few years after that until I could ignore it no longer. The fatigue is what gets me. I come home from work and crash, and I used to be so very active. Like Caprice says, not the life I expected but the one I have, so make it work:) PamView Thread
Hi! Two years ago I made the investment for an adjustable Tempurpedic bed. Ours was very expensive because it is a king and is one of firmer mattresses. Tempurpedic has many different mattresses to choose from, some firmer, some softer and many price levels. I cannot say enough good things about ours. It is a Bella Fina Tempurpedic mattress, slightly firmer than their original mattress. I still cannot sleep on my bad side or my stomach, but when I lie on my back and slightly elevate my head and feet, it feels like I'm on a cloud just like the commercial says. This bed is warmer than others, so I added a topper that is supposed to keep you cool, and it does help.
If you have good credit, you can get 'same as cash' financing. We had 3 years to pay it off, but we paid it off early. Tempurpedics pretty much cost the same wherever you buy one. They do not have sales per se but do offer the financing. We have a chain store here called Mattress Firm who has every mattress Tempurpedic makes on the floor, so you can try them all out. Good luck! Pam in SavannahView Thread