Thanks, Mimi. I've had carpal tunnel surgery on both wrists, but I am told those nerves can still be a problem. The way the pinkie joint started was with severe swelling, redness, pain. I took antibiotics for over 2 weeks, and the inflammation resolved but the pain is still there. Part of me wonders if this is just a manifestation of FM, where I did have an infection and that is gone, but the pain response is overactive and so pain is lingering. Hopefully I'll have those MRI results this week. My right neck hurts enough that if they tell me to have surgery, I'll do it.
I had two MRIs today, one for my right hand which has had significant pain especially at the joint where the pinkie joins the palm and the other of my neck, my primary pain source.
My sadness today stems from this pain and the fear that nothing will be seen on the MRIs. I am right handed and some days this pain limits me greatly, so I am hopeful there will be something there we can fix. If they find nothing, then I just deal with it, but I am already tired of dealing with it.
On top of this, my son is in Afghanistan and my husband may have to go in September. My hubs' deployment would be volunteer. He is not military but works for the Army at the US Army Corps of Engineers. We own a house that is totally underwater on the mortgage, and we can't sell it even though the listing price is half of what we owe. The Afghanistan money would go toward paying down the mortgage on that house. Otherwise we would have to 'borrow' a large sum from his retirement fund if we did find a buyer.
My son's tour will end in September, so Pat comes home and Bill goes over. My worry for Pat seems to be increasing the closer his return date gets. He has been in the heaviest fighting seen there and has seen his best friend wounded (he is fine now).
I love my 'boys' so much. If the hubs does go to Afghanistan, it will only be for 6 months, and he will be in relative safety--will never be allowed off the base which is the same one the politicians and dignitaries use for their over night stays. Bill says he'll be safer in Afghanistan than he would be in downtown Atlanta! I don't doubt that.
I just needed to put my worries into words, so thanks for listening. Pam in SavannahView Thread
It is super hot here in coastal Georgia, too. Probably the only folks who have it worse are the soldiers in Afghanistan, where it is 115 , patrolling with 70lb packs on. My son is one of those:)
Since I tested negative for rheumatoid and lupus (again), I am having another MRI of my neck and one of my right hand on Monday. The hand has been a problem for a couple of months now, and I hope the MRI will show something. I fear I will just be told everything looks just fine, be on your way, have a good day! The days are not all that good when everytime I curl the pinkie on my right hand, I have sharp pain into my palm. My hand is also weaker, and since I am right-handed, I am limited somewhat. Like I said, my fear is finding nothing, because I would like this fixed.
I need to start some laundry, so everyone have a great weekend and 4th of July! Pam in SavannahView Thread
Guess I'm a little late for roll call, but wanted to check in.
It is summer here all day and all night! We had been having some cooler mornings, but I think those have finally left for good.
Recently a new doctor decided I needed to be tested for rheumatoid arthritis and lupus (again). All negative--again. I think an MRI of my hand is next on the list of tests. I can use it, but it hurts pretty badly in my pinkie/palm, and the strength is gone, gone, gone.
My stepson (he is more like a son than a step) is in Afghanistan, and I baked some cookies to mail to him. There is a way to send those that keeps them tasting fresh. I haven't made cookies in decades, and these cookies show my lack of cookie baking knowledge! They taste good, so off they go to the kiddo whom I love dearly.
Church today, maybe some light yardwork, hope everyone is having a great weekend! Pam in SavannahView Thread
Hi! I think you will get many different answers. Pain control for us seems to be very individualized. For me, it was definitely trial and error. I take an opiate called Nucynta four times a day most days, and at night I take trazadone for sleep along with a low dose of muscle relaxer, either 5 mg flexeril or a half a soma.
The pain doesn't go away, but the meds make it tolerable for me. I can work although I leave the heavier lifting to the youngsters:) My coping mechanisms are many: frequent breaks when I can, time alone for reading, HOT showers, easy walks, looking through my scrapbooks:)
It is important to have a doctor or two who is willing to work with you and not dismiss your illness! If you haven't found that, keep looking. It took me a few years to find mine. Take care. Pam in SavannahView Thread
Thanks, Nancy. My doc says I can have the botox every 6 months forever IF it is making a difference. I see him tomorrow, so I'll ask and will let him know the results were less than I had last time. I hope you are feeling good today! PamView Thread
Jan, I hope today is a better day. I have been battling the depression thing here lately. At least I don't have the mania to deal with:) The doctors are testing me for rheumatoid arthritis/lupus AGAIN...had some swollen joints, redness, pain!! in my right hand, and of course, I am right handed. It is much better now without any treatment, but it is still there.
I am also having unexplained weight loss. As a gastric bypass patient (over 8 years postop), I am very aware of my weight and what I eat. This has not changed, but the pounds are slowly dropping, and now some of my clients are asking me if I am 'okay'. So very sweet, but a little alarming.
So I'm tired (fatigue has been awful for the past few weeks), I'm achy, I have a poor attitude, and my husband would like his happy wife back! Not that he would ever say that, but I know I would like him to have his happy wife back, too.
You rest today, feel better, and I will try to do the same. My family has a big celebration tomorrow--niece graduating from college combined with Father's Day--so I have that to look forward to! Take care!! Pam in SavannahView Thread
Becky, I think we've all been there! It does little good in my mind, so I often do my best to count my blessings. I have a loving (if not always understanding:)) family, a lovely work environment, and a decent cadre of docs who mostly try to coordinate their therapies (I do have to stay on top of that, though!).
Here lately the fatigue has been my greatest challenge. I am working today and tomorrow, and this weekend will be busy (Father's Day, college graduation), so I have 'scheduled' true 'time off' on Saturday--nothing to do except rest and relax! I think it is important to find something that nurtures yourself, whether it is a bubble bath, a few hours with a good book, a walk with the dog or lunch with a friend, do something that recharges you.
Hang in there. In the darkest hours, know we are here to vent to and understand and that you can make it through! Pam in SavannahView Thread
Nancy, I replied to the original note as well. My first botox seemed to help a great deal, but this second round not so much. It will be interesting to see if I have it a third time. I wonder why it would quit working? Our bodies just keep us guessing! I recently had some massage therapy done, and I think it did help, so I plan to go regularly but am in a zone of multiple doctor appointments (docs are trying to tag me with rheumatoid arthritis now; tested before, negative, tested again yesterday, so we shall see--painful, swollen knucles, my dad has rheumatoid, ugh) so haven't had time to go again. Take care! Pam in SavannahView Thread