I also see a physiatrist. I have been diagnosed with cervical dystonia, a chronic spasming of the paraspinal muscles, trapezius muscles. My right side is worse than my left. My physiatrist uses botox in 20 different trigger points to paralyze these muscles. I have had the botox twice now. For about 4 weeks after the injections, I have a definite flare up of the fibro. After that calms down, I am much less painful for about 6 months. I have found that the second botox treatment did not seem to work as well on my right neck as it was the first time, so I think we may have missed an important trigger point. My insurance (BCBS-federal) paid for the first treatment. For some reason, they have yet to pay for the second, and someone at my dr's office is supposed to be looking into that. If your insurance doesn't cover it, it will cost close to $3000.
Ask about the botox, see what they say. I also find yoga very helpful, and swimming is one of the few exercises that makes me feel better the more I do it. Unfortunately I hate wearing swimsuits in public, but I get over it. I hope you find relief soon! Pam in SavannahView Thread
I don't have grandkids (yet), but I have a marvelous time with my greatnieces and nephew (3mons, 6yrs) when they come over, so how blessed you are, Mimi!
If I wake up at 4 or later, I just get up, too. Might as well get some things done. The past few weeks have been difficult for me. Fatigue has been overriding, and work has been busy, so no rest for the weary. Our son in Afghanistan has not been able to contact us for over 2 weeks (he told us he would not be able to for a while), and I worry for him. One 'good' thing about the military, if there is bad news, you get it quick, so although I know he is fine, I want to hear it from his lips:)
I had cellulitis in my right pinkie a few weeks ago, took antibiotics and the swelling and redness went away, but the pain is still there and getting worse. The hand doctor (orthopedic guy) said he would send me to an infectious disease specialist next, but it doesn't look infected any more, it just hurts a little more every day. I hate running back to the doctor when there is no visible problem. If it doesn't look infected, what is an infectious disease specialist going to do?? Annoying!
Fatigue, worry, work stress, good heavens, I feel like such a weenie sometimes, like I should be 'stronger'. My mental attitude has improved the past few days, thankfully. I think I have been worrying the hubs a good bit:) I hope everyone has a great day. Pam in SavannahView Thread
My wrists and fingers can sometimes be very painful. I have not tried the salonpas wraps, so I'll have to give that a try. My thumb joints are particularly painful, and lately I've had pinkie pain, too. My feet luckily don't bother me much. Perhaps warm soaks for the feet? Take care! Pam in SavannahView Thread
I have five dogs and three cats. The dogs range from 4 lbs to 40 lbs, and the cats range from 2 yrs to 16 yrs. There is no doubt some days the ONLY reason I get up is to take care of my furkids. They bring me peace and joy and aggravation some times! I cannot imagine life without them, although even I agree I have a few too many. Thankfully since I am a veterinarian, I get their medications and healthcare at a greatly reduced price:)
I am so sorry you are having all these pains. I was tested for everything, too, with negative results and was even told it was all in my head, something I think we've all experienced. Struggle through, look at more docs in your area so you can hopefully find some relief or at least someone who is willing to try for you.
I read somewhere that chronic fatigue syndrome (one of my ailments in addition to FM and others) will cause enlarged and painful lymph nodes. My nodes under my jaw are the ones that bother me most, but it comes and goes.
Hang in there as best you can, educate yourself as much as you can, and never give up! Pam in SavannahView Thread
There is a doctor here (Savannah, Ga) who is conducting a study on FM in children. His name is Victor Rosenfeld, and he is a neurologist. I am told he has a website, so you might check it out with google or bing. Dr. Rosenfeld made my diagnosis, but after a few visits I felt we weren't a good fit. I have a friend who sees him and is very pleased. Don't know where you are but if a doc in Savannah is studying kids w/fm, maybe there are others. Pam in SavannahView Thread
Thanks y'all! I try to watch my muscle tension, but I did a couple of times have to make myself relax, so the arm pain is likely from that. I don't feel too bad today, just a little stiffness and left over pain. Nancy, the muscle relaxer prior is a good idea, and I already decided I would bring one of my special neck pillows with me next time. Love those thermacare pads! It is interesting how often my 'diseases' cause me to make some little changes:) Thanks again! PamView Thread
Nancy, I hope you are feeling better. I am not current on your legal struggles, but it sounds like you are a pro. I hope all that work and stress leads to a verdict in your favor.
Linda, like you, I had many 'mothers'. My biological mother found me an odd child, and she never really knew what to do with me, so she wasn't always nice or nurturing. I had teachers and two of my friends' mothers who showed me what love and caring really were about. I am thankful for my mother, but I am more thankful for my 'other mothers'. All of them are in Heaven now, but I believe they still watch over me.
I never had children, but with my second marriage I gained three stepchildren. The two oldest were grown and gone, but the youngest son and I bonded. He and I have been through many things together over the years. Patrick is now a Marine in Afghanistan. I miss him so much and worry even more. He sent me the most loving letter this past Mother's Day, telling me how much he loved me and counted me as his mom. Brings tears to my eyes still.
I hope everyone here is having a good week. Thank you for sharing! Pam in SavannahView Thread
I also work, from 30-40 hours a week, on my feet the majority of that time. With all my 'problems', by the time I get home, I am done for the evening. I used to be able to come home, cook supper, walk dogs, but these days it is often all I can do to get in the door:) Luckily for me, my husband is happy to pick up my slack. Keep us posted on what the new doctor says. I am always interested in ideas for treatment. Pam in SavannahView Thread
I find yoga keeps me less painful, and I always feel really good immediately afterwards. I wish I could get addicted to it...seems exercise and I just can't get together on a regular basis right now:) I also find swimming is good for me. I start out painful, painful, but the more I swim, the less painful I become. Pam in SavannahView Thread