think i posted wrong...my post comes last and i meant to answer you wolf.....instead of dollbugs reply..maybe i just dont know how to post.....hahaha....hopefully that info helps you.....try to have a good dayView Thread
Good morning all. I really enjoy this site and hope that i dont sound like a pest. I have posted a few responses to some people and started new conversations as i just love this site....i have found alot of wisdom and insight and realize that i am not alone either....I dont know where everyone is from, but i live in Utah. And now that its october, its getting way cold here. I dont know about the rest of you but for me, the cold hurts. I used to love it, now i cant stand it as it seems that every nerve and bone in my body aches....and i wear longjohns the whole winter...with the arthritis, as well, its just a double wammy.....and some days i just cant seem to get warm even when the weather is nice...whats up with that? Just wondering how you all deal with cold and have any tips....I also have a space heater, but man, those things really raise my power bill...but ive noticed when im cold, im in more pain.....this fm and ra stuff is a thrill.....and the other night me and my grandbaby went for a walk and started to run alittle and i fell....God, i couldnt get up and i felt panicked....im to young to be old....and besides that it scared me. I just have to face facts....im getting older but in my mind, im still in my 20's...im 53 now...how to deal with the mind games? my mind is not as sharp and i forget alot of things and sometimes when i speak i cant formulate my words. i can think about what i need to say but when i go to say it, it takes a minute to formulate the word.....isnt life fun? I just love it!!!! (sarcasam works well for me) Well all, i hope you have a great day and like me, try to find something that makes your day a little more bearable.....View Thread
good morning wolf So sorry to hear all your issues. First off, my mother and i have FM and RA. Her RA and FM is so bad that she can barely get out of bed some days. and she has had both rotater cuffs and both knees replaced....dont recommend both at the same time.....one knee at a time and one shoulder at a time. healing wise, she was in the rehab for 1 month. as they did the PT right there at the nursing facility she had to go to after her surgery....And yes, drs will not do both knees at the same time...you need to be able to walk somewhat and the pain of the PT is such that i could hardly watch my mom do her PT cuz i could see how much she hurt.....But, now that her surgeries are over, she is having remicade injections to slow the progression of RA but personally, i dont think its working.....i am trying to nip my stuff in the bud as when she started getting diagnosed with RA it wasnt until she was in so much pain and could barely walk or breathe that she waited to long and the damage was more severe....she started getting treatment in her early 60's. Im 53 and working on mine now. But i guess either way, the body is going to do what its going to do. I think the best medicine is just to stay focused on how to find something that makes you happy.....no matter what that is....mine is my grandbaby.....and i have a supportive family. Do you have insurance? look into nursing facility who will do the PT there so that after surgery you can just be transported. Or maybe your situation is just like mine...you can only do so much and at certain times....seems to be the way of life. Job over health, and money over everything else...well thats another discussion in itself....well good luck with everything....have an awesome day!!!View Thread
good morning nancy thanks for your post first off... I have been on so many diff meds in the past that i have found what works for me....Im not sure how to take your post. Are you in the healthcare profession? Sorry, im not trying to be rude or disrepectful. I have experimented with all kinds of meds that have either made me sick, didnt work, or just plain crazy.. As far as the aspirin, I have taken aspirin for as long as i can remember. Its not something new i just started. I see my Dr once a month and he watches me like a hawk. Like i say, i wouldnt trade him for anything. I appreciate your comments but i think my dr knows what im dealing with and responds accordingly...as far as a muscle relaxant, i have tried all kinds of those as well. They make me sick. I have tried flexril, soma, some other brand that was so expensive i could only afford 5 at a time and they make me so drowsy...ive tried celebrex and all the known meds, lyrica (which i absolutly hated)...my body does not tolerate meds to well.......so, equally challenging is trying to find the right combo of meds as with anyone. Once again, thanks for your words and i hope you have an awesome day!!!View Thread
Hi 1butterfly82 First off let me just say how sorry i am about your health. Its tough some days to not just say "i'm so done". I have FM, a touch of RA and degenerative disc disease, with arthritis in my back and nerve damage as well. My dr just put me on another med for the depression called VIIBRYD and let me tell you, it helps with sleep....prior to being on that, i was on paxil, but it was making me very aggressive and feeling extremly wierd, like out of body experiences...very strange drug so i tapered off of it....I really believe that for me at least, when i get a good nights sleep, my pain is not as bad and i seem to be able to function a little better. I have my good and bad days as well. Sometimes my flare-ups last a few days, other times longer....but i am on hydrocodone 10mg, meloxicam, allupironol and 1 -81mg aspirin a day and 1 -5 mg valium at night as well for sleep. Believe me, it took trial and error to find the right meds...but yes sleep affects all aspects of any illness. Talk to your doc and see what he/she can do for you for your sleep issues and your pain.....I tried all kinds of meds narcotic and non narcotic and yes, ive been through alot of bad side effects as well....So, like i say, its just alot of trial and error.....Good luck with everything and god blessView Thread
Hi everyone. I have been reading the many posts about FM. Some are discouraging, some are frustrating, some are sad, and so on and so on. I think the biggest thing for me at least, is that the body is frail no matter what we are dealing with. Whether it be cancer, heart disease, or any other illness, we all die. It is not a big secret. and it is not something we can control. And i certainly dont mean to sound insensitive to anyone and mean no disrespect. I have FM and other issues and my mother has FM and RA as well. And i watch her struggle everyday with constant pain. She has had both knees replaced and both shoulders. Her flare-ups are so bad that she swells up and some days just cant get out of bed, but still she is a trooper and trys to do what she can on a daily basis. For me personally, im just going to make the best of everyday. I refuse to speak for anyone else, i just know how i feel and how im going to deal with my issues. And i know that it would be great just to live life and die a natural death, but im being realistic. Enjoy life. Be grateful for anything that brings you joy, and above all, seek support from where ever you can find it. Family is the best support system. And for me, being a grandma is giving me the second chance at alot of things...and I am extremly grateful to my granddaughter.....Hang in there all. It is with love and respect to all human life that i will say prayers and put positive energy out there to all in need.........View Thread
Hi xperky thanks for your response....my dr is giving me allopurional 300mg 1 daily and instead of aleve or something of that nature, he put me on meloxicam. I only have to take 1 of those instead of the 2 aleve that i was on. ....I used to take the aleve which i thought helped tremondously, but the less pills to take, the better....the allupironal is to slow or stop the production of the uric acid which builds up in the joints...and this my dr has found has helped him...(he is also on it) im hoping that helps with the arthritis/ra...My RA count right now is very low so its not that big of a deal for treatment.....its like at a 16 or 17...he says if it goes over a 20, then we will start to work on that.....i have been seeing this dr for quite some time and i trust him and he is very throrough..he takes the time to explain things to me and i hate to give him up and i wont....so in answer to your questions, no i dont have a rhuemy dr yet.....the Viibryd that i am on seems less harsh then the paxil, and the zoloft that i tried in the past and its a new drug. Just came out in 2011....kinda scares me about new drugs cuz you always hear these ads on TV about new drugs already being taken off the market or the lawyers having cases about them....geez....but like i say, that drug alone helps me to sleep better, which in turn seems to help with my pain.....so, there ya have it.....last night my grandbaby and i went for a walk, and we were running a bit, and i fell.....man, things i used to do even a year ago i find that i cant do now.....its the simple things that catch up to me and that really stinks.....i used to be so active in my younger years always into sports and im thinking that that on top of trying to stay as active now, plus i drink a ton of milk is helping me alot.....my bone structure is pretty strong and i quit smoking in jan of this year.....so i just try to keep my chin up.....that to me is the best medicine......But like i say, dont get me wrong i have some pretty bad days to......welll, thanks again for the reply.....have an awesome day!!View Thread
hi there sp2001 Wow, this site is awesome! lots of support and words of wisdom...people can be so healing. Power to the people!! HAHAH....ye, we have checked if im anemic and my iron is just a tad low, but not enough for dr to be concerned. im just a bruiser i guess. But like i say, some days are better then others. Well, all, you are an inspiration and its time for me to get started for the day. Thank-you all so much for your words. Have a wonderful dayView Thread
Hi Dollbug Thank-you for responding as well. I am sure that i will find alot of good information on this site as well as feedback from people who live with this condition. I find that talking with people who have similar conditions is the best therapy. Sharing your stories makes it seem like your not alone. Therefore not feeling sorry for yourself...As a person with depression, i was crying at the drop of a hat as well, and it thought to myself, god, quit being such a boob...it was making me crazy, thus the paxil...but quickly learned after about 2 1/2 months on that, that it was making me feel like i was having out of body experiences and just like i wanted to hurt someone....not a feeling i want to have or can afford when im around a 4 year old child. I have checked my vit d levels and they seem to be good. I do take supplements and i drink a ton of milk. I love it....and my bone structure is good and all my levels so far with the exception of my RA level is good. my liver enzyme is a tad bit high, but doc says becuase of the tylenol in the pain med.....which i find odd, i take maybe 1 or 2 a day if at all. and i get 30 10mg's a month. So i am way careful not to take to many of those....the meloxicam and the alluprional seem to alleviate the swelling and inflmation....i was on predisnose, but drs just dont like that drug because of all its side effects, but i swear, that 5 day treatement helped me more than any one thing...if i could be on just that drug, i think i would be good. I have also had my share of cortisone injections in my back, but they have no effect on me now and we have stopped those....so the cocktail of drugs that i am on now seem to be working quite well. Its nice to have the feedback that i have already recd on this site. I will check back often and post even more. Thanks all for your responses and tips. I will take advantage of all that is offered. To all those under the same blanket, hope you feel the warmth and love that you have shown me here today........Thanks so much!!!!!View Thread
Hi Anon_1149 Thank-you so much for your kind response. I know that some days are better then others. When i have flare ups, im down for days and its hard....I have 2 beautiful daughters and a grandbaby who is 4 and the joy of my life...I live with my oldest daughter right now and that in itself seems to help with my mood. I work from home and also have been approved for FMLA which if you know what that is, is a godsend. It gives me the ability to work, take the time off i need and not feel like i will lose my job. My work collegues have been most supportive and its an ideal situation....my hope is that by trying to do all i can now, i nip some of my symptoms in the bud before i get really crazy. My mother has really bad RA and FM and I watch her struggle every day with extreme pain and swelling and it scares me to think that one day that could be me......I have a fiesty personality and wont hesitate to tell you like it is and sometimes i think that helps more then anything.....Not to sound rude, but i just think being upfront and speaking your mind alleviates alot of problems, tension, games and whatnot in life.....And after i typed that, i reliazed how that sounded...do not take offense. I did not mean to direct that at you personally..I know what you mean about the opiates but to hell with what people think. I do what works for me and i dont abuse them. I take my meds like im supposed to and sometimes dont even take the pain meds unless i cant stand it. I focus more on my little 4 year old grandbaby. She keeps me busy and focused on what matters. FAMILY!!! Again, thanks for your response and kindness. I hope your day is a great one!View Thread
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