it's just not right that spending a day holding and feeding a 5 pound (preemie) baby means i'm in so much worse pain the day after. if 5 pounds is this hard i can't imagine what i'm gonna do when she's bigger. my guess is i'll just hurt more. totally worth it though. love that tiny little girl; and her momma too of course. extra stretching, hot shower, heating pad. i will persevere, i have to. don't we allView Thread
don't know ya'll well, but you are my fibro family, so i'm gonna share with you. last saturday my daughter, 35 weeks pregnant, started bleeding. so, we're at hospital for awhile, things look better, i go home. 3 a.m. sunday get a call, bleeding again really bad, prepping for emergency c-section. rush to hospital, running on little sleep. baby was breech, 5 lbs 2 oz 17 1/2 inches. she is, of course, adorable. there most of day, finally get home, much needed nap. at hospital again monday as baby is not holding her temperature and was put in incubator. very upset daughter (the new mama). tuesday i had a colonoscopy, so prepping monday night and early tuesday morning. nothing of note. the point of this is how very terrible i felt, pain wise. my routine of a morning walk with dog, yoga/stretching, little breakfast, etc got all messed up. i usually manage pain well enough, but i felt like crying at 3 a.m. tuesday morning when i got up for the rest of prep. i finally just took a boiling hot shower until the hot water was gone. i am so exhausted i feel like i could drop dead from fatigue. and of course i can't. this is my first grand baby and i am thrilled, even with the complications. however, it is amazing how getting out of your routine can bring on so much pain and fatigue. routines are important for us, especially us fm'ers.View Thread
this is not meant to be a complaint, just sharing thoughts i had today. used to be, morning was my favorite time of day. i would wake up early, to the sound of happy birds, and watch the daylight begin. that was several years ago. with the help of way too many medications, i sleep deep through the night. the morning had become my most hated part of the day. as i begin to wake up, way past happy bird time, i try to resist becoming fully awake. it does no good of course. after about 12 hours of sleeping (i know, it sounds like a lot) i need to wake up. sadly, instead of being happy to get up and start my day, i lay in bed in pain and wish i was still asleep. i don't feel my pain when sleeping. some days i just want to sleep forever and not deal with the pain of getting out of bed and slowly moving through my morning routine. lots of words to say "i miss the good mornings"View Thread
thanks, mel. i do have a therapist and take the appropriate antidepressents that work best for me. some days are just hard that's all. actually, most days, i didn't say it this morning, but i do get up and move around. i walk my dog, i have a yoga/stretching routine, and i do a few things during the day. it gets better as the day goes on. i just miss loving mornings. who knows, maybe some day i'll be awake that early again. it's evening, i'm a little more positive View Thread
sorry you are so scared, but it is a scary disease. more than half the doctors and even more people don't even believe anything is wrong. i don't worry about too much medication, for pain or anxiety or whatever. everyone has a different tolerance for types and dosing. what works for you works for you. we may all have the same diagnosis, but we are all so very different. the post about job accommodations is a good one. didn't happen for me and i lost my job. i am now on social security disability, which is fine. i feel better at home than i ever did at work. my bit of advice - move. even if it hurts, move. short walks are good. daily yoga or stretching is good. all your muscles need a stretch every day. pain is part of our lives, stretching your muscles every day, i do my yoga in the morning after a walk with the dog, really helps. i have no advice re: fibro fog or cfs. i have both, some days worse than others. the nice thing about not working is i can take naps when i need to, and i don't have to remember anything on the bad fog days. thankfully my 2 adult children help me with remembering when needed. i know none of this helps you in any way most likely. i don't usually post at all, just lurk in silence. today i feel pretty good i guess. best of luck to you.View Thread
for me i find that after a period of time the sleepiness caused by the medication becomes quite tolerable. it's kinda hard to say because, like many of us, i also have cfs. so, i'm used to being tired all the time and in the beginning of a new med i sleep if i need to until it's not so terrible, then i try to keep myself a little busy. short walks, straighten that shelf, do a load of laundry and hang clothes to air dry. then breaks in between because they are so necessary. i don't know if this is a good system or now, just sharing. i guess whatever works for each of us is all there is.View Thread
am a big fan of Aveeno skin relief 24 hour moisturizing lotion. it is made to relieve sensitive or itchy, extra-dry skin and is fragrance free, which is a must for me. any fragrance causes massive rash. i have found this product to be great for under the breasts and down in the private section, where i get very itchy for no reason. it feels great going on and works for me. good luck to you, well, to all of us.View Thread
the good - i love spring. i love working in my yard. i love seeing how nice it looks when i've done what i set out to do. the bad - i can't move for 1-2 days after doing what seems like so little. the ugly - i still over do it. i know i shouldn't, that i should take it easy, little bit every few days. it's not like i have acres to work with, i live in a trailer park, i have a small lot. but seems no matter how easy i think i take it, the next day tells me i did too much. sadly, too much is just about anything for most of us. dig a hole, can't move the next day. yet somehow, we persevere. i did my work yesterday, i feel terrible today. then i look outside and i feel better. some say life's a bitch. they have no idea what life is with fibro.View Thread
take gabapentin regularly. every night to help with sleep and pain, plus as needed in the day if fm pain is too much to tolerate. i does make me sleepy, so i have to really hurt for daytime use. i sleep great and take it about an hour before bed. i feel the pain just go away and the sleepiness come. i've had no side effects and would recommend. i have never tried soma so i have nothing to say about that.View Thread
they are, but i've never tried lyrica. did cymbalta with terrible side effects, so not for long. i take gapentin for fm plus antidepressant. fatigue is a huge problem. i can sleep most of the day and still sleep all night. unlike many here, i have no problem sleeping, but i also take medications and some don't. the activity to pain ratio is about right. you have to learn to take things slow and easy. it'll get done, just not like it used toView Thread
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