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So I know that I'm quite late to this conversation but thought that I might be able to add some insight since I am very close to your girlfriend's age. I've had Fibromyalgia for 20 years (diagnosed 15 years ago) but I can tell you that it took me a very long time to accept my illness and to seek out information from the community. I was in denial for one thing, and even though I wanted to feel better I didn't understand what benefits there were to belonging to a community or support group. Some people just take a while to come around and to accept the reality of the illness.
It's great that you are so caring and willing to help around the house. I like the idea of making information available to your gf - she can decide for herself if she wants to read/participate in discussions, but don't push her. Your emotional support is vital to her quality of life and I know she will appreciate it whenever you can help her out with chores.
I'm married (been with my husband for 8 years) and have really deteriorated since I first met my husband. The libido issues have come and gone, but when I feel good (meaning, my symptoms are under control) my libido is normal. Your gf will feel better with the help of anti-depressants as well as more sleep and less pain. My advice is to keep the lines of communication open (listen to her but also tell her how you feel and what you need). Offering a massage is a very nice way to help her feel better and it can sometimes lead to 'romance'. I totally understand the way you feel and you deserve to have your feelings heard. By the way, I have read that women who have unprotected sex with their monogamous male partners do benefit from exposure to semen; that it increases serotonin, endorphins, and oxytocin and therefore decreases depression. I'd go so far to say that women who have healthy, happy sex lives are happier overall even if they don't have Fibromyalgia. The key here is to make her feel well enough to want to have sex (and you can't do that alone).
One important thing to mention is that Fibromyalgia does not have to ruin relationships or make partners unhappy/unfulfilled. It's very important for your gf to keep her depression in check, for the two of you to always communicate, and hopefully she will take as good of care of herself as possible. It's great that she wants to exercise because that can help her feel so much better. Please encourage her to do all those things.
I wish the two of you the very best!
Jessie
PS Don't be afraid to continue to reach out to the Fibromyalgia community. We're all in this together, and that includes those who are ill and those who love us!View Thread

I have gained 50lbs and have struggled with high blood pressure in the last 2 1/2 years. My doctor has me on Lisinopril and she is probably going to raise the doasge, as my systolic reading is still a little bit high (132).
High BP is a scary thing. I would venture to guess that many of us eventually end up with it - whether it's due to weight gain or medication or uncontrolled pain. I wish I had some words of advice.View Thread

Are you currently on medication for your depression? If not, please see your doctor right away - these thoughts you are having are very dangerous. I just admitted myself to the ER less than two weeks ago myself. I have a daughter and I worry constantly about my condition spilling over to her - so I absolutely know your concern.
More than anything else - you need support. Your doctor, your friends/family, your neighbors ... someone can help you. I know it's hard, but reach out to someone even if only for the sake of your children.
You can and will feel better than you do right now. The symptoms of FM are so hard but that's why we are here for each other. We show each other how to cope. Please, please get some help and keep us updated.
((((Hugs))))
JessieView Thread

I hope you are under a doctor's supervision. The "danger zone" seems to be when you go from 30mg to 0. I didn't feel any different when I went from 60mg to 30mg. If you start feeling funny, please call your doctor or message us here. It can be dangerous.
Good luck and (((hugs)))!
JessieView Thread

I just wanted to give you all an update. I saw the psychiatrist last night - he wasn't the warmest person but he seems to know what he is doing. He was certain that the emotional/psychiatric symptoms I was having during my withdrawal period were due to my depression and not the withdrawal from the drug itself.
So, for now I will continue taking Cymbalta at the reduced dosage. My doctor is right - it is helping to stabilize my mood and that is very important. He doesn't want me to take the Ativan that was given to me in the ER but if I have anxiety issues in the future I will ask about it again.
Also, he recommended that I start up therapy again, which I know I need. I am seeing a therapist in his office next week - hopefully, she is good.
Hope everyone is doing well!
JessieView Thread

I think everyone has given you some great thoughts already, but I wanted to put my two cents in. I just recently met with a psychiatrist for the first time in my life to help me with medication management. It sounds like you need to be on an anti-depressant if you are not already on one; if you are, perhaps you need to switch it up. Rheumatologits and family doctors are not always the best resource to prescribe and manage your medication (I found out the hard way).
I have been in and out of psychotherapy all of my life. It can be very helpful IF you have the right therapist. I have seen some that were very good and some that were simply not helpful. You should feel better after a session. And remember, you are using the opportunity to reduce your stress and anxiety - not to make it worse. Please let your therapist know that you do not feel well after sessions and perhaps she can change her approach. Remember that you are in charge here - stand up for your needs.
I do hope you feel better soon and please keep us posted.
((((Hugs)))
JessieView Thread

I was diagnosed at 17 (though I believe I've had FM since I was 5) and now have a 2 1/2 year old daughter. All of the women in my family have FM, so I expect that my daughter could show symptoms. Sometimes I suspect she has it now.
I have spoken to my rheumatologist (who also specializes in pediatric rheumatology) and she told me that her youngest patient is 5 years old.
My personal belief is that it's difficult to know when a child has a condition when they are very young because they can't communicate exactly what they are feeling. You may not know for sure what's wrong (if anything) until he's a couple of years older.
Mimi gave you some great recommendations about the warm baths and the lavender lotion. Because you have FM yourself, you know to be gentle with him. I think patience and soft hugs go a long way to help a child who is in pain.
See what his pediatrician says - it wouldn't hurt to seek the advice of a pediatric rheumatologist. Watch his sleep patterns and listen to your motherly instincts. I know he's in good hands with you.

(((Hugs)))
JessieView Thread

I am right there with you, on all accounts. There is nothing in my life that is not affected by FM. I have been on Cymbalta and Lyrica for 2 1/2 years, and have gained almost 50lbs. When I try to lose the weight, the scale hardly budges at all, which makes me feel depressed and I tend to comfort myself with food. It's a vicious cycle. Just know this - many of us with FM struggle with our weight. It's just part of the many issues we have, and it's not easy.
As far as Naturopathic medicine, I don't have any experience. You should try it because what may not work for some may work for YOU. It's always worth a shot.
(((Hugs)))
JessieView Thread
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