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For me, personally I think a bout with Scarlet Fever at age 5 started this mess. After that I was a sickly child that caught every bug that was going around and even when well I never had the energy and stamina that other kids had. And with each physical trauma I have endured (car accidents, surgeries, child birth, etc) my symptoms have worsened with each event. Even though I was never diagnosed as having mono (it could have hidden behind one of my other illnesses) I do test positive for the virus. I also have pernicious anemia being deficient in vitamins D and B12 which seems to be common in fibro patients.
Hopefully, with further research they will have a better idea of what causes this so they can try to prevent if not cure this disastrous disease!View Thread

I don't really have too much to talk about at the moment. I think we may finally have the right combo of meds and supplements we just need to get the doses adjusted correctly and that will happen over time.
I hope everyone's day goes better than mine will!View Thread



i was in much the same boat as you when I tried to get 1 doctor to treat all of my issues. Now that I have it spread out i am getting better treatment and care and all of my docs are part of the same clinic so they can all read my entire chart and see what all I have going on and what all meds and doses I take.
I know what you mean about even clothing hurts to wear. Those are the days that I stay home and wear a very thin light weight nightie and nothing else to try and stay comfy. I had a talk with my hubby, had him read "The Spoon Theory" and he has read up on FM and gone to all of my appointments with me. On my bad days he knows that I am a "hands off kind of person" and on good days he still keeps any touching very gentle. Education for out friends and family members is key so they understand what you are going through. Let them know that you don't want pity, just understanding.
Unfortunately for us it can take many years and lots of trial and error to find the right combination of vitamins, medications and therapies that work for us. My best advice is to keep trying and eventually you will get relief. I am not quite to that point yet but it is getting a little better with each thing we try.View Thread


I hope you all are doing well and I will try to be better at checking in and responding to posts and helping where I can!View Thread


When I talk to them I will let them know we are getting there but I need some day time pain relief for the neck/back/joint pain that the Soma doesn't cover. Hopefully it will only be temporary if the SCS is a success I am hoping I can (maybe) eliminate the need for pain medication.
While I am sleeping better and longer of course with fibro I still don't feel well rested when I get up and I still have the morning stiffness. I do however feel that we are finally on the right road to getting my pain under control so I can be the best me that I can be.View Thread

When I talk to them I will let them know we are getting there but I need some day time pain relief for the neck/back/joint pain that the Soma doesn't cover. Hopefully it will only be temporary if the SCS is a success I am hoping I can (maybe) eliminate the need for pain medication.
While I am sleeping better and longer of course with fibro I still don't feel well rested when I get up and I still have the morning stiffness. I do however feel that we are finally on the right road to getting my pain under control so I can be the best me that I can be.View Thread
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