Hello Mimi! I am one of the members that comes and goes for the last 2 years. I have been having some back pain along with my FM lately. An MRI showed some arthritis and a small disc bulge in my lower back. Last week it was so bad that I could not sit down! I had a lumbar epidural injection on Tuesday and that area is feeling so much better. I am even going with the girl scouts this weekend. I will be sure to pace myself!
Thank you Lou and MiMi. I do have FM and have learned a lot over the last 3 years of being diagnosed. I will ask the doctor to check his Vitamin D. He uses a heating pad occasionally. He has always been very active so it is hard to see him slow down so much. He is better in the mornings but by the time he gets off the schoolbus he is limping.
In my heart I am terrified that he might have FM but my brain tells me to wait and see and hope for the best.
Hi everyone! I have not been here in a while. I am one of the members that comes and goes. I have FM and probably CFS. I remember many of you and the help and support you have given me. I am very worried about my son and would appreciate suggestions, kind thoughts and prayers.
My 11 year old son started having pain in his knees and legs 9/2012. His bloodwork shows elevated ESR and CRP which I am told means he has inflammation and that it is chronic. It took several months to see a pediatric rhuematolagist. They took many xrays(all normal) of his knees, hips and lower back. The bloodwork still shows inflammation.
During the rhuematolagy appointment the doctor touched all of his joints. That is when I realized he also has pain when touched in his elbows and shoulders. The pain is in his joints and his muscles. The doc tells me it is not RA and it is not arthritis. The doctor also said he is supersensitive to touch in his joints and muscles. I asked the doctor if it might be FM. His answer was that there is no simple test for that and that if it is FM we are going to get him as ready as possible to handle that condition.
He is now going to physical therapy 2 times a week. For the pain he has taken ibuprofen then naproxen and now relefen(might be misspelled), none of them has helped. He is also taking 20mg elavil at night so that he can fall asleep in spite of the pain.
He is in pain at least part of every day. He has stopped complaining about the pain because then we give him a pill that does not help anyway. It is so terribly sad to see that your 11 year old has gotten used to pain being part of his life. This is unfornately now his new normal.
I am grieving for him but being careful not to show it. Some of the doctors appear to think that his problem is that he was sedentary. This is not the case. He is a scout that loves to camp and hike. He is a boy that loves to run and play. It is only the pain that has slowed him down.
I would appreciate any suggestions to make life easier for Zach. I would also appreciate suggestions for other diagnostic tests oralternative remedies ( I will check with his doctor first).
I am sorry this is such a long post, it has been inside me for many months, I just been in denial and angry. I still have hope that it might not be FM and that he will not always be in pain.
Thanks for your reply. I eat very little red meat, haven't had shellfish in ages, and don't drink alcohol! I have no idea what triggered the gout flare. I see the doctor this weak. I am only 40 so I hope my kidneys are okay.
Two weeks ago my big toe swelled up and I had pain in it worse than my FM pain (unimaginable, I know). The doctor said it was my first gout attack, and it may never happen again. Well, last night my big toe swelled up again! I have had another gout attack. I see the doctor tomorrow morning.
Does anyone else have gout? What do you do to avoid attacks? What do you do to make an attack end? I would appreciate any advice! Thanks!
I also suffer from CRS(can't remember stuff). The thing I miss the most is books. Authors that have always excited me can no longer hold my attention. Not to mention that it is hard to hold a book for long.
I have decided to get back to reading by started at a lower level. I found one of my teenagers books interesting and I was able to read it! It helped to have a shorter fast-paced book. I have not been able to get another book started but I will keep working on it.
I do sometimes get irritated with my Fibro Fog. But I am learning to accept my new normal.
I don't mind you asking, I am only 40 years old. I was diagnosed 2 or 3 years ago but I think my first symptoms started 14 years ago. My first symptoms were exhaustion and daily rib pain.
I have looked back over the last few months and I cannot find anything I have changed. I am on the same list of meds. My vitamin D is always good. I started taking magnesium about a year ago. I am still working part time as a cashier and I have 3 kids. My diet & exercise remains the same.
This fatigue is just so overwhelming. What do you use to combat fatigue?
For the first time in years my pain has been a 3 or less for the last few days! I am not doing anything new or different. On the down side my chronic fatigue syndrome has kicked in and I am exhausted beyond belief.
But I will be happy to take the 5 or 6 hours a day awake and with low pain! I never really understood what others called a flare because I was almost constantly in pain. It is such a relief. I will be grateful for as many low pain days as I get. I will be careful not to overdo it. I know the dragon is still lurking out there but I will enjoy this break!
My thoughts and prayers are with all those still suffering in pain.