I too know the shutdown sequence my body starts when fatigue just takes over. There is no choice or working through the situation. I feel like I have hit a wall at high speed and it often happens at a particular time during the day. Mine also hits towards the end of the workday; it's like my body has reached it's absolute limit and cannot be pushed any further. Only someone that has experienced it can understand. Unfortunately, I have no options. I need to continue to work and it sounds as if you are in the same situation. Some days I feel like I won't make it unless I give in and sleep at that exact moment in time. If I catch a cold or other virus, the fatigue is amplified one Hundred times. You are not alone but I wish there were more options for people like us. I am getting up to start my day. I am already exhausted and wish I could go back to bed.
Best of luck. I have no answers but if you find any please share. I have been barely living with this condition for 20 years now.View Thread
I do not understand why this discussion was started 2 years ago, it continues and there has been no new input from Dr. P. or the medical community. How is this supposed to be helpful? Two years ago I wrote a response that is still here and could be the same thing I would write most mornings. Everyone comes here hoping for information and help not just to complain. Two years have gone by and here I am reading this, completely exhausted from another sleepless night about to get ready to go to work. I will be fighting the urge/ need to sleep all day. By the grace of God, I will be able to safely commute back and forth to my job requiring complete alertness to travel 3 different major highways with heavy traffic. What is the purpose if 2 years have passed and I just read the sufferings of so many like myself when what we need is medical advice. My Dr. has no new ideas so I am feeling very frustrated right now. Should I mention the endless pain?View Thread
Hi. Was wondering if anyone was taking Provigil to help with daytime sleepiness and the dosage. I have been taking 200 mg daily for about 3 years. I think I have developed a tolerance and this dosage is no longer effective. I take the 200 mg in the AM. Different sources have varying amounts as the recommended dosage. I have seen 200 mg. as a maximum and other sources say up to 400 mg can be taken daily. I would appreciate if people would share the dose and how it is divided during the day. My Dr is very conservative and I expect that she will refuse to increase my dosage to 300 mg daily but I am going to ask at my next appointment. The increased dose is essential for my safety during the day. I would be willing to take the increased amount on work days only.
Thank you for any input/advice on this matter.View Thread
Jdhnay25, I literally feel your pain. The summer I was 29/30 (August birthday) was when I was finally diagnosed. I am now 49. At the time I was raising 3 small children. Husband was not supportive & still isn't. I think I tried every medication ever associated with fibro , CFS and sleeping disorders. Physical touch, no matter how light can cause excruciating pain. I hope you can make your DH understand. Couples therapy can help but you have to stick with it or any progress may regress.
Best of luck to you. You are not alone. Your pain is real and it is physical. Remember sometimes the "cures" are as bad as the "disease". So many side effects.
I do hope & pray your husband can become more supportive. I have not been that fortunate but some patients have gotten lucky. Hang in there.View Thread
Slovene 54, thanks for your reply. Tests did not indicate sleep apnea. I know what it is medically but could you describe the symptoms to me? I don't snore or have any breathing issues. I also do not have narcolepsy even though the symptoms sound like that is a possibility. If you have any other suggestions or could recommend a specialist other than neurologist, pain specialist, rheumatologist, MD/osteopath ( which currently make up my team of doctors) please do so in a reply. It is very scary as it happens without warning & my body just shuts down.
Thank you, lots of luck, may you be awake when you need and sleep well when you want to.View Thread
Foreversore, thanks for your reply. My Vitamin D levels are very low. Have been on my 3rd 8 week regimen of 50,000 units once weekly. My thyroid tests all come back normal. I take ambien CR 12.5 mg ( generic) before bed. Some nights I sleep well other nights I fall asleep, wake up and cannot get back to sleep. Pain levels as well as stress seem to be linked to these "sleep attacks". If you have any other suggestions, please send a reply to this post.
Thanks. Pleasant Dreams.View Thread
Remember that depression and pain are a vicious cycle. It's hard to determine which comes first. Sometimes chronic pain and feeling sick all the time makes you depressed because you cannot enjoy life. Other times, depression makes the pain worse. In my case, it took me a long time to realize that I was feeling depressed because I felt my body betrayed me. I have been living with fibro for 19 years. Some of the medications prescribed are as bad as the condition itself. It's so complicated. Please try to be easier on yourself. Keep a journal of the side effects of various medications and see if there is a connection between the depression and the side effects of medications. Hang in there. It's hard to believe but you are not alone. Look at all the people writing posts on these pages.
Hope you start to feel better. Keep nagging your doctors. Your physical pain is very real and has a major impact on your mood.View Thread
I hear you!!! I was diagnosed 19 years ago and my family still refuses to accept that I have real medical issues. For financial reasons I am doing my best to continue to work full-time. My spouse thinks his day is over when his hob ends. He never helps unless I nag which ultimately leads to a fight. I am expected to work full time, do all household chores like cooking, cleaning, laundry while he relaxes in front of TV. People ask "why do you put up with it"? What is the alternative? If I get sicker, I will be left with no income whatsoever. You are not doing anything wrong- he is but you will never convince him of that. You are not alone but there are some men out there that are very supportive. We just were not lucky enough to find one.View Thread
Hi everyone! About 2 years ago I started a discussion about fatigue. I have what I call "sleep attacks". Everything is ok -considering pain & everything else that comes with fibro & suddenly I cannot keep my eyes open. Take 200 mg of provigil every morning. I must work full-time. I have no choice. Some days I cannot make it through the day. I keep my consumption of carbs low during the day because I have seen the effect large amounts of carbs have on my body. I get B12 shots monthly, take sublingual B12 when I feel drowsy. I am frightened about how quickly I can become overwhelmed by sleepiness. Hoping someone has some suggestions. The provigil was working wonders but I knew at some point the sleepiness would return. My Dr will not increase the dose. I have on a few occasions taken an extra 1/2 dose on my own and have had severe stomach cramps and diarrhea as a result. Please share any ideas, treatments or supplements that have been helpful to you. I am afraid I will get into an accident one day or get fired for "falling asleep on the job". My life is non-existent now. I take provigil so I can work and I come home and pass out from exhaustion. No social life or time for friends which is sad. The worst part is never knowing when one of these "sleep attacks" will come on. I have been tested for narcolepsy and sleep apnea and results are negative. Any feedback will be appreciated.View Thread
Hi Believe! Wanted to share some of my experiences with fibro & meds
Was diagnosed 19 years ago and have tried them all when it comes to meds. When I saw Cymbalta& Savella, I had to reply. Now, some of the people I know have had success with these meds. I am very sensitive to medications and seems to get every negative side effect ever listed. But Cymbalta & Savella were my worst nightmares. Cymbalta made me so dizzy that I could not get out of bed. My memory and thinking skills were none existent. When I tried Savella the Doctor suggested I start with the absolute smallest dose possible and cut that in half. After swallowing, within a half hour I was projectile vomiting. Called Dr. He said maybe it because you did not eat first. The directions did not say take on full stomach. But I was desperate and hoping this was the cure for me. Next day I repeated the smallest dosage after a large meal and again in less than 30 minutes projectile vomiting and severe dizziness. That was the end of Savella for me. I could not begin to list all the meds I tried in the past 19 years. Bottom line - they all made me gain a tremendous amount of weight ( from 125 lbs to 200), made me very sleepy and Increased "brain fog ". I hope you have better luck than I have had but there are some of us that do not do well with medications. Best of luck and keep me updated. Maybe you will find something to help us both.