Thank you for your Suggestions. My doctor ordered provigil but my insurance refused. I went to Mexico to get it cheaper but I didn't do well on it and I can't be sure I got the real thing. It helped for about 3 hours but left me exhausted when it wore off.View Thread
There is so much I have to do but I am so tired. I suppose it is depression but I am just too tired to care. It's a vicious circle. Yesterday I had a doctors appointment after work. I only work part time,4 hours, but I waited in the doctor's office 3 hours. OK. None of it was hard labor. I enjoy my job. I read a book in the doctor's office. Still I felt so exhausted I wanted to cry. Instead I bought a half gallon of ice cream AND ate it. My head knows that was not really helpful but I don't care. I still don't care. I am so tired. I would think I was completely nuts if it were not for these discussions. That one day of mostly sitting could exhaust me so completely doesn't seem reasonable. But I know others like me can't even do that much. Thanks for being there.View Thread
Look at stress triggers as wellas body mechanics like the suggestions. Think about arthritis since you have had Fibro for ten years. Pain spreads. When I have knee pain due to wear and tear arthritis, the pain spreads to my "all over " Fibro pain. It helps me to use ice on the knee.View Thread
My goals have become very small and limited. One thing toward getting the garage cleaned up. One thing toward cleaning or organizing the house each day. The one thing may be emptying the trash or loading the dishwasher. Goal for the garage. Mid December. For the house---a place for everything , junk removed and maintenance simplified--March.
The thing that is hardest for me to do is to go back to my " one thing" routine after a week or so of a bad flare. I get discouraged and think,"Why try?". Then the clutter builds and everything is more difficult. Over the last year I've gotten better at throwing out, recycling, and taking to GoodWill.
Some days "one thing " is too much. But the rule is "one thing". No make-up days If I can't do it, it's OK. I don't try to double up. I'm attempting to get some consistent progress without causing energy overload and crash.View Thread
I've got more to say because this dance with my kids has been going on for years as I have learned to deal with fibromyalgia. For years I didn't know what was wrong. I had longer periods without flares but I was always off balance because I didn't know when the next episode of whatever was wrong would happen. So when I talked with the kids I was always"fine" Then I would crash. Have to quit my job etc Clearly I was no longer "fine". I couldn't explain because I didn't know. Now I know. I understand as much as anyone can about this disease. I want the kids to know why! Why we lived with this on and off business. We live in different places now but they lived through the unnamed flares with me. Mom was fine. Mom was sick. Mom was fine. Mom was sick. OK, understand that Mom is still going through these flares. I'm not sick and then well. I have fibromyalgia. Read about it. On the Internet.View Thread
Thanks for all your replies. I'm going up to visit my son this weekend. I hope we can have some honest conversations. I'd like to be able to say," today was a good day" or " Today was tough. The pain was bad but I plan to take a hot shower". And have it taken at face value rather than as I don't have the word. A good day doesn't mean forever from now on. A day of pain is OK to acknowledge because that's not every day forever and ever either. I want that much honesty in our communication.
I'm fine is a lie. I'm not fine. I'm doing the best I can. It's a struggle. My son can't fix it, but he also can't understand if I don't tell him. It's no more fair to put up a false front with an intimate friend or relative than it is to dump everything. Real communication is honest. Maybe more tactful than I usually am but honestView Thread
What do you say? My son will ask that every time he calls at some point in the conversation. I'm tired and I hurt. I am always tired. I always hurt. I know he wants to hear that I'm fine. I'm not fine! I'm not going to be fine. I'm going to have to quit working even part time at the end of the year. I can't hold up my part of the job any more. I can't manage my house any more. I need to sell and move to an apartment. I can't even manage that now because I can't think and plan like I used to.
How am I? It's a little like the "you don't look sick". I really don't know how to respond. He is letting me know he is concerned. I understand that. But I also know he expects I will get better. Fibro impacts my life so that to say, "I'm fine" diminishes me, but to say I'm in pain pretty much ends the conversation. How can I say,"Look, things are not going great. I am not fine,but I'm coping today "