How frustrating. For years I have had the same problem. It ( fatigue, pain, headache,nausea ) is just nerves. It makes it hard to be heard and taken seriously. Now I have two questions I ask before I see a new doc. What is your understanding of fibromyalgia? And can you work with my psychiatrist. If they are uncomfortable with either I find someone else.View Thread
Sorry to hear about your struggles. I know the head games we play. Maybe I am lazy!?!? No !!! Being in pain takes the starch out of all of us. Pain intensifies the fatigue. I'm glad to see that the tool box and especially the spoon theory has been suggested That has helped me explain my FM. But it is true that most folks just don't get it.
Sift hugs to you
I sew and crochet too. Working outside is pretty much out for me. I crash before I really get anything done and then I'm paying for it for a couple days. I like to do water exercise and the YWCA is cheap and the water is warm. I used to do pottery but I can no longer lift the clay or the kiln furniture. Sometimes I want to try again because it was my main hobby. I like all kinds of crafts and have done a little silver smithing
My boys are grown and live in other cities. I live by myself and work part time. I hope to retire(again for about the third time) by December. When I work I have absolutely no energy for anything else. I read a lot too. Mostly fiction
You're not a baby. One of my doctors said,"Pain spreads". Pain one place makes pain in other places worse. She believed in trying to relieve the pain and not waiting to deal with it. Pain is such a constant problem,but I do try to attack acute pain from injury as quickly and intensely as I can.View Thread
One good thing is that I've learned to listen to my body. And I've found the courage to say no both to myself and to others without feeing guilty. Well. Most of the time. It's still hard but it helps to have support from people who are dealing with the same things.View Thread
I have the same sort of problem but I have noticed that it changes when my meds change. I am on Cymbalta and Remeran now and I think the same effect that eases the pain slows the bladder muscle. I don't know that for sure but I have noticed the same thing before. I'd rather pee slowly than endure the pain. All my urine tests have been OK. So I don't worry.View Thread
I read a lot of the discussion, and many times I understand or empathize but I don't have anything different to add. I don't like the feeling of just lurking but if I don't have anything useful to add, it seems rude to just repeat.
I wish there was a way to indicate "I understand" or "I'm sorry". Or "I agree"View Thread
Tramadol helps me some. Cymbalta has actually been more effective, but I'm in another flare and the doctor ordered Lyrica. It was like a miracle drug for me at first. I stopped it because of fatigue but I really need it again and the insurance has declined it this time. I don't know the reason yet but I hope they listen to my doc.View Thread
In a way I'm glad I have a diagnosis of FM now. The fog and losing my words made me afraid I had Alzeheimers. The doctor assures me that isn't true. I was also afraid I had MS because the symptoms seemed the same. He ordered an MRI and ruled that out. I still hurt. I still feel like an idiot when I can't say what I mean. I still get lost in familiar places. But a lot of the anxiety is relieved. I have an explanation. Of sorts. FM is not an easy, clear cut sort of thing. I'd prefer a nice bacteria with an antibiotic to kill it. But at least I know that the sunburn feeling all over my arms and legs today is not some exotic poison. It's just another of the peculiar symptoms.View Thread