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Reply: TGIF **ROLL CALL** Countdown to Christmas...***

Hi Y'all from Northern VA Although I have not hit a good baseline I have been...

Posted by pinkplatypus

Hi Y'all from Northern VA

Although I have not hit a good baseline I have been making little progresses. I finally got to a place where I could resume wearing my elastic bands for my braces.

When wearing them from back top to bottom front it makes your jaws tight & before my DEFCON 5 flare in July 11 neck slightly tight as it is w/ normal people....well I have never been normal

3 Mondays & a couple of Tuesdays I had to call out due to muscle spasms, but I have got to finish my orthodontia treament so I called for help & after discussion of my issues my rheumy gave me Robaxin 500mg 3x day.

The first night I took it early, but still had to call in to get a couple extra hours of sleep before going to work, then something crazy happened......

I actually have some energy, these are not making me sleepy, my mind feels more normal & I feel more like myself - I am diggin this! (I really need ot put in my tag line all the meds I am on for just the FM & CFS)

I have been wanting to volunteer forever (always did growing up) & I have found an org I want to work with (homeless kitties of course) but I am just not physically there to do the adoption fairs or other things yet so I have found other ways I can help right now I am gov so I chose the org for my CFC donation & I love to crochet and have wanted to get back into it.

A few weeks ago when I started to crochet again I made sure I was using a big hook, but boy oh boy I could only do a few rows & my arm was worn out.

I am making tubbies (like a bowl) for kitties to feel secure - they seem to just love the yarn- pre-sick a couple years back it would have been nothing for me to whip out one or two an eve but now it is taking me about a week for one, BUT that is progress because I couldn't even concieve of doing it a month ago.

My cats have tested and approved of them! Jasmine tries to crawl in while I am crocheting - it doesn't work so well & Arianna thinks she can get in the little one but settles for laying on it.

Since my brain fog is starting to clear up I am getting a better grip on handling finances and such (I channel all of my energy to work w/ nothing for the eve).

I am a single crazy cat person with no SO to help me manage things so I do the best I can and I learning to be satisfied w/ that.

I have had several other illnesses over the last decade so I have learned how to fight & do some prioritization.

Hope y'all have a fab weekend!
Missie

View Thread

Posted bypinkplatypus

7 Replies | Reply | Watch This DiscussionReport This| Share this:TGIF **ROLL CALL** Countdown to Christmas...*** Hi Y'all from Northern VA Although I have not hit a good baseline I have been...

Reply: WOOHOO PROGRESS!!

Nancy I was a Fire/EMT, did competitive drum corp style marching, cheerleading, am a...

Posted by pinkplatypus

Nancy

I was a Fire/EMT, did competitive drum corp style marching, cheerleading, am a Army Vet - while in I was on Army run teams & played football on Army teams. I had always stayed fit and have been no stranger to a variety pain - I had 9 1/2 hrs surgery on my head to remove cancer - 100 stitches & was back to work in a week, have done Mixed Martial Arts w/ only large experienced men students way better than me....so the point is I am no stranger to pain - I now naturally without thought surpress an incredible amount of pain so this is above and beyond that - most people would have already went to the ER (not FM folks) - I am even using music w/ headphones & Cranioelectrostimulation Therapy & yogic breathing - but the pain is still coming through and it is due to use of muscles - my legs are really screaming today & upper body. I took a couple things out to my detached garage & moved a couple things around - now I am having lashback.
Last night I loaded a few dishes into the dishwasher and my arms & shoulders really ached.
I have had knee surgery due to a football injury & physical therapy, even in MMA I still spared on one leg after I hurt the other knee & won - could barely walk & it took a couple days to actually finally go to the doc - this beats the heck out of it all.

I understand a bit about the mechanics of what is happening to my muscles - pretty much they are all tight - working them is stretching & tearing some fibrous tissue that has built up & the pain that comes two days later is usually due to little micro-tears in the muscle such as when you are working out - some schools in body building think this is good & some thoughts are Pilates is not destructive like that, however I liken our tight muscles to contractures that develop in patients in nursing homes that don't move & aren't exercised - so we have to move them, there is going to be some tearing, henceforth some pain - there has got to be a way to deal with it so I am not sitting at my desk w/ headphones just breathing the last three hours of work without being able to think because the pain is overruling the brain.

Hugs
Missie:-)

PS I did run to the store earlier to get some Valerian root (used it lots of times) because they way it works, I am thinking it may help - also going to pull out the Cat's Claw.View Thread

Posted bypinkplatypus

2 Replies | Reply | Watch This DiscussionReport This| Share this:WOOHOO PROGRESS!! Nancy I was a Fire/EMT, did competitive drum corp style marching, cheerleading, am a...

Reply: In trouble again...

Good point - does the boss know. Recommend filing FMLA papers - this is to cover and...

Posted by pinkplatypus

11 Replies | Reply | Watch This DiscussionReport This| Share this:In trouble again... Good point - does the boss know. Recommend filing FMLA papers - this is to cover and...

Reply: In trouble again...

Sending you LOVE & LIGHT Missie

Posted by pinkplatypus

11 Replies | Reply | Watch This DiscussionReport This| Share this:In trouble again... Sending you LOVE & LIGHT Missie

Includes Expert Content

Reply: Physical Therapy question for Dr. P or anyone else

Great discussion. For years I had docs who just ignored me when I said my number one...

Posted by pinkplatypus

Great discussion. For years I had docs who just ignored me when I said my number one complaint was fatigue. Last fall I changed insurances to help lower out of pocket costs - I had some emergenicies & an emergency surgery - costly. When I switched to Kaiser all of the caregivers have been exceptional.

I am fortunate to have collected a variety of things such as a Pilates Reformer, my Inversion Table etc. and to have attended the Army Medical School for Occupational Therapy and worked in the field - so at some point I look at myself and see myself as one of my patients and give myself a treatment plan -- in OT we focus more on activities of daily living - something I have had a problem with - but that also includes adding in small activies to do - maybe in the realm of the arts - but it has to be achievable to finish it - which builds your confidence and self esteem - we all know it just flat out sucks to be able to do no more than move from the bed to the couch or on really bad days wake up to pee, sleep, wake up for meds, sleep wake up to wash face, sleep....I like to color so if I color a mandala or even a child's coloring book it does not take me much to move.

I am sorry so many people have so much trouble getting someone to listen and someone to help. I have lived alone w/ cats for so many years (only 42) but what has truly helped is I have a medical field background plus the OT so while I agressively looked for docs and researched tons I was able to help myself a bit - and hear many of the conversations that I had w/ patients & apply them to myself. Also very helpful is I worked cardiology so I was able to use cardiac rehab empathy on myself for when I was unable to do anything but get myself to work (like now).

We have so much compassion for others we must have the same or more compassion and empathy for ourselves - a great way to do this is envision your complete self as another person and how would you feel toward them - not getting the toilet cleaned?

This syndrome is just so crazy and so life altering I have to focus on what I can do - each day is different, some days I can only watch the squirrels on my porch, some days chronic pain really wears on me, & some days my brain cells work much better.

Blessings,
MissieView Thread

Posted bypinkplatypus

25 Replies | Reply | Watch This DiscussionReport This| Share this:Physical Therapy question for Dr. P or anyone else Great discussion. For years I had docs who just ignored me when I said my number one...

Includes Expert Content

Reply: Physical Therapy question for Dr. P or anyone else

I too have had my muscles complain after stretching. I have thought about the...

Posted by pinkplatypus

25 Replies | Reply | Watch This DiscussionReport This| Share this:Physical Therapy question for Dr. P or anyone else I too have had my muscles complain after stretching. I have thought about the...

WOOHOO PROGRESS!!

G'morning y'all, It does seem that each week I am making a little progress - last...

Posted by pinkplatypus

2 Replies | Reply | Watch This DiscussionReport This| Share this:WOOHOO PROGRESS!! G'morning y'all, It does seem that each week I am making a little progress - last...

I AM OK

I AM OK I was driving to work this morning and this phrase kept running through my...

Posted by pinkplatypus

4 Replies | Reply | Watch This DiscussionReport This| Share this:I AM OK I AM OK I was driving to work this morning and this phrase kept running through my...

Reply: Where to go from here...

I highly recommend St. John's Wort. My magic dose is 2 pills twice a day. I always use...

Posted by pinkplatypus

14 Replies | Reply | Watch This DiscussionReport This| Share this:Where to go from here... I highly recommend St. John's Wort. My magic dose is 2 pills twice a day. I always use...

Reply: low D

I am curious if you are taking Vitamin D2 that the docs usually prescribe or D3, which...

Posted by pinkplatypus

7 Replies | Reply | Watch This DiscussionReport This| Share this:low D I am curious if you are taking Vitamin D2 that the docs usually prescribe or D3, which...

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