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Nancy, What questions do I ask the therapist to make sure they know how to treat someone with Fibro? I was already hurt once by a PT.
Any info will be appreciated.
Thank you, Marie
deansmimiView Thread

Thank you,
deansmimi
MarieView Thread

taking the time to answer.
God BLess1
deansmimiView Thread

to what strength? Anything you can tell me will be appreciated. How did it help your pain?
I have to try something, as I feel like I'm living a nightmare every day when I get up. I'm really crippled with my hip,buttocks, spine, groin, knee, all on right leg. Plus two swollen ankles, feet, and swollen legs,
which I don't know the reason for. I spent two days in the ER, and after many tests, all came back negative. I also have two torn rotor cuffs, very painful arm muscles, and have lost all my strength and reach. It's so painful to walk, that I spend the day in my recliner, alternating with my heating pad from the shoulders and back, to sitting on it for my buttocks an hips. I wish for all who are in pain,,
for warm sunny painfree days. i also pray for a cure from this
horrible dragon. God Bless you all!
Marie
deansmimiView Thread

MarieView Thread

to what strength? Anything you can tell me will be appreciated. How did it help your pain?
I have to try something, as I feel like I'm living a nightmare every day when I get up. I'm really crippled with my hip,buttocks, spine, groin, knee, all on right leg. Plus two swollen ankles, feet, and swollen legs,
which I don't know the reason for. I spent two days in the ER, and after many tests, all came back negative. I also have two torn rotor cuffs, very painful arm muscles, and have lost all my strength and reach. It's so painful to walk, that I spend the day in my recliner, alternating with my heating pad from the shoulders and back, to sitting on it for my buttocks an hips. I wish for all who are in pain,,
for warm sunny painfree days. i also pray for a cure from this
horrible dragon. God Bless you all!
Marie
deansmimiView Thread

MarieView Thread

Thanks for the information. I ordered the book you suggested and also another on trigger points from Amazon. Nancy, actually, I've never asked my pc for any narcotics. When he first diagnosed me, he prescribed vicodin7.5/750, and he never even tried anything else in these five years. I also have osteoarth. for years, and only took Tylenol for Arth. When
I complained about new pains, he gave me a presp. for Vioxx. When I got home I went on the internet to look it up,
(which I always do) it said it had been taken off the mkt. and there had been deaths from it. I called Dr. at that time, and
he said he didn't know. About six mths later when I went for appt. He asked me again if I would like a presp. for vioxx. I had to remind him again. Hard to believe, Huh ?
While I was on Celexa, I asked if he would at least put me on Tramadol, but he said he couldn't because I was on Celexa.
After I found out the FDA had put out a warning about heart arrithmias being caused by it, and was weaned off of it,I waited awhile and asked him again.He said no because that is also a dangerous drug, and is in the same catergory as the other narcotics. I will not go in to see him anymore, Nancy, as he made it clear over the phone, that he thinks I should look for another PC closer to home. But... he will still send a
report denying me my medications, so what do I do now? at
that time I said,"Are you telling me that you don't want to treat me?" HE said,"No, No I'll treat you! I then asked when are you going to start? He said nothing, and had to leave the phone. Itold you i already tried at Spaulding, Per his request, and the Pain Mgmt. Dr. said they don't prescribe narcotics, and gave me papers, which was the consent form to take to a new Dr.I took it to Beth Israel, and she called Spaulding, and came back and made a appt to give me a complete Physical, and then informed that she doesn't believe in giving anyone narcotics. I asked what Dr. in Hospital does, and she said none of them. O(f course I didn't keep the appt for the Physical. My sister in N.H. said I should write a letter to the A.M.A. What do you think. I told her I think that they'd always back their doctors?? I just don't know what else to do??
I am in such pain now and am only taking Arth Pain Medicine
acedimedophen., also, from my Swanson Health, Gaba, for anxiety, Homeopathic, Fibromyalgia Relief, Arnica Montana 3x,6x,12x,30x,200x, and Fibro relief OTC. So far none of it is
really helping my pain very much.
Nancy, Thank you so much for taking your time to help me.
I really appreciate it. I know that you're in a lot of pain, and
my heart aches for you. I hope God rewards you for all the help you give to others, and takes your pain away.
God Bless You,
MarieView Thread

and brothers problems. Some are so helpful to me and others i'm sure. You should have been a Doctor. you're more knowledgeable and have so much more empathy than any
that I've ever had. This Dr. of mine is really giving me a bad name(which I have never had) and blackballing me with any
other Dr. or clinic I go to. When I went to Spaulding, they told me my Dr.just sent them a lot of useful info, which wasn't something that he had to do. I had done all of the research for Spaulding and brought it to him and asked for a referral 2
mths. before. and I wasn't having any problem with him at that time. That's all he needed to do until he rec'd a report. My appt. was on a Monday, and the Friday before, he called me
and told me to make sure I kept that appt., I told him i would if i could walk, that I had new symptoms with my lower back, hip, groin, and knee, and it was very difficult to walk. This Dr. is usually a wimpy guy, but actually hollered that I better keep it, no excuses, and to have them prescribe my meds from now on. I can imagine the info he sent them, as they told me that they'd give me one prescription, but they dont prescribe meds.which isn't the truth It was a pm that said this. They said I should go to a new pc and gave me some papers to give them. When I got home and read it , it was the consent form. So you see, this is going to follow me, and I have never abused any drugs. I told my reg. Pc that I have been going to that same clinic for 30 years and he should read my record.I never even asked for pain meds when I broke 4 ribs or when I broke my knee cap. I only was in constant pain from fibro, and he gave me 7.5/750 vicodin brand I never asked for anything else. In July, my druggist told me they couldn't get
the brand anymore(I am allergic to the generic, which my dr tried first for about 6 mths.) and I would have to get something else. I told my Dr. and he prescribed Norco7.5/750, which I hated, and had all kinds of side effects to, and really didn't touch my pain. He then pres. Norco 10. The effects increased, and that is when my heart rate increased. In the
meantime, I found out that other Pharm. carried the Vicodin brand. My druggist then told me that it was their distributor that wasn't carryng it.That would have been nice to know before Ihad to go through different meds, It seemed to me that it was a conspiracy between my druggist and Dr. I know I sound paranoid, but it took me quite awhile before I had these thoughts, as I really liked my druggist. I called my Dr. and told him I can get Brand at another Pharm, that the side effects of norco10 were driving me crazy, He told me to come in, and he'd change presp, He got me in there and hit me with this consent form,etc. Just recently he called and said he wouldn't give me any more pain meds, because I'd keep wanting to have increases. I said I never asked for any increases. He said I went up from 75 to 10 Norco. i said "No,
You went up to 10" I didn't even want the norco. He said he can't remember exactlywhathappened but I'll have to go toanother pc for pain meds. which he has made impossible for me to do. I'm sorry I wrote so long, but I knew I had to explain further. I am in excruciating pain now with both shoulders, and blades, neck, and down both arms and painful musclesin both arms, along with now new right lumber back r. hip, groin, and r. thigh and knee.(which only started the day
I had to go in and sign the consent form, which I declined.
Other people on here have said I should have signed it, but one of the things it says that you can't go anywhere else for
your meds, or any other pharmacy except the one you are going to, also you sign other rights away. This will follow you everywhere, which he's trying to do without me signing it.Thank you Nancy, for your patients. I hope many pain free days for you.
God Bless, MarieView Thread

that I have to put my right arm on to wash that side of my hair, then turn and do the opposite for the left side. But....I have been so thankful that I could use my legs without any pain, until now. Now I can't do my grocery shopping, and it
has been so hard having someone do it for you. A neighbor, with two girls volunterred the first time, and for future
times, but has been very hard to reach for a second time. I
refused at first, as I know she has responsibilities, but she insisted, probably because through the years, I have never forgotten her daughters birthdays and xmas's.
What I wanted to ask you is what strengh gaba pentin you are on? My Dr. prescribed 100ml only at night to start for a few days, then another in the morning. I might as well be taking a placebo, as it has done nothing for my pain or mind. I woul appreciate knowing what strength and how you take it, so I can discuss it with my Dr. after the weekend.. That is all I'm on right now for my pain, and it just doesn't touch it. Thank you so much. I'm so happy for you that it's working so well..
MarieView Thread
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