Congrats Fran. I haven't taken Lunestra but I know how it feels to finally sleep. Since starting the gabapentin I sleep better than I have for years. (Yes I still wake up, but it is usually because I have to go to the bathroom. I take diuretics.) I know for me, once I started sleeping (somewhat) again, everything else I have been dealing with seem almost managable.View Thread
Being as I am trying to understand what is happening to me with all of this, I am turning to those I think know best, you all. I need to figure out what is Fibro and what is something else. This is all too confusing. It seems no two people have the same symptoms except, I hurt all the time.
So here are my questions:
So today coming into work, my face felt numb. Well, tingly and numb, like when you leg or arm loses circulation and it is coming back. This traveled around my face. A little early tonight it started again. Is this something that others have faced.
Another question I am hoping others can help me with is about peripheral edema. Is this common with Fibro? I have it pretty severe. It is worse in my lower legs but also in my hands. I take a diuretic twice a day and it keeps it fairly controlled. This started in 2009 after I was hospitalized, had surgery, died and was resuscitated. I took me being growly and adamant with my GP to get the diuretics going.
Well I know I am starting a flare up because I can feel the exhaustion again. That is one of my first signs. (or the meds my insurance company decided I needed rather than the one my doctor prescribed isn't working.)
For about a week I could even be in my skin it was so sensitive. My hair couldn't touch me and my sheets were too much. Now the face.
I will talk to my doctor about these systems.
I hope more people respond. Very interested.View Thread
Interesting. I was started on a low dose. I talked to my doctor because it really didn't help much either. So, now I take it twice a day, morning and evening. It works well now. So, I would talk to your doctor and see what he/she suggests.View Thread
Hi there. I am so glad I found a group to help figure out what is going on. I was diagnosed about a month ago and have been suffering for about year. My insurance has decided that I must be in gabapentin and if it doesn't work, then they will consider paying for Cymbalta or Lyrica. So, unamused by this.
Well for the purpose of my post. Occasionally I get these episodes of itching. Last night was the worst. I woke at 3 am and thought I was going insane. Then the sheets bothered me. I couldn't have them on me. It almost hurt. I had to put my hair up because my hair grazing on my skin was so irritating.
I finally settled down again, but is the common? It was horrid. There were parts of me itching that should not ever itch!
Tonight it is starting again. About 8:30 this evening, my arm started to itch. Then it keeps moving and my hair touching my skin overly tickles. My joints don't seem to hurt as much. I used to have some episodes of sensativity and itching prior to starting the meds. But OMG! if this increased intensity is a reaction to the meds, I will go insane.View Thread
Hello Crystal, I am very careful regard what kinds of chemicals I use. I have always been very sensative to scents, soaps etc. And I am allergic to darn near everything. So, I don't change what I use when I find something that works. So, I don't think that is what this is. But I will do a house inventory again and see if anything has changed. It is always better to be safe than sorry.
I have just been diagnosed. I am still trying to get my head around everything that I have been experiencing.
No, I don't feel I am disabled; but I am not nearly 100%. I work still. I am lucky I have a job that allows me the time when I am down. But then I also have to make sure I meet my deadlines. I have found that obligating myself makes me get out and keep my life going. I am getting a promotion and so that means more stress and more work. This means when I have downtime, I have to do take it.
While I was going through the fatigue episode, I couldn't even clean my apartment. It still needs help. But I am getting there. I plan get a housekeeper (in an one-bedroom apartment it sounds silly, but I think that is the only way I will be able to keep my place up.)
I do get frustrated because I am not the person I was 4 years ago. I was very ill and hospitalized. Since my recovery, I have neber been able to get where I was before Fibro. Now, the last 3 years, hell.
I don't use any tools or aids. I do ask for help when I need it.
The hardest thing for me to accept is that I probably will not be hiking, camping etc any time soon.
I live in Las Vegas, and no, we are not very accessible for the disabled in my opinion.View Thread