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For about a week I could even be in my skin it was so sensitive. My hair couldn't touch me and my sheets were too much. Now the face.
I will talk to my doctor about these systems.
I hope more people respond. Very interested.View Thread

Interesting. I was started on a low dose. I talked to my doctor because it really didn't help much either. So, now I take it twice a day, morning and evening. It works well now. So, I would talk to your doctor and see what he/she suggests.View Thread

So here are my questions:
So today coming into work, my face felt numb. Well, tingly and numb, like when you leg or arm loses circulation and it is coming back. This traveled around my face. A little early tonight it started again. Is this something that others have faced.
Another question I am hoping others can help me with is about peripheral edema. Is this common with Fibro? I have it pretty severe. It is worse in my lower legs but also in my hands. I take a diuretic twice a day and it keeps it fairly controlled. This started in 2009 after I was hospitalized, had surgery, died and was resuscitated. I took me being growly and adamant with my GP to get the diuretics going.
Thanks so much!
Celtic TinneView Thread


CTView Thread

Thanks for the good wishes.View Thread

I actually sleep fairly well on the gabapentin. I don't recall having any dreams or the "awake while sleeping" effect. I actually had that before so I know what that feels like.
The itching has somewhat subsided. It isn't as intense, but it is still there. I can't have my hair touch my skin. It is like pins pushing into me. I guess I will be getting my hair cut soon.
I am going to talk to my doctor about the meds. It also causes periphal edema. I already deal with that..so taking something the makes it worse (and it does) isn't helping me overall.View Thread

No, I don't feel I am disabled; but I am not nearly 100%. I work still. I am lucky I have a job that allows me the time when I am down. But then I also have to make sure I meet my deadlines. I have found that obligating myself makes me get out and keep my life going. I am getting a promotion and so that means more stress and more work. This means when I have downtime, I have to do take it.
While I was going through the fatigue episode, I couldn't even clean my apartment. It still needs help. But I am getting there. I plan get a housekeeper (in an one-bedroom apartment it sounds silly, but I think that is the only way I will be able to keep my place up.)
I do get frustrated because I am not the person I was 4 years ago. I was very ill and hospitalized. Since my recovery, I have neber been able to get where I was before Fibro. Now, the last 3 years, hell.
I don't use any tools or aids. I do ask for help when I need it.
The hardest thing for me to accept is that I probably will not be hiking, camping etc any time soon.
I live in Las Vegas, and no, we are not very accessible for the disabled in my opinion.View Thread

Well for the purpose of my post. Occasionally I get these episodes of itching. Last night was the worst. I woke at 3 am and thought I was going insane. Then the sheets bothered me. I couldn't have them on me. It almost hurt. I had to put my hair up because my hair grazing on my skin was so irritating.
I finally settled down again, but is the common? It was horrid. There were parts of me itching that should not ever itch!
Tonight it is starting again. About 8:30 this evening, my arm started to itch. Then it keeps moving and my hair touching my skin overly tickles. My joints don't seem to hurt as much. I used to have some episodes of sensativity and itching prior to starting the meds. But OMG! if this increased intensity is a reaction to the meds, I will go insane.View Thread
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