
How I view my Fibro
I know it has been a long time since I have posted. I posted this to Fibro Colors on...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
I know it has been a long time since I have posted. I posted this to Fibro Colors on FB and decided I would share it here as well.
How I view Fibromyalgia.Living with fibromyalgia is a roller coaster ride in its self.
Some days the sun may shine, some days there may be clouds and some days it may bring a thunder storm.
(Much like the weather in Kansas.) If you don't like the weather wait a bit cuz it's gonna change.
Like the day the Universe decided to pop out all of your batteries. Or the day you managed to get your to do list done.
The days wh...en you use a sippie cup because it is the only thing keeping you dry.
Or the day you were able to actually read your own hand writing!
Yep, the day you were passed on a flight of stairs by someone over 70.
Or the day you were able to use the vacuum.
Having a memory like SWISS CHEESE is only good if you are a mouse.
So remember to wake up every day and smile at the moments that were not so good because by golly you made it through. Laugh at those not so good days because having a good day is so much sweeter. Know that each and every day you see will be a ride in and of its self.View Thread
Posted byJBirdFletcher
How I view Fibromyalgia.Living with fibromyalgia is a roller coaster ride in its self.
Some days the sun may shine, some days there may be clouds and some days it may bring a thunder storm.
(Much like the weather in Kansas.) If you don't like the weather wait a bit cuz it's gonna change.
Like the day the Universe decided to pop out all of your batteries. Or the day you managed to get your to do list done.
The days wh...en you use a sippie cup because it is the only thing keeping you dry.
Or the day you were able to actually read your own hand writing!
Yep, the day you were passed on a flight of stairs by someone over 70.
Or the day you were able to use the vacuum.
Having a memory like SWISS CHEESE is only good if you are a mouse.
So remember to wake up every day and smile at the moments that were not so good because by golly you made it through. Laugh at those not so good days because having a good day is so much sweeter. Know that each and every day you see will be a ride in and of its self.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Update and worried
Hello everyone. I know it has been a while since I posted last. Not quite a year ago...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Hello everyone. I know it has been a while since I posted last.
Not quite a year ago I started dropping weight that I did not have to loose.
I underwent a colonoscopy , endoscopy, and barium small intestion test, and cilicac blood test to get to the bottom of the matter.
I had minimal damage to the villa of the small inteston and GERD. All other tests came back normal.
My GP tested my thiroid etc. all came back normal.
At this point I calked it all up to stress.
Almost a year later I have continued to loose weight slowly. I am now at 87 lbs. Down 13 lbs from my normal weight.
My anxity, tremors and pulse rate have gotten worse.I developed horazontial ridges in my thunbs, increased appatite, soreness on the front of my neck, swollen lymph nodes, my blood pressure witch was running high due to my Savella even went down.
My GP ran another set of blood work at my request to include
TSH, T4,T3,CMP,ANA, and sed rate.
My results all normal however the sed rate has not come in yet.
The GP is taking me off of the Savella that I have been on for 4 years now. I was taking 200 mg. Thinking that I is the cause of the weight lose.
I go back in to see my GP tomarrow. I am very frustrated and worried. If anyone has any Ideas I would love to hear them.
Thanks for letting me vent my worries.
J.BirdView Thread
Posted byJBirdFletcher
Not quite a year ago I started dropping weight that I did not have to loose.
I underwent a colonoscopy , endoscopy, and barium small intestion test, and cilicac blood test to get to the bottom of the matter.
I had minimal damage to the villa of the small inteston and GERD. All other tests came back normal.
My GP tested my thiroid etc. all came back normal.
At this point I calked it all up to stress.
Almost a year later I have continued to loose weight slowly. I am now at 87 lbs. Down 13 lbs from my normal weight.
My anxity, tremors and pulse rate have gotten worse.I developed horazontial ridges in my thunbs, increased appatite, soreness on the front of my neck, swollen lymph nodes, my blood pressure witch was running high due to my Savella even went down.
My GP ran another set of blood work at my request to include
TSH, T4,T3,CMP,ANA, and sed rate.
My results all normal however the sed rate has not come in yet.
The GP is taking me off of the Savella that I have been on for 4 years now. I was taking 200 mg. Thinking that I is the cause of the weight lose.
I go back in to see my GP tomarrow. I am very frustrated and worried. If anyone has any Ideas I would love to hear them.
Thanks for letting me vent my worries.
J.BirdView Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: Update and worried
Went and saw the doc yesterday. He seems to think its, the Savella and stress. It...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Went and saw the doc yesterday. He seems to think its, the Savella and stress. It will take a month to come off of the Savella and I start thearpy next week.View Thread
Posted byJBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: Update and worried
Doc has me slowly coming off of the savella. It probaly helps that I had a hard time...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Doc has me slowly coming off of the savella. It probaly helps that
I had a hard time remembering to take the am dose.
Savella was a God send for me with my fibro. I have had more pain free (fibro) days since starting it. Now I am worried about the pain that I know is coming on top of everything else.
Thanks for the support!!View Thread
Posted byJBirdFletcher
I had a hard time remembering to take the am dose.
Savella was a God send for me with my fibro. I have had more pain free (fibro) days since starting it. Now I am worried about the pain that I know is coming on top of everything else.
Thanks for the support!!View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: Thursday ** Dec 8, 2011 ***Countdown til Christmas...
Good afternoon everyone. I hope that today finds each of you in a good place and...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Good afternoon everyone. I hope that today finds each of you in a good place and doing well.
There is not much on my agenda today. I am still trying to get my back, neck and shoulders to calm down. DH has agreed to give me a nice back rub tonight. I am a little stiff with antisapation. HEHEHE.
I am waiting to find out if DS 20 will have the money to send me to Arkansas to pick up his things from his Birth mother. If so I will be heading down there this weekend or the beginning of next week. I am hopping that the snow will stay to the North of us.
With the artic air already reaching some of us Please remember to stay warm and dress in layers. It is important to keep stretching those muscles. I find that my favorite hot drink helps to not only keep my hands and fingers warm but, it keeps me hydrated too!
With the holidays it is important like MiMi said to PACE, PACE, PACE. Not everything has to be done today. Clear off the dinning room table to wrap those gifts. Gather friends or family and as a group get some of those goodies made up tomarrow or this weekend.
Mimi, I am sorry that court was again moved to another date. Our prayers and thoughts are with you.View Thread
Posted byJBirdFletcher
There is not much on my agenda today. I am still trying to get my back, neck and shoulders to calm down. DH has agreed to give me a nice back rub tonight. I am a little stiff with antisapation. HEHEHE.
I am waiting to find out if DS 20 will have the money to send me to Arkansas to pick up his things from his Birth mother. If so I will be heading down there this weekend or the beginning of next week. I am hopping that the snow will stay to the North of us.
With the artic air already reaching some of us Please remember to stay warm and dress in layers. It is important to keep stretching those muscles. I find that my favorite hot drink helps to not only keep my hands and fingers warm but, it keeps me hydrated too!
With the holidays it is important like MiMi said to PACE, PACE, PACE. Not everything has to be done today. Clear off the dinning room table to wrap those gifts. Gather friends or family and as a group get some of those goodies made up tomarrow or this weekend.
Mimi, I am sorry that court was again moved to another date. Our prayers and thoughts are with you.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: New Dx of Fibromyalgia/Savella
Hello and welcome to the community. I have been on Savella for just over a year now....
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Hello and welcome to the community.
I have been on Savella for just over a year now. For me it has been a God send. There are a few things to remember about medications for fibro. What works for one will not always work for another. Also there is a diffrence in what doses we tolrate better.
Savella is a SNRI so taking anything that increases the levels of sertionin in the brain can increase your risk of Sertonin Syndrome.
There are also some side effects that come with taking it: Increased sweating, a rise in blood pressure, rise in pulse rate.
It is very important to read the entire leaflet that they give you and to report negaitave side affects to your doctor.
Do not stop taking Savella without consulting with your doctor as you have to be weened off of this medication. It can take as long as a month before you notice any change in how you feel.
Remember it can take time before you find what works for you best. Don't get discoraged.
I personaly have never been treated by anyone other than my PCP. You are your own beat advocate when it comes to your health. Being an informed pacient goes a long way in your care.
I hope this helps. Again welcome and I am glad that you found us.View Thread
Posted byJBirdFletcher
I have been on Savella for just over a year now. For me it has been a God send. There are a few things to remember about medications for fibro. What works for one will not always work for another. Also there is a diffrence in what doses we tolrate better.
Savella is a SNRI so taking anything that increases the levels of sertionin in the brain can increase your risk of Sertonin Syndrome.
There are also some side effects that come with taking it: Increased sweating, a rise in blood pressure, rise in pulse rate.
It is very important to read the entire leaflet that they give you and to report negaitave side affects to your doctor.
Do not stop taking Savella without consulting with your doctor as you have to be weened off of this medication. It can take as long as a month before you notice any change in how you feel.
Remember it can take time before you find what works for you best. Don't get discoraged.
I personaly have never been treated by anyone other than my PCP. You are your own beat advocate when it comes to your health. Being an informed pacient goes a long way in your care.
I hope this helps. Again welcome and I am glad that you found us.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: Hump Day ***12/7/2011 ***Countdown until Christmas...
Good afternoon everyone. I hope that today finds each of you doing well and in little...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Good afternoon everyone. I hope that today finds each of you doing well and in little or no pain.
MiMi,
Sending you and yours lots of prayers. The court in this country have fallen a great deal. Know that DH and I are supporting you and yours in spirit.
Nancy,
Glad to hear that you have been feeling good. I use to take Mg just as directed on the bottle. It does go a long way to help with muscles. I don't have to take it here due to the fact that I drink city water and our water treatment plant should have been shut down years ago.
Give DS hugs from us. I know how hard it can be to watch your kids deal with such issues.
Angelswife,
Glad to hear that you are feeling better. Both my boys have had the stomach bug the past few weeks. Good for you on the hats!!! They sound so cute. I just love jingle bells!!!
Jessi,
Sorry to hear that you are not feeling or sleeping so well. I hope that you get to feeling better soon. I hope that you will find great enjoyment in your new major.
Linda,
I am sorry that you too are feeling under the weather. I wish you a speedy recovery. Sending you some warm chicken noodle soup your way.
Cece,
Sorry to hear that you are dealing with a lot of stress right now. I think that it is great that you help your parents the way you do. Its a true act of love. Please do take some time for you, so that you can continue to be the loving and supportive daughter that you are.
Lou,
I always hate getting out in bad weather. I hope that you enjoy your evening after being out and about in the weather. Cuddle up with a nice cup of tea or hot coco tonight.
Wolfsong,
Sounds like you made a great find at goodwill. I just love it when that happens. I found a great pair of chunky lace ups a few months ago. They have almost a 2 inch sole and 2 1/2 inch heel. I hope that you sleep better tonight.
As for me, the funeral was yesterday and my girlfriend and her three girls headed home yesterday afternoon. The service was beautiful. All of the girls in the family wore tutu's.
I was able to get some sleep last night. I over did it trying to take care of everyone so today I have taken it easy. I hope to be able to work on my tree skirt this weekend but, will not push myself to get anything done.
My wish for each of you this afternoon is : Hug the ones you love, take time to let them know you care and enjoy being loved.View Thread
Posted byJBirdFletcher
MiMi,
Sending you and yours lots of prayers. The court in this country have fallen a great deal. Know that DH and I are supporting you and yours in spirit.
Nancy,
Glad to hear that you have been feeling good. I use to take Mg just as directed on the bottle. It does go a long way to help with muscles. I don't have to take it here due to the fact that I drink city water and our water treatment plant should have been shut down years ago.
Give DS hugs from us. I know how hard it can be to watch your kids deal with such issues.
Angelswife,
Glad to hear that you are feeling better. Both my boys have had the stomach bug the past few weeks. Good for you on the hats!!! They sound so cute. I just love jingle bells!!!
Jessi,
Sorry to hear that you are not feeling or sleeping so well. I hope that you get to feeling better soon. I hope that you will find great enjoyment in your new major.
Linda,
I am sorry that you too are feeling under the weather. I wish you a speedy recovery. Sending you some warm chicken noodle soup your way.
Cece,
Sorry to hear that you are dealing with a lot of stress right now. I think that it is great that you help your parents the way you do. Its a true act of love. Please do take some time for you, so that you can continue to be the loving and supportive daughter that you are.
Lou,
I always hate getting out in bad weather. I hope that you enjoy your evening after being out and about in the weather. Cuddle up with a nice cup of tea or hot coco tonight.
Wolfsong,
Sounds like you made a great find at goodwill. I just love it when that happens. I found a great pair of chunky lace ups a few months ago. They have almost a 2 inch sole and 2 1/2 inch heel. I hope that you sleep better tonight.
As for me, the funeral was yesterday and my girlfriend and her three girls headed home yesterday afternoon. The service was beautiful. All of the girls in the family wore tutu's.
I was able to get some sleep last night. I over did it trying to take care of everyone so today I have taken it easy. I hope to be able to work on my tree skirt this weekend but, will not push myself to get anything done.
My wish for each of you this afternoon is : Hug the ones you love, take time to let them know you care and enjoy being loved.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: OT What my dog would NOT eat! might be long!
Years ago we had a Boston Terrier named Magoo. He was a rescue. He had been chasing...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Years ago we had a Boston Terrier named Magoo. He was a rescue. He had been chasing cattle on a friends farm so that is how we wound up with him.
Anyhow Magoo was not what one would call smart. He would get excited playing with Gidgette our Fox Terrier mix. After chasing her around the house he wold look at the door or the wall and run head long into them.
Being a Boston and eating people food, for he thought he was people, he had really bad gas. He would fart, I guess he did not know he was farting, Jump up and bark at his rear for startling him. He was too funny to watch.View Thread
Posted byJBirdFletcher
Anyhow Magoo was not what one would call smart. He would get excited playing with Gidgette our Fox Terrier mix. After chasing her around the house he wold look at the door or the wall and run head long into them.
Being a Boston and eating people food, for he thought he was people, he had really bad gas. He would fart, I guess he did not know he was farting, Jump up and bark at his rear for startling him. He was too funny to watch.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: MEDITATION
Hey guys. I use meditation as well. Years ago I purchased a CD called Meditation...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Hey guys.
I use meditation as well. Years ago I purchased a CD called Meditation Made Easy. It had something like 9 diffrent meditations on it along with one soundtrack.
Today I use one that focouses on relaxing every muscle in the body. Starting at your feet tensing the muscles and relaxing them one by one.
That is my bedtime meditation. I also use it when my muscle tension gets bad. Or I am fighting a headache.
I have left my body many times. Being grounded helps me to find my way back. Friends are always amazed when I show them.
Simple breathing excersies come in handy when dealing with stressfull situations. I also use breathing during tremors and after them to help.View Thread
Posted byJBirdFletcher
I use meditation as well. Years ago I purchased a CD called Meditation Made Easy. It had something like 9 diffrent meditations on it along with one soundtrack.
Today I use one that focouses on relaxing every muscle in the body. Starting at your feet tensing the muscles and relaxing them one by one.
That is my bedtime meditation. I also use it when my muscle tension gets bad. Or I am fighting a headache.
I have left my body many times. Being grounded helps me to find my way back. Friends are always amazed when I show them.
Simple breathing excersies come in handy when dealing with stressfull situations. I also use breathing during tremors and after them to help.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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Reply: Monday, Monday ****Dec 5, 2011 ***Countdown until ...
Good morning everyone. I hope today finds each of you doing well and in little or no...
Posted by JBirdFletcher
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
Good morning everyone. I hope today finds each of you doing well and in little or no pain.
Boy o boy what a long weekend. One of DS 17's friends daughter past away Thursday due to sever head trauma. The current boyfriend of the mom has been arested and charged with murder.
We found out Thursday that the parents of one of the other children present age 3 had kicked her and through her down a flight of stairs. The parents of the 3 year old took him to a state certified physocilogest to varifie that his story was true and to help him to understand that as a result of what he did that she had died.
My bestfriend from Arkansas came up Thursday night. She acted as grandma to the baby and is the step-mother to the young man who has been arested. She brought her 3 daughters with her. The rosary is tonigt with the funeral tomarrow.
I live in a small 2 bedroom house. So needless to say I have bodys everywhere. I spent the weekend cooking so that I could feed every one and to take food over to the babys dads house as they do not have the family support that the moms family does.
We are all heart sick over her passing. She was 2 weeks younger than my grandson. They both use to come over and play together. She will be greatly missed.
With everyone still asleep this morning and the boys off to school I am going grab my heating pad, do some streches get my meds taken. I over did it this weekend and am feeling it. Two days left and then I can focuse on me.
Sorry for going on but, I needed to get it off of my chest.
Welcome to all of our new members. I am glad that you found us. You will find a great support system here.View Thread
Posted byJBirdFletcher
Boy o boy what a long weekend. One of DS 17's friends daughter past away Thursday due to sever head trauma. The current boyfriend of the mom has been arested and charged with murder.
We found out Thursday that the parents of one of the other children present age 3 had kicked her and through her down a flight of stairs. The parents of the 3 year old took him to a state certified physocilogest to varifie that his story was true and to help him to understand that as a result of what he did that she had died.
My bestfriend from Arkansas came up Thursday night. She acted as grandma to the baby and is the step-mother to the young man who has been arested. She brought her 3 daughters with her. The rosary is tonigt with the funeral tomarrow.
I live in a small 2 bedroom house. So needless to say I have bodys everywhere. I spent the weekend cooking so that I could feed every one and to take food over to the babys dads house as they do not have the family support that the moms family does.
We are all heart sick over her passing. She was 2 weeks younger than my grandson. They both use to come over and play together. She will be greatly missed.
With everyone still asleep this morning and the boys off to school I am going grab my heating pad, do some streches get my meds taken. I over did it this weekend and am feeling it. Two days left and then I can focuse on me.
Sorry for going on but, I needed to get it off of my chest.
Welcome to all of our new members. I am glad that you found us. You will find a great support system here.View Thread
I may have dyslexia and can't spell, I may have Brain Fog and not remember who you are, I may have tremors that scare you, I may drop everything I pick up but, By ALL I do it with everything I am!!!
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